Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile
Global MPN Scientific Foundation

@gmpnsf

Global MPNSF is a non-profit foundation, which empowers MPN patients worldwide by raising awareness, advocating for their needs and supporting research. #MPNsm

ID: 1528732616807047174

linkhttps://hopp.to/gmpnsf calendar_today23-05-2022 13:40:56

346 Tweet

196 Followers

94 Following

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๐Ÿ“ฃ Recommend this roundtable to your PV patients ๐Ÿฉธ A global space to connect, share and feel supported ๐Ÿ“… Sept 22 at 6 PM CEST ๐Ÿ—ฃ๏ธ Spanish with English interpretation ๐ŸŒ Live on Zoom ๐Ÿ”— Register: gmpnsf.org/post/roundtablโ€ฆ #MPNsm

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The 5th MPN Spring Symposium program is now live ๐Ÿ—“๏ธ Nov 7 to 9, 2025 ๐Ÿ“ Hybrid from Barcelona ๐Ÿ’ป Online access via Zoom Top faculty: Prof. Haifa Al-Ali Dr. Natalia Curto Dr. Serge Verstovsek ๐Ÿ”— Program + registration: gmpnsf.org/post/program-mโ€ฆ #5thMPNS #MPNsm

The 5th MPN Spring Symposium program is now live
๐Ÿ—“๏ธ Nov 7 to 9, 2025
๐Ÿ“ Hybrid from Barcelona
๐Ÿ’ป Online access via Zoom

Top faculty:
Prof. Haifa Al-Ali
Dr. Natalia Curto
Dr. Serge Verstovsek

๐Ÿ”— Program + registration: gmpnsf.org/post/program-mโ€ฆ

#5thMPNS #MPNsm
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๐Ÿ“ฃ For all healthcare professionals, advocates & MPN communities: The Wellbeing Project offers access to: ๐ŸŒฟ Therapeutic online classes (Yoga, Chi Kung, breathwork) ๐Ÿ†“ 7-day free trial ๐ŸŽฅ Share it: gmpnsf.org/post/feeling-eโ€ฆ #MPNWellbeingProject #MPNsm

๐Ÿ“ฃ For all healthcare professionals, advocates & MPN communities:

The Wellbeing Project offers access to:
๐ŸŒฟ Therapeutic online classes (Yoga, Chi Kung, breathwork)
๐Ÿ†“ 7-day free trial

๐ŸŽฅ Share it: gmpnsf.org/post/feeling-eโ€ฆ

#MPNWellbeingProject #MPNsm
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๐Ÿ“ข Meet Geron, a company committed to innovation in the MPN field. ๐ŸŒ Join our free webinar Oct 1 | 3 PM CET ๐ŸŽค Speaker: Christian Dimaano (VP, Medical Affairs) ๐Ÿ—ฃ English + Spanish translation ๐Ÿ”— Register here: gmpnsf.org/post/webinar-dโ€ฆ #MPNsm

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๐Ÿ“บ New video available with Silence Therapeuticsย & Prof. Susanne Isfort (Susanne Isfort) is now live. ๐Ÿ’ฌ Alberto Martinez explains divesiran, a therapy in development for PV that could reduce phlebotomies & improve quality of life. ๐Ÿ‘‰ Watch here: gmpnsf.org/post/videos-weโ€ฆ #MPNsm

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๐ŸŒŸ Wellbeing Project I Free Trial Classes ๐Ÿง˜ Restorative Yoga & Yoga Nidra โ€“ Marga Linares โœ๏ธ Creative Writing โ€“ Puy Barral ๐ŸŒฟ Chi Kung & Conscious Breathing โ€“ Jorgina Pequera For patients and caregivers living with MPN. ๐Ÿ‘‰ Register today: gmpnsf.org/wellbeing #MPNsm

๐ŸŒŸ Wellbeing Project I Free Trial Classes

๐Ÿง˜ Restorative Yoga & Yoga Nidra โ€“ Marga Linares
โœ๏ธ Creative Writing โ€“ Puy Barral
๐ŸŒฟ Chi Kung & Conscious Breathing โ€“ Jorgina Pequera

For patients and caregivers living with MPN.

๐Ÿ‘‰ Register today: gmpnsf.org/wellbeing

#MPNsm
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๐Ÿ“ธ Flashback to last yearโ€™s Symposium. The 5th MPN Spring Symposium is set for November 7โ€“9, 2025 in Barcelona (hybrid). ๐Ÿ‘€ Full program now available. ๐Ÿ”— Register today: gmpnsf.org/post/program-mโ€ฆ #5thMPNS #MPNsm

๐Ÿ“ธ Flashback to last yearโ€™s Symposium.

The 5th MPN Spring Symposium is set for November 7โ€“9, 2025 in Barcelona (hybrid).
๐Ÿ‘€ Full program now available.

๐Ÿ”— Register today: gmpnsf.org/post/program-mโ€ฆ

#5thMPNS #MPNsm
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๐Ÿ‘‰๐Ÿป Peterโ€™s Journey: Hope After a Stem Cell Transplant โ€œA transplant changes your life. It is like having a second birthday.โ€ ๐Ÿ’ฌ Watch his story ๐Ÿ‘‰ gmpnsf.org/post/peter-s-jโ€ฆ #MPNsm

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๐Ÿ“บ New episode out Life after transplant with Montse ๐Ÿ  Home care ๐Ÿฅ— Healthy routines ๐Ÿ’ช Strength in progress ๐ŸŽฅ Watch now: gmpnsf.org/post/life-afteโ€ฆ #MPNsm

Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

๐Ÿ‘‰๐Ÿป Fatigue is one of the most difficult symptoms for MPN patients. Paloma (ET) & Leonor (MF) say QiGong sessions helped them reconnect with their body & regain energy. ๐Ÿฉธ ๐Ÿ“ฒ Know more about the #WellbeingMPN Project โ†’ gmpnsf.org/wellbeing #MPNsm

๐Ÿ‘‰๐Ÿป Fatigue is one of the most difficult symptoms for MPN patients.

Paloma (ET) & Leonor (MF) say QiGong sessions helped them reconnect with their body & regain energy. ๐Ÿฉธ

๐Ÿ“ฒ Know more about the #WellbeingMPN Project โ†’ gmpnsf.org/wellbeing

#MPNsm
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Main topic at the 5th MPN Spring Symposium: ๐Ÿง  Living with MPN symptoms. Fatigue, pain, brain fog, insomniaโ€ฆ Also: ๐Ÿ”ฌ New therapies ๐Ÿ’ฌ Quality of life ๐Ÿ’ก Whatโ€™s next ๐Ÿ“ฒ Program and registration details: gmpnsf.org/post/program-mโ€ฆ #5thMPNS #MPNsm

Main topic at the 5th MPN Spring Symposium:
๐Ÿง  Living with MPN symptoms.
Fatigue, pain, brain fog, insomniaโ€ฆ

Also:
๐Ÿ”ฌ New therapies
๐Ÿ’ฌ Quality of life
๐Ÿ’ก Whatโ€™s next

๐Ÿ“ฒ Program and registration details: gmpnsf.org/post/program-mโ€ฆ

#5thMPNS #MPNsm
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Peter Lรถffelhardt (Peter Loffelhardt), CEO of Global MPN Scientific Foundation, will attend #ESMO2025 in Berlin (Oct 17โ€“21). Join us to amplify the voice of MPN patients and strengthen the 3Pโ€™s: Patients, Physicians and Pharma. ๐Ÿ“ฉ Contact: gmpnsf.org/post/meet-peteโ€ฆ ESMO - Eur. Oncology #MPNsm

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โณ Only 23 days left for the 5th MPN Spring Symposium. ๐Ÿฉบ Join Prof. Serge Verstovsek and global experts to discuss the future of MPN care. ๐Ÿ—“๏ธ November 7 to 9, 2025 | Barcelona & Online ๐Ÿ”— gmpnsf.org/post/program-mโ€ฆ #5thMPNS #MPNsm

Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

๐Ÿงฌ Webinar: What is imetelstat? Join Dr. Faye Feller (Geron) on October 23rd at 15:00 CET for an open session about this investigational drug for Myelofibrosis. ๐Ÿ’ป Online | Free access | With Spanish interpretation ๐Ÿ”— Register: gmpnsf.org/post/webinar-wโ€ฆ #MPNsm

Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

๐Ÿ–‹๏ธ We present a new Wellbeing Workshop with Puy Barral, creative writing facilitator and MPN patient. Part of the Wellbeing Project. Try it with the session on Oct 23 at 19:00h CET. ๐Ÿ—“๏ธ ๐Ÿ”— gmpnsf.org/post/new-worksโ€ฆ #WellbeingMPN #MPNsm

Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

๐Ÿฉธ On Oct 27 at 18:00 (CEST), join the Roundtable for Patients and Families with Essential Thrombocythemia (ET) by Global MPN Scientific Foundation. ๐ŸŒ With live EN/ES interpretation. We encourage professionals to share with colleagues & patients. ๐Ÿซ‚ ๐Ÿ‘‰ Register: gmpnsf.org/post/roundtablโ€ฆ #MPNsm

Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

๐Ÿ“ฝ๏ธ The Global MPN Scientific Foundation (GMPNSF) shares โ€œIntroduction to Geronโ€, featuring Christian Dimaano on the companyโ€™s research and scientific focus in MPNs ๐Ÿ”ฌ Tomorrow, Oct 23rd: webinar on imetelstat (CT) with Geron ๐ŸŽฅVideo + register: gmpnsf.org/post/video-webโ€ฆ #MPNsm

Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

โณ 15 days left for the 5th MPN Spring Symposium! ๐Ÿ“ Nov 7โ€“9 ๐ŸŒ Focus on symptoms, quality of life & global collaboration between patients, physicians & pharma. ๐Ÿ“ฒ Register: gmpnsf.org/post/save-the-โ€ฆ #5thMPNS #MPNsm

โณ 15 days left for the 5th MPN Spring Symposium!
๐Ÿ“ Nov 7โ€“9

๐ŸŒ Focus on symptoms, quality of life & global collaboration between patients, physicians & pharma.

๐Ÿ“ฒ Register: gmpnsf.org/post/save-the-โ€ฆ

#5thMPNS #MPNsm
Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

Yesterday, we hosted โ€œWhat is imetelstat?โ€ featuring Dr. Faye Feller (Geron)๐Ÿฉธ ๐Ÿ‘‰๐Ÿป The webinar explored the investigational therapy imetelstat (CT) for Myelofibrosis, its potential mechanism, and ongoing studies ๐ŸŽฅ Video coming soon. ๐Ÿ“ฉ Subscribe: gmpnsf.org/#text17 #MPNsm

Yesterday, we hosted โ€œWhat is imetelstat?โ€ featuring Dr. Faye Feller (Geron)๐Ÿฉธ

๐Ÿ‘‰๐Ÿป The webinar explored the investigational therapy imetelstat (CT) for Myelofibrosis, its potential mechanism, and ongoing studies

๐ŸŽฅ Video coming soon.
๐Ÿ“ฉ Subscribe: gmpnsf.org/#text17

#MPNsm