🌍💙 Today, we stand together for FOXG1 syndrome and all rare diseases! Rare Disease Day is a global movement fighting for equity in healthcare, diagnosis, and treatment for the 300 million people worldwide living with a rare disease. #rarediseaseday #rarediseaseawareness

✨ Huge congrats to Professor Soo-Kyung Lee, PhD, Director of the UB FOXG1 Research Center, for being named this year’s Spotlight Symposia Series Honoree! 🎉 Her pioneering FOXG1 research is changing lives & advancing our understanding of brain development. 🧠✨ #FOXG1center

👇 Drop the word that best describes how you're feeling today. Tired? Happy? Overwhelmed? Grateful? There’s no wrong answer — we’re just here for each other. 💬 We’ll go first: hopeful #foxg1 #foxg1awareness #foxg1syndrome #foxg1center #foxg1research #rarediseases

How do we study FOXG1 in the lab? We reprogram skin cells from FOXG1 patients into stem cells (iPSCs) that can become brain cells—giving us a window into how the syndrome works. #FOXG1research #FOXG1syndrome #FOXG1center

FOXG1 syndrome is caused by a mutation in a single gene on chromosome 14 — but this one gene plays a big role in early brain development. #foxg1syndrome #foxg1awareness #foxg1research #foxg1center #raredisease #rarediseaseawareness #geneticresearch

Pssst....wanna hear about all of the updates going on at FOXG1 Research Center? You need to sign-up for our quarterly newsletter! We share research advancements, community spotlights and update you on everything happening here at FRC! Signup here: foxg1center.org/mailing-list

🌯✨ Big thanks to everyone who came out (or ordered in!) for our FOXG1 Research Center fundraiser at Chipotle this weekend! Every meal helped support critical research and families impacted by FOXG1 syndrome. Here’s to science, smiles, and burrito bowls! 🌯💡 #FOXG1Research

In between therapies, doctor visits & the unknowns—there are smiles, giggles, cuddles & moments that fill our hearts. We asked FOXG1 parents to share a recent moment of joy… and their answers remind us just how much love and light lives in this community. #foxg1researchcenter

Using a technique called immunohistochemistry (IHC) staining, our researchers can highlight specific proteins in the brain with fluorescent tags. This helps us visualize where FOXG1 is active and how it interacts with other proteins—clues help understand FOXG1 syndrome.

When someone you love is handed a rare diagnosis — what do you do? You want to help. But you don’t always know how. You worry you’ll say the wrong thing. Or maybe it’s been a while, and you’re not sure how to show up anymore. This post is for you. 💜 foxg1center.org/blog/how-to-su…

Meet Junior! This bright and loving boy is almost 8 years old, and he’s the king of his home! Thank you for inspiring us, Junior! #FOXG1Family #RareButMighty #DisabilityAwareness #FOXG1Syndrome #SpecialNeedsParenting #Neurodiversity #ResearchWithHeart #TeamFOXG1 #RareDiseaseKids

🧬 Why do researchers need iPSCs to study FOXG1 syndrome? Because the brain holds the answers — but we need a safe, ethical way to study it. It’s one of the most powerful tools we have to understand FOXG1 at the cellular level. #foxg1 #foxg1awareness #raredisease

Meet Sophia, one of the compassionate hearts behind the FRC. Her journey into genetics research is driven by empathy, curiosity, & a deep desire to make a difference. #foxg1 #foxg1awareness #foxg1syndrome #foxg1research #foxg1center foxg1center.org/blog/sophia-fo…

We were thrilled to welcome a local FOXG1 family into the lab last week! Tessa, her parents, and her older sister came to tour the lab and meet some of our researchers. #foxg1 #raredisease

Cryosectioning is the first step in turning brain tissue into ultra-thin slides. Once prepared, the slides can be stained to reveal specific proteins, giving us a detailed view of how FOXG1 mutations affect the brain at the cellular level. #foxg1 #foxg1awareness #foxg1syndrome

We’re excited to welcome two amazing interns to the FOXG1 Research Center team this summer — James and Layla! Please join us in giving them both a warm welcome! 💙 #FOXG1ResearchCenter #WelcomeInterns #TeamFOXG1 #CommunityDrivenScience

Happy birthday, Dr. Soo Lee! 🎉 Your passion and leadership mean the world to all of us at the FOXG1 Research Center. We feel incredibly fortunate to have you guiding our team and showing us that science fueled by love can bring hope to families everywhere!

If you spend time with FOXG1 families, there’s a theme that pops up again and again: so many of our kids absolutely love water. Does your child love water too? Share your favorite water moments in the comments! #foxg1

Meet our summer interns! From first-time pipetting to prepping brain tissue for cryosectioning, they’re gaining real lab experience- and playing a hands-on role in advancing FOXG1 research. #foxg1research #researchlab #researchintern #foxg1center #foxg1syndrome #foxg1awareness

Once a week, we trade lab coats for coffee cups ☕ Our weekly lab meeting is all about coming together by sharing research updates, troubleshooting challenges, and brainstorming new ideas as a team. foxg1center.org