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#hellomynameis #Iamjustamum #PANS #PANDAS #arfid #ocd #tourettes #eatingdisorder #emotionallability #NHS #NHSE #BeMyVoice #anxiety #CAMHS #immunology #psychiatry #Neurology #ENT #inflammation #infection #neuropsychiatry #APPG @RobinMillarMP Ruth Cadbury Vaughan Gething

Dear child or adult, as parents we are doing everything we can to 'fix you', we love you and will never give up. We pray everyday that we will be heard and your suffering will end. Sonia S. Andy Magee thank you so much ❤ youtu.be/vgWvZlTGDkw via YouTube

PANS PANDAS AWARENESS DAY #hellomynameis #Iamjustamum #PANS #PANDAS #arfid #ocd #tourettes #eatingdisorder #emotionallability #NHS #NHSE #BeMyVoice #anxiety #CAMHS #immunology #psychiatry #Neurology #ENT #inflammation #infection #neuropsychiatry

'Form the mouth of babes' please dont let another child like Mark reach adulthood without treatment He has bravely spoken out Don't let his voice go unheard #MyNameIs #bemyvoice #panspandasawareness #action #now

Thank you ⁦Tim Langlois⁩ for capturing Lucy Bird vision in time for #pan #pandas awareness day October 9th, you did a remarkable job. #hellomynameis #Iamjustamum #arfid #ocd #tourettes #eatingdisorder #BeMyVoice #CAMHS #immunology #psychiatry #Neurology

#hellomynameis #Iamjustamum #PANS #PANDAS #ocd #NHS #BeMyVoice #anxiety #CAMHS #Neurology #inflammation #infection #APPG steven hackett Ruth Cadbury NICE Children's Commissioner for England Matt Hancock Sir Jeremy Hunt MP World Health Organization (WHO) The Lancet Child & Adolescent Health MQ

Just before the day is over a message from my son. 'If I wasn't so afraid of dying, if would just want to be dead. I would do anything, anything to be out of this pain. This is my voice.' #BeMyVoice #hellomynameis #Iamjustamum #PANS #PANDAS #panspandasawareness

#panspandasuk steven hackett Ruth Cadbury @WGHHealthandCare NHS Scotland Department of Health NICE Children's Commissioner for England Matt Hancock Sir Jeremy Hunt MP Health and Social Care Committee World Health Organization (WHO) The Lancet Child & Adolescent Health MQ @MDPMentalHealth Neale Hanvey ALBA🏴󠁧󠁢󠁳󠁣󠁴󠁿 thisisit.blog/2017/10/15/no-…

Matt Hancock Matt Hancock this is my daughter - she has PANS ... there are many Tillies but as this illness is deemed ‘controversial’ it’s overlooked and little known by the NHS .... many parents are forced to go private at huge financial burden - so many Tillies, please hear their voices ...

If medical and psychiatry do not start to communicate and work together then families will continue to struggle and children suffer for longer.We desperately need these 2 areas of medicine to have a holistic approach #itstimeforchange💚 #bemyvoice #pans

Dr Sarah Jarvis talking all things #PANS #PANDAS 2/11/20 ໊ on BBC Radio 2 BBC News (UK) ITV News LBC BBC Panorama

#pans #pandas #panspandasuk #autoimmune #Neurology #neuroimmune #ivig #Trauma #assistancedog #tics #tourettes #treatment #onion thisisit.blog/2020/11/14/alw…

Research article finds that even after the acute symptoms triggered by #PANDAS resolve, children may experience ongoing academic, emotional, behavioral, & social difficulties. #PANS neuro.psychiatryonline.org/doi/10.1176/ap…

This week I signed a letter with Ruth Cadbury from the PANS/PANDAS APPG to NICE requesting development and adoption of formal clinical guidelines for this terrible - and treatable - condition.

#pans #pandas #panspandasuk #recovery #ivig #tourettes #Fife #Neurodiversity #neuroimmune #neurology #tics #encephalopathy thisisit.blog/2021/02/12/by-…

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#pans #pandas #recovery #ivig #panspandasuk #Immunotherapy #TouretteSyndrome #Neurology thisisit.blog/2021/05/16/qui…

#pans #pandas #recovery #hope #neuroimmune #viral #infection #ivig #believe thisisit.blog/2022/02/22/alw…