Emma M Smith π
@emmamsmith2
Driving instructor (ADI) with Bill Plant Driving School and mum to 2 teenagers, the youngest a cf warrior! Music lover, I love to sing!
ID: 1104032411833286658
08-03-2019 14:53:33
2,2K Tweet
229 Followers
171 Following
First CFer to the top of Mount Vinson in Antarctica,7 of the 7 summits now completed (highest on each continent). Tough going at high altitude, each step & breath an effort. Had an infection and constant cough a it turns out CF lungs don't appreciate -40! justgiving.com/page/cfv7summiβ¦
π’ We're calling for book donations as our library has flooded! Our Library plays a vital part in reducing reoffending as it helps prisoners with education which in turn helps with employment upon release. Please email [email protected] for donations.
I support workers going on strike. They are not alone in this struggle, and I stand with them in their efforts to improve workplaces. pic.x.com/E2om1LxFiB #TogetherWeRise via UNISON - UK's largest union
Eli Parton gave Bill Plant Driving School 5 stars via Trustpilot trstp.lt/mfiZqP14p Thank you Eli for your lovely words, it was an absolute pleasure to teach you!
CF patients should not have to pay for drugs to stay alive. The Government must make all CF patients eligible for a medical exemption certificate. The exemption list was created in 1968, and CF was not included due to patients rarely living into adulthood petition.parliament.uk/petitions/6337β¦
cysticfibrosisnewstoday.com/news/cf-patienβ¦ Mind-blowing. "In a scenario where treatment with Kaftrio is initiated between 12&17 years old, a patientβs median estimated lifespan is 82.5 years. Thatβs 45.4 years longer than estimates for CF patients on best supportive care alone." #cysticfibrosis
cysticfibrosisnewstoday.com/news/cf-patien⦠Some awesome news here! This is what we were campaigning for. A life unlimited by #cysticfibrosis. Vertex Pharmaceuticals MUST make global access its priority. #CFcantwait.
Richard Madeley what are your thoughts on this? These drugs are life changing, life extending and therefore life saving. Will you be covering this on Good Morning Britain. The life line is being taken away from most of the UK CF community #Kaftrio #cysticfibrosis #fightingforalifeunlimited