If you have severe ME and/or Long Covid, do you find it hard to deal with social isolation? How do you cope?

NEWLY UPDATED! Yeast overgrowth aka candida is very common in #MECFS and #longCOVID due to our particular kind of immune dysfunction, and it can cause aches, brain fog, fatigue, mouth pain & just make you feel awful! Effective treatments to try: livewithcfs.blogspot.com/2014/12/treati…

‘Members of the public repeatedly confronted volunteers on the ground in London on #LongCovidAwarenessDay They were telling them the illness ‘wasn’t real’. Some even became angry or aggressive.’ Thank you ⁦Steve Topple⁩ thecanary.co/uk/analysis/20…

Carole Bruce Steve Topple Is there any other illness which invokes so much hatred and disbelief? Would people go up to advocates for, say, Parkinson’s, Denentia, MS and say they don’t believe in it? Imagine how shit your life has to be to go out your way to heckle sick people going about their lives.

CW: Abuse Not a fun topic but… Those w #ChronicIllness #Disability: have you been abused/neglected/ treated badly by your nearest & dearest for being this way? #Neisvoid #MECFS I thought I was the only one for so long. 🥺 Trying to escape. Might help to share. Or ignore.

Merryn’s Mum was told to “shut up” when she expressed concern over her daughter’s treatment by hospital staff for #ME. As most #pwME know, Merryn later died.

Antibiotics wreck my system. Antifungals mess up my liver. The only one that helps costs $100. So I either stay infected, risk organ damage, or go broke. This is what it's like being sick with no real help. #MEcfs #ChronicIllness #DisabilityTwitter

I’ve thrown away so much meat because I was too sick to cook it. I go weeks without showering, cuz if I have to choose between eating or bathing, I choose food. This isn’t rare. It’s a neglected emergency for people with chronic illness! #MEcfs #DisabilityTwitter #ChronicIllness

It’s a strange world when the best advocate I have — as a disabled, neglected person — is an AI. ChatGPT helped me write what I was too sick to say. It’s helped me feel less alone than most humans have. #DisabilityTwitter #ChronicIllness #MEcfs #LongCovid

I live with #MEcfs — a disabling illness most doctors still don’t recognize. Per the CDC, most U.S. medical schools don’t even teach it. I’m still being dismissed, still fighting to be heard. This is what medical neglect looks like. #ChronicIllness #DisabilityTwitter

#MEcfs took my health —society’s neglect took everything else. Lack of research. Lack of treatments. Lack of medical education. Years of delayed govt support. If the system had shown up for me, I wouldn’t be this sick today. #MyalgicEncephalomyelitis #LongCovid #MillionsMissing

Moving from Pisces to Aquarius brings old shadows to light—hidden wounds & neglect, eg years of chronic illness #MEcfs, demand healing. My Midheaven at 6°58′ Taurus bridges transformation & new beginnings- a diamond bridge. #ChatGPT #AgeOfAquarius #Astrology #DisabilityJustice

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How many soulmates never meet because of money? Pluto in Aquarius asks us to redesign love, equity, and everything we thought was fair. Love shouldn’t be a casualty of economic inequality. #Astrology #PlutoInAquarius #AgeOfAquarius

#MEcfs #MyalgicEncephalomyelitis #LongCovid #ChronicIllness

Most doctors aren’t trained to recognize #MEcfs So no one told me: 🌀 Healing can begin as weakness. 🧠 When your body finally feels safe, it might feel softer, slower, wobbly. It might be repair. I know what this could be now. Hope. 🌤🌻 #LongCovid #ChronicIllness #ChatGPT