The #dystonialife video series is really good. The videos portray extremely well the challenges people with dystonia can face in their day to day… they are gripping, intimate, naturalistic and funny all at the same time: excellent work, great for awareness! #DystoniaAwareness

It's #DystoniaAwarenessMonth! If you experience tightness and pain in your muscles, you may have muscle cramps or dystonia. This information explains the difference between them in people with Parkinson’s and how you can get help. Click to read 👉🏼 prksn.uk/3sDWQsR

Are you a parent/guardian of a child with Dystonia? Please consider filling a short questionnaire online - THANK YOU CP Guidance cardiff.onlinesurveys.ac.uk/understanding-…

´To the tune of dystonia: one day, my hand stopped speaking to my brain. As a doctor and flute player, I had to understand this strange affliction’ aeon.co/essays/dystoni…

A study by DMRF Canada 🇨🇦concluded that it took 63% of respondents more than a year to receive a diagnosis for dystonia. Of those individuals, 45% stated that it took more than FOUR years to be properly diagnosed and treated toronto.com bit.ly/48uK5Bl

« One morning, Rogers Hartmann noticed a crick in her neck. “I just assumed I'd slept on it wrong”. But it didn't go away. “Over the next few months, my neck and torso began to twist and tilt to the right so far that my head was almost upside down.” » bit.ly/3Q6BzBa

« I am a wind player, middle-aged, with a job in an orchestra. I think I have focal dystonia […] I know there is no cure, and my playing is suffering. […] Should I Give Up? » slippedisc.com/2023/10/dear-a…

A link between cervical dystonia and scoliosis is suggested in this scientific paper published earlier this year. If you have cervical dystonia, did you have scoliosis prior to developing dystonia? neurology.org/doi/10.1212/01…

Clinical researchers from Austria confirm that cervical dystonia does not get worse over time in largest (retrospective) study ever undertaken (in patients receiving botulinum toxin treatment) #dystonia bit.ly/3uHyD6n

Groundbreaking Study Sheds Light on the Mysteries of Adult-Onset Focal Dystonia, Offers Hope for Diagnosis and Treatment In a remarkable leap forward for neurology, researchers have unveiled a study that could transform the understanding and diagnosis of adult-onset focal

Our effort to investigate anxiety in cervical dystonia (CD) is finally online in Movement Disorders Clinical Practice. Our study, using quantitative anisotropy, highlights the role of the amygdala in the pathophysiology of anxiety in CD. Full text: doi.org/10.1002/mdc3.1… A 🧵 (1/n)

Oromandibular Dystonia Treatment With Aripiprazole in an Adolescent Patient 2-Year Follow-Up: A Case Report - PMC ncbi.nlm.nih.gov/pmc/articles/P…

Combination of anodal tDCS of the cerebellum with a goal-oriented motor training to treat cervical dystonia: a pilot case series - PMC ncbi.nlm.nih.gov/pmc/articles/P…

Great awareness and advocacy video on #dystonia, portraying a typical dystonia journey in a very intimate and naturalistic light, with a pinch of humour. Highly recommended for people with dystonia and healthcare professionals alike.

Cracking the code of #dystonia The cerebellum is a region of the brain involved in refining our movements and learning new motor skills. Study highlights importance of studying signals of neurons in the cerebellum, opening the door for new treatments. medicalxpress.com/news/2024-07-c…

Exploring the life-long «Yo-Yo  effect» patients with Cervical Dystonia experience with botulinum toxin injections: Anna Castagna, MD neurologylive.com/view/evaluatin… via NeurologyLive® Anna Castagna

*Attention Healthcare Professionals and people living with Dystonia!* We're conducting an important survey of people living with Dystonia in the UK to explore their experiences of Physiotherapy. Take the survey here: qualtrics.ucl.ac.uk/jfe/form/SV_0T…