Our DEBRA Ambassador, Lucy Beall Lott, gave a beautifully written speech at our Great Chefs Dinner on Monday night, sharing her life with Recessive Dystrophic EB and her hopes for a future without EB. 💜 Thank you for sharing your powerful words Lucy. #EB #EpidermolysisBullosa

You can check out our other exciting upcoming events, including a Sporting Legends Lunch with Graeme Souness in London, and Dinner with Wine Tasting, here on our website: bit.ly/3q6mkuz #GraemeSouness #WhatsOnLondon #LondonEvents #FootballEvent #FundraisingEvent

We're looking forward to the start of our DEBRA Golf Society season at Hankley Common on 6th April! We still have a few team spaces left at some of our other golf days, linked here: bit.ly/3ipBsPy Hankley Common Golf Club #GolfSociety #CharityGolf #GolfCourse #GolfDay

Our DEBRA Golfers are out on course at Hankley Common today, raising funds for DEBRA and to help #FightEB. Thank you to all at Hankley Common Golf Club for having us! #CharityGolf #GolfSociety #GolfCourse #GolfDay

We are at the beautiful St George’s Hill Golf Club today, raising the all important funds needed to help #FightEB. Thank you to St George's Hill Golf Club for having us! #CharityGolf #GolfSociety #GolfCourse #GolfDay

Congratulations to DEBRA Ambassador, Lucy Beall Lott, who is featured in the June/July edition of Cosmopolitan UK! We are so proud to see Lucy photographed in this feature, which will raise much needed awareness of #EB. Read more: bit.ly/3wkwYQH #EpidermolysisBullosa

“Memories are the most precious thing we have, something that feels even more significant since losing our son Oliver.” Please donate to help EB families make memories which will last a lifetime: bit.ly/39dM5DF #DEBRAMemoryMakers #EB #EpidermolysisBullosa

We had a beautiful sunny day at Surbiton Golf Club yesterday, raising important funds to help #FightEB. Well done to the golfers, we had some brilliant scores! #CharityGolf #GolfSociety #GolfCourse #GolfDay

We're now halfway through our golf season, with our next golf day being hosted at Swinley Forest! We do still have team spaces available at Royal Birkdale and Little Aston in September, please get in touch to find out more: bit.ly/3cT47wY #golfsociety #charitygolfday

We had a beautiful day at Swinley Forest yesterday. Thank you to everyone who helped raise money to #FightEB. We still have spaces at Royal Birkdale and Little Aston in September, more details found here: debra.org.uk/Pages/Events/C… #golfsociety #charitygolf #golfday

It's our final golf day this year at The Berkshire! The golfers are out on course and the sun has made an appearance☀️Thank you to our supporters for helping us to #FightEB! #charitygolf #golfday #golfsociety

"I want people to see that I'm so much more than my scars." 🦋 Congratulations to DEBRA Ambassador, Lucy Beall Lott, for her feature in People magazine! Read the full article: bit.ly/3Zcj2pS #EpidermolysisBullosa #EBResearch #RareDisease #RareDiseases #SkinCondition

Today we stand in solidarity with the rare disease community on #RareDiseaseDay. 💙 Living with a rare condition, like #EpidermolysisBullosa (EB), means you are more likely to face misdiagnosis, treatment inequality and isolation. Retweet this post to help us raise awareness.

We're looking forward to our first DEBRA golf day of the season on April 5th at Hankley Common Golf Club! ⛳️ A couple of spaces have become available so book your teams today! 🌐 bit.ly/3G4FPfg ✉️ [email protected] #GolfEvents #HankleyCommon #GolfUK #GolfLife #GolfCourse #Golf

Special #Golf day out today, at the stunning St George's Hill Golf Club 👀 Incredible in every single way⛳️ DEBRA Golf Society 👏🏻👌🏻

We still have availability for our charity #golf days at the following prestigious venues across the UK! ⛳️ BEARWOODLAKES- 10th July ⛳️ Little Aston GC- 6th Sept ⛳️ @Bucksgolfclub- 12th Sept ⛳️ Royal Birkdale Golf Club- 14th Sept To book: 🌐 bit.ly/3G4FPfg ✉️ [email protected]

Stunning day with #DEBRA Golf Society yesterday - a piece of #Golf heaven at #SwinleyForest 🌳 Photos do not do it justice. If you get chance to play there, don’t pass it up 👌🏻 DEBRA UK DEBRA Golf Society 🦋

Is there some golf happening this weekend??!! 😂 Possibly my last game of 2023 today but a good one to finish. A joy to play New Zealand GC today with DEBRA Golf Society. My 84th Top 100 Golf Courses GB&I course. Perfect weather & great to support DEBRA UK #16togo #top100golf #goeurope 🇪🇺

You are invited to bid in our silent auction - fabulous holidays & Taylor Swift tickets up for grabs! Money raised will go towards our A Life Free of Pain appeal to help #StopThePain. The auction will close on 12th October. Place your bids now 👉 bit.ly/48Dq4Zc

We'd like to pass on our best wishes to Steve Rider ahead of his operation this weekend. We're grateful for the support that Steve has shown for DEBRA and the EB community over the years, including regularly attending our DEBRA Golf Society days.