Hello social research agencies with experience in health/ data 👋 We’re going to do some research to understand primary health care professionals’ views and expectations around the use of patient data. Interested? Drop us an email at 📨[email protected]

Thank you! 😁👏🎉

Read our latest blog post, written by one of our focus group participants to provide their experience on engaging in the conversation on health data research. #datasharing #healthdataresearch #datasaveslives #blockchaintechnology #EPSRC #publicengagement cdip.lancs.ac.uk/index.php/2021…

"Patients have a right to have their data stored in a way that protects it from investigation by anyone without the patients’ permission" Read another one of our focus group participant's reflections here👇 bit.ly/3dDOh7K #datasaveslives #patientengagement #datasharing

Thanks to everyone who attended today’s virtual launch event for the Digital Technology Assessment Criteria. If you’re a developer or buyer of health and social care digital tech, find out about the DTAC on our website: nhsx.nhs.uk/key-tools-and-…

The language used to discuss patient data is often complex & confusing 😵 So we did some research to find the best words to explain patient data in a way that's accurate & accessible 💬 understandingpatientdata.org.uk/what-are-best-…

How can we ensure the public supports data sharing? Interesting discussion happening now on trust and transparency in healthcare by #KFOnline #datasaveslives #heathdataresearch

Agreeing on what the most important research questions are, when using health data, must involve the public at every stage. #KFOnline #trust #transparency #healthdataresearch

Communication is key and is context dependent, when engaging with the public on the use of health data for research #KFOnline #datasaveslives Health eResearch Connected Health Cities

"I am personally open to new technologies and sharing data if it benefits me and other patients, the NHS and scientists" Read our third blog post from our #publicengagement focus groups on control & access to #healthdata. #datasaveslives #BlockchainTechnology

Looking forward hearing about how to build a data cooperative shortly Open Data Manchester #datasaveslives

Multiple models that can harness the collective powers of data & address that power imbalance in the data economy. Super interesting Open Data Manchester #datastewardship #datacooperatives

Data Cooperatives seem to be the most realistic and feasible of all of the data stewardship models considered, particularly because of the social accountability required Open Data Manchester #datacooperatives #datastewardship

Consent for data sharing needs to be an ethical process rather than a legal one. Interesting insight on the Carbon Cooperative from Julianlstar 🌻 Open Data Manchester #datagovernance #datacooperative #datasaveslives

Further research and experimentation of financial & business models for #datacooperatives is critical. astha kapoor very insightful comments at Open Data Manchester #datasaveslives

Is the tradeoff between sharing their health data in exchange for potentially life-changing solutions worth it? With #blockchain, we have the potential to bridge this gap between #dataprivacy and #healthcare. pharmaledger.eu/news/pharmaled…