In honour of Celine Corsius, her family and friends. On 18 September 2023, Celine, a Dutch citizen, elected assisted suicide over life with myalgic encephalomyelitis (ME). The international ME community mourns the loss of yet another of its members. mecentraal.wordpress.com/2023/09/18/emp…

It’s the greatest medical scandal of the 21st Century. Intransigent doctors and gullible journalists have made the lives of ME/CFS patients a living hell. A massive and shocking story in this week’s column. theguardian.com/commentisfree/…

The BC and Canadian governments have failed disabled people. I AM MADELINE is skipping healthcare that helps alleviate her condition, due to not having enough money. It could kill her. Help: gofundme.com/f/MadelinesMir… canadaland.com/madeline-medic… (Oct. 2021) #bcpoli #cdnpoli #yvr

💜 #Fibromyalgia #MECFS #Spoonies #ChronicPain #MentalHealth #Disability #InvisibleIllness 💜

💜 #Fibromyalgia #MECFS #Spoonies #ChronicPain #MentalHealth #Disability #InvisibleIllness 💜 💯 #Exhausting

My body is so messed up and dysfunctional it feels like a never-ending, Breaking Bad-style crime scene. Only without the story, the glorified violence and, of course, the end. Instead, my living nightmare just goes on and on…. #MECFS #LongCovid #NotRecovered

What a cruel fate to be laden with an illness that doctors tell you they don't know enough about and to be patient for science to catch up, yet the government won't fund the science; we're too sick to function like healthy people, but not sick enough to die quite yet.

The impact of ME/CFS versus funding Illnesses listed on the bottom if you can't see it Sickle Cell Disease, Brain Cancer, Parkinson's, Multiple Sclerosis, HIV/AIDS, ME/CFS. From Jeffrey Tran's video (warning: a bit noisy) tiktok.com/@poisedleft/vi… #MEcfs #CFS #PwME

It's hard not to panic. But panic serves no purpose. I'd appreciate if you share gfm & media links. I know not everyone can afford to donate but spreading the word is huge. I make it to mid-oct for sure. I'm trying to figure out how to stretch things further. So Impossible #pwME

Pacing is not a treatment for Long Covid. It’s palliative care.

We will NEVER be taken seriously until we have biomarkers to separate M.E.- extremely serious neuro-immuno-metabolic disease that makes people commit suicide due to its severity and idiopathic fatigue people who get better with positive thinking/brain training/mind body/lifestyle

Doctor: There's nothing I can do. Doctor: That will be $2000.

As long as funding for #MECFS continues to be pissed away, the more young people will die. I’ll never comprehend the lack of concern. The complex treachery may not be pretty, but it sure AF doesn’t warrant neglect to the point of literally burying a disease. #LongCovid #pwME

Anthony Albanese We should be doing this. We should also be committing significant funding to research for ME/CFS. 250k in this country living with this disabling illness, 25% bed/housebound & $0 allocated for research or patient care. #pwME have lost livelihoods & many are living in poverty.

Anthony Albanese *250k pre-pandemic. A large cohort of people with Long Covid are developing ME/CFS. This illness has the lowest QOL measures & there is no specialist medical support, no targeted treatments & GPs have limited knowledge (& are mostly misinformed). This is an escalating crisis.

The cost of living with #MECFS A humbling reminder and apt description of the suffering #pwME deal with on a daily basis. The reality of an #invisibleillness

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For anyone still contemplating if #MECFS or LongCovid are “real,” you’re way too far behind and we can’t wait around for you to catch up.

Governor Wes Moore You need to DO something about the increasing problem of #LongCovid, affecting more & more people each year covid runs rampant. There are NO treatments, we are often bedbound & excluded from society, stigmatized & unable to access help. So many have become suicidal as a result.

The struggle with #MECFS isn’t just intolerable but unnecessary. This level of suffering doesn’t “build character” for anyone. It only leaves ourselves and our lives in ruins. I’ll never grasp this new reality. It’s so depressing. #LongCovid