In Nov 2017 I was told I had ALS and should prepare to die. By 2018 I had decided to fight with every single breath. This is the trailer for what happened next. I hope you like it, will share it with everyone and get ready to change the world. Good night moon.

If you are so inclined, please pray for all dealing with ALS right now.

It's with great sadness and broken hearts that we announce Sandy Morris our namesake and precious friend is no longer with us. We vow to continue the fight in her honor.

“AMX0035 experts & patients alike know that what we need is a toolkit of possible therapies. As an advisory committee you have the opportunity to bring humanity to the science of ALS drug development.”- Phil Green (Phil Green), person living with ALS, first #AMX0035 U.S. FDA AdCom

Our hearts are broken. Sandy Morris has passed. Sandy was not just part of I AM ALS – she was foundational to it. She either directly or indirectly impacted almost everything I AM ALS has done. We have no words to describe our grief and rage.

To know light is to know darkness. To know hope is to know despair. To know life is to know loss. If we are fortunate enough to wake tomorrow, carry with you those you have loved and lost for they made us who we are. Good night moon.

Life will end for all of us, so instead of fixating on that let’s fixate on really living each day we are lucky enough to be given, even the bad ones. Good night moon.

Person w #ALS in ICU post-surgery. No eye gaze. Won't allow family in. Not one RN, RT, MD on any shift understood that people w ALS experience pain. We must change standard of care to allow the caregiver in to communicate. Team Gleason @iamALS @NEALS Brian Wallach Lisa's Legacy for ALS

When diagnosed with #als they told me don’t lose weight. I started out at 142 lbs so I wasn’t concerned. Now 2 years later, I’m 97 lbs, taking everything by feeding tube and can’t get enough calories or gain weight. Hey #pALS what is the best formula for calories?

If you have a say in whether an #ALS therapy gets approved by U.S. FDA, you should be required to spend a day with someone living with ALS. Maybe that would be the persuasion you need!

I wish I could go back to my dreams, because I'm free. Free from this wheelchair, free from this feeding tube, free to be the wife and mother I'm supposed to be, free from #ALS. I'm 36 years old, I deserve better than death. Dr. Robert M. Califf FDA Biologics #AMX0035 #EveryPointMatters

My fight with ALS has come to an end. Please don’t be sad. Life is beautiful. Live hard. Love those around you and come together to #EndALS.

You can lose your smile to #ALS. We had our photo taken at my sister's birthday party. As I'm sitting there smiling, the photographer asked me to smile. Excuse me, this constipated look is my smile. He's lucky I can no longer stick out my tongue.😜 Dr. Robert M. Califf #NurOwn #AMX0035

I can't speak, sing, eat, or drink. I can't swim, hike, bike, or kayak. #ALS is a cruel, cruel thief. It takes away the active life we once enjoyed. It is painful. We MUST find treatments. And the cost should not require mortgaging the house. #ENDALS #MND #thisisALS

Delivered to our house (in Canada) today: a safe ALS drug that every patient should have the right to try. Amylyx U.S. FDA

2022 ALS Walk for Life: Austin Roubenoff - Les Turner ALS Foundation shar.es/afurEJ my son is flying to Chicago next weekend to walk with my family and friends for me, my late brother, my recently Dx sister and all pALS. My heart is full ❤️ End ALS Now Les Turner ALS Foundation

The whole team - Falk U ALS Thank you everyone 🙏🏻

Was so great to see your family today, Barri, at the Les Turner ALS Foundation #ALS Walk for Life! Lisa did a live TV interview for us. Thank you!!

The deadline for U.S. FDA to approve #AMX0035 is 2 days away. A decision must be made by September 29th. When we asked the #FDA to work on the #ALS clock, we didn't have a buzzer beater in mind. Nonetheless, the ALS community would salute approval just the same, Dr. Robert M. Califf. 🙏

Big day for pAlS!!! Thank you U.S. FDA. fda.gov/news-events/pr…