EU-PFF (@eu_ipff) 's Twitter Profile
EU-PFF

@eu_ipff

The European Pulmonary Fibrosis Federation (EU-PFF) is a European Federation of national #IPF & #PF/#Pulmonaryfibrosis patient associations.

ID: 743232897616855040

linkhttp://www.eu-pff.org calendar_today16-06-2016 00:05:06

3,3K Tweet

2,2K Followers

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EU-PFF (@eu_ipff) 's Twitter Profile Photo

๐Ÿšจ The ERS Congress 2024 will be held at RX Messe Wien in Vienna, Austria from 7โ€“11 Sept ๐Ÿ—“๏ธ This event will bring together the worldโ€™s respiratory experts to showcase all the latest advances in respiratory medicine & science. Registration is now open: ersnet.org/congress-and-eโ€ฆ

EU-PFF (@eu_ipff) 's Twitter Profile Photo

Today we would like to introduce Dr. George Margaritopoulos as part of our #MeetTheTeam series. George is the new member of the EU-PFF SAB. He is a Consultant in Respiratory Medicine with a special interest in Interstitial Lung Diseases. ๐–๐ž๐ฅ๐œ๐จ๐ฆ๐ž, ๐†๐ž๐จ๐ซ๐ ๐ž! #PF

Today we would like to introduce Dr. George Margaritopoulos as part of our #MeetTheTeam series. George is the new member of the EU-PFF SAB. He is a Consultant in Respiratory Medicine with a special interest in Interstitial Lung Diseases. ๐–๐ž๐ฅ๐œ๐จ๐ฆ๐ž, ๐†๐ž๐จ๐ซ๐ ๐ž! #PF
ERS (@eurorespsoc) 's Twitter Profile Photo

The #ERSCongress is the once-a-year occasion when the world's respiratory experts present and discuss the latest advances in respiratory medicine. Register for the early-bird discount: bit.ly/3Uc5cTE

The #ERSCongress is the once-a-year occasion when the world's respiratory experts present and discuss the latest advances in respiratory medicine.

Register for the early-bird discount: bit.ly/3Uc5cTE
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Today, we proudly introduce Prof Veronika Mรผller. She joins the EU-PFF Scientific Advisory Board (SAB). As a senior pulmonologist, medical oncologist and infectious disease specialist she brings immense expertise to our team! Welcome to the team, Veronika! #MeetTheTeam

Today, we proudly introduce Prof Veronika Mรผller. She joins the EU-PFF Scientific Advisory Board (SAB). As a senior pulmonologist, medical oncologist and infectious disease specialist she brings immense expertise to our team! Welcome to the team, Veronika! #MeetTheTeam
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Missed the 3rd European PF Patient Summit in April? Now you can rewatch all sessions! Access valuable insights from speakers and patients on the EU-PFF website.๐Ÿ”— Watch now: eu-pff.org/european-pf-paโ€ฆ #PFSUMMIT24

Missed the 3rd European PF Patient Summit in April? Now you can rewatch all sessions! Access valuable insights from speakers and patients on the EU-PFF website.๐Ÿ”— Watch now: eu-pff.org/european-pf-paโ€ฆ #PFSUMMIT24
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Imagine not having access to what allows you to live fully. This Pulmonary Fibrosis Awareness Month in Sep, we explore a vital aspect of life and the challenges of those with #PF. Stay tuned for key #BreathingLife info & resources! #OxygenAccess #PFMonth #CurePF

Imagine not having access to what allows you to live fully. This Pulmonary Fibrosis Awareness Month in Sep, we explore a vital aspect of life and the challenges of those with #PF. Stay tuned for key #BreathingLife info & resources! #OxygenAccess #PFMonth #CurePF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Your support throughout this Pulmonary Fibrosis Awareness Month in September will help highlight the crucial needs of #PulmonaryFibrosis patients. Let's inspire important conversations and action for improved #PF treatment. Stay tuned! #BreathingLife #OxygenAccess #CurePF

Your support throughout this Pulmonary Fibrosis Awareness Month in September will help highlight the crucial needs of #PulmonaryFibrosis patients. Let's inspire important conversations and action for improved #PF treatment. Stay tuned! #BreathingLife #OxygenAccess #CurePF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

๐Ÿ“… Pulmonary Fibrosis Awareness Month 2024 is almost here! Starting this Sunday, follow our channels for vital #BreathingLife updates. We are advocating for more #OxygenAccess for #PF patients. Hear why oxygen is essential ๐Ÿซ#CurePF

EU-PFF (@eu_ipff) 's Twitter Profile Photo

Pulmonary Fibrosis Awareness Month 2024 #BreathingLife is here. Every September, we're raising awareness about #PulmonaryFibrosis. This #PFMonth, we focus on the challenges & burden it places on patients & loved ones, advocating for #OxygenAccess. #OxygenAccess #CurePF

Pulmonary Fibrosis Awareness Month 2024 #BreathingLife is here. Every September, we're raising awareness about #PulmonaryFibrosis. This #PFMonth, we focus on the challenges & burden it places on patients & loved ones, advocating for #OxygenAccess. #OxygenAccess #CurePF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Our #BreathingLife campaign also aims to inspire meaningful conversations on #PulmonaryFibrosis, giving hope and demonstrating solidarity with and support for #PF patients, their loved ones, and their caregivers. #PFMonth #OxygenAccess #CurePF

Our #BreathingLife campaign also aims to inspire meaningful conversations on #PulmonaryFibrosis, giving hope and demonstrating solidarity with and support for #PF patients, their loved ones, and their caregivers. #PFMonth #OxygenAccess #CurePF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

The exact causes of #PulmonaryFibrosis are often unknown. However, there are recognised risk factors such as cigarette smoking, microbial agents & occupational exposures like pollution, gastro-oesophageal reflux disease and genetics. #PFMonth #BreathingLife #OxygenAccess #CurePF

The exact causes of #PulmonaryFibrosis are often unknown. However, there are recognised risk factors such as cigarette smoking, microbial agents & occupational exposures like pollution, gastro-oesophageal reflux disease and genetics. #PFMonth #BreathingLife #OxygenAccess #CurePF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

The #BreathingLife campaign this year is focused on access to oxygen therapy. Developed with the ELF, the Access to Oxygen survey was active over a 2-year period in which info has been gathered thx to the participation of #PF patients from Europe. #PFMonth #OxygenAccess #CurePF

The #BreathingLife campaign this year is focused on access to oxygen therapy. Developed with the ELF, the Access to Oxygen survey was active over a 2-year period in which info has been gathered thx to the participation of #PF patients from Europe. #PFMonth #OxygenAccess #CurePF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Veronika Mรผller, EU-PFF Scientific Advisory Board member (Germany), discusses the importance of oxygen therapy for those experiencing breathlessness due to reduced lung function. Join us in advocating for better access for PF patients #PFMonth #BreathingLife #OxygenAccess #CurePF

EU-PFF (@eu_ipff) 's Twitter Profile Photo

Liam Galvin, EU-PFF CEO, stresses the need for #HealthcareProfessionals to educate #PulmonaryFibrosis patients about oxygen therapy's benefits. Better awareness = better management. Let's ensure improved oxygen access & care for all. #BreathingLife #PFMonth #CurePF #OxygenAccess

EU-PFF (@eu_ipff) 's Twitter Profile Photo

To educate patients about #PulmonaryFibrosis & help them manage their disease in an informed manner, EU-PFF developed a "Living with PF" guide with the most important information on the disease & its management: buff.ly/3Xvp2Lz #PFMonth #BreathingLife #OxygenAccess

To educate patients about #PulmonaryFibrosis & help them manage their disease in an informed manner, EU-PFF developed a "Living with PF" guide with the most important information on the disease & its management: buff.ly/3Xvp2Lz #PFMonth #BreathingLife #OxygenAccess
EU-PFF (@eu_ipff) 's Twitter Profile Photo

We urge industry stakeholders and researchers to engage patients from the early stages of drug development. Patient involvement should also be a priority in clinical trial design. #CurePF #BreathingLife #OxygenAccess #PulmonaryFibrosis #PF #PFMonth

We urge industry stakeholders and researchers to engage patients from the early stages of drug development. Patient involvement should also be a priority in clinical trial design. #CurePF #BreathingLife #OxygenAccess #PulmonaryFibrosis #PF #PFMonth
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Traveling with #PF is challenging, especially with oxygen devices. Chantal Vandendungen, EU-PFF Secretary, says: "It is difficult to travel with oxygen devices and also the type of device, the weight, the noise of these devices."#PFMonth #OxygenAccess #BreathingLife #CurePF

EU-PFF (@eu_ipff) 's Twitter Profile Photo

From tomorrow 7 September until 11 September, the EU-PFF will be at the ERS Annual World Congress 2024 in Vienna. We look forward to meeting you! #ERSCongress2024 #BreathingLife #PFMonth #CurePF #PulmonaryFibrosis #PF

From tomorrow 7 September until 11 September, the EU-PFF will be at the ERS Annual World Congress 2024 in Vienna. We look forward to meeting you! #ERSCongress2024 #BreathingLife #PFMonth #CurePF #PulmonaryFibrosis #PF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

The 7 common types of #PF ๐Ÿ‘‡ - Idiopathic #Pulmonary Fibrosis - Non-Specific Interstitial Pneumonia - Chronic Hypersensitivity Pneumonitis - Rheumatoid Arthritis ILD - Scleroderma ILD - Fibrotic sarcoidosis - Unclassifiable ILD #PFMonth #BreathingLife #OxygenAccess #CurePF

The 7 common types of #PF ๐Ÿ‘‡
- Idiopathic #Pulmonary Fibrosis
- Non-Specific Interstitial Pneumonia
- Chronic Hypersensitivity Pneumonitis
- Rheumatoid Arthritis ILD
- Scleroderma ILD
- Fibrotic sarcoidosis
- Unclassifiable ILD
#PFMonth #BreathingLife #OxygenAccess #CurePF
EU-PFF (@eu_ipff) 's Twitter Profile Photo

Stefano Pavanello, EU-PFF Board Member, addresses the stigma of oxygen therapy: "Oxygen is very important, that's why we are fighting against the stigma of using oxygen." Let's break the stigma! #PFMonth #OxygenAccess #BreathingLife #CurePF