Have you read the Riley family's new blog post, 'The Reluctant King vs The Reluctant Teenager''? Read the full blog post here: lifeofrileys.org/2024/05/16/the… Support T's fundraising journey: bit.ly/3MvYSls

Congratulations to our very own superhero Meria Sukanen & trusty sidekick husband Kevin Burgess for completing the summer Superhero Tri challenge and raising an amazing £1000! Thank you Meria & Kevin, we salute you, Superheroes!

We're excited to invite you to our upcoming session: All About Ataxia PLUS Your Mental Health. Developed by Rareminds with input from the ataxia community, the session offers valuable insights into how living with ataxia can impact mental health. Thursday, 12 September (6-7pm).

Our Christmas cards range includes bespoke handmade cards by Gemma Sheen and printed designs perfect for the holiday season. 100% of your purchase supports Ataxia UK. Make your holiday greetings count! 🛍️ Shop Now: ataxia.org.uk/greeting-cards/

Ballot for the 2025 AJ Bell Great North Run to Open This Week The September Ballot has opened and it will run until Friday 13 September at 12pm, so hurry and sign up today! Find out more: bit.ly/3MAtZwe Contact us at [email protected]

Kingsley & his trusty sidekick mum Carly Davis smashed the Superhero Tri series this summer and raised an amazing £900 in the process! Thank you both for your amazing achievement! #AtaxiaUK

HOST YOUR VERY OWN PREMIERE OF UN(CONQUERED)! Here's our feature-length documentary film about Ben Spencer, a man who refused to let his diagnosis of ataxia define him. We invite you to raise ataxia awareness from the comfort of your seat. Sign up today: ataxia.org.uk/unconquered/#m…

'AJ Bell’s Great Run adventure continues… We have spaces left at the: •Great Scottish Run on 6 October •Great South Run in Portsmouth on 20 October! Free Entry: We cover your registration fee! For more information contact us now: [email protected]

Our Friend, Carol, started a brilliant blog post series on Gluten ataxia. Here is her first piece! "I am not a medical professional, but a person who had a diagnosis of ‘possibly ataxia’ desperate for answers & found out what I could about GA." Read more: bit.ly/3WBeXL4

There's still time to get involved! This International Ataxia Awareness Day, we are celebrating your stories of being involved in ataxia research! To have your story shared, email [email protected] with the subject line 'IAAD 2024' by Thursday 19th Sept.

Still time to enter the 2025 Great North Run Ballot! The September Ballot is now open and will run until Friday 13 September at 12pm, when applications will close. Find out more, and sign up: bit.ly/47ptPl4. Contact us at [email protected].

Join us from November 11 to December 15 for The Big Ataxia UK Cake Bake and help make a difference! 🏆 Win Exciting Prizes! Enter our mystery prize draw just by participating! 📅 Event Dates: Nov 11 - Dec 15 🔗 Sign Up & Details: ataxia.org.uk/big-ataxia-cak…

🎉 Congratulations Lucy & Codie! A huge shoutout to Lucy Byrne and her son Codie for crossing the finish line at the Inflatable 5K! Your determination & spirit are truly inspiring. Thank you for supporting Ataxia UK, raising awareness & funds with your incredible effort.

Our next All About Ataxia session will be held on Sunday 3rd November from 10:00am-14:00pm! Hear from clinicians, therapists and other experts on what ataxia is and meet others in the same situation as you. Register now: bit.ly/46PDsHw.

🌟 Take the Plunge for Ataxia UK! Join us on Saturday, 29th March 2025, and experience the thrill of skydiving while supporting a great cause. 🛩️ Event Details: •Date: Saturday, 29th March 2025 •Sign Up: ataxia.org.uk/sky-dive-actio… •Contact: [email protected]

They discussed his research project, ‘Towards a pharmacological model of Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS)', and the impact the researchers hope it will have on the ARSACS patient and research community. ataxia.org.uk/research-news/….

AJ Bell’s Great Run adventure continues… Join team Ataxia UK now and get the following: •Free Entry: We cover your registration fee! •Exclusive Gear: Receive a special Ataxia UK running vest. •Fund Vital Research. For more information contact [email protected]

A new paper has been published sharing the results of the second part of the 'Value of Treatment' project supported by The European Brain Council. Read more: bit.ly/4d77slw

👏 A huge round of applause for Karly Johnson, who organised a ‘Ladies in Red’ charity dinner to raise money for Ataxia UK. Her daughter, Brogan, was recently diagnosed with Friedreich’s ataxia. We wish Brogan and her family well. ❤️ They raise an amazing £655 on the night!

Caring for the Carer – How to Avoid Caregivers' Burnout This online talk with Q&A will be delivered by award-winning author, Sara Challice. Register for the Virtual Annual Conference: bit.ly/3B9uYRx For more info email [email protected].