Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profileg
Action for Pulmonary Fibrosis

@ActionPFcharity

💜UK charity supporting people affected by pulmonary fibrosis
🧬funding research towards a better future for people living with PF
🤝together we are stronger

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linkhttp://www.actionpf.org calendar_today08-02-2014 17:47:08

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🤝 Action for Pulmonary Fibrosis advocate for people living with PF and supporting them to improve their quality of life. They also support research into PF and conduct awareness campaigns for policymakers, healthcare practitioners and the wider public. Learn more: actionpf.org

🤝 @ActionPFcharity advocate for people living with PF and supporting them to improve their quality of life. They also support research into PF and conduct awareness campaigns for policymakers, healthcare practitioners and the wider public. Learn more: actionpf.org
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can affect how you sleep.

From keeping a regular sleep schedule to having a hot bath, there are lots of tips to help improve your sleep.

Find out more here:
actionpf.org/information-su…

health

#Pulmonaryfibrosis can affect how you sleep. From keeping a regular sleep schedule to having a hot bath, there are lots of tips to help improve your sleep. Find out more here: actionpf.org/information-su… #ild #lungdisease #respiratory #respiratoryhealth #lungs
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This we’re celebrating everyone who's involved in . Today we’re launching our Study Finder. Take a look at the exciting research happening in the UK & find out how you can help to stop fibrosis: actionpf.org/research/take-…

This #InternationalClinicalTrialsDay we’re celebrating everyone who's involved in #research. Today we’re launching our Study Finder. Take a look at the exciting research happening in the UK & find out how you can help to stop fibrosis: actionpf.org/research/take-… #pulmonaryfibrosis
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If you’re feeling breathless or anxious, there are breathing techniques to help you feel more in control and comfortable.

Find out more on our website:
actionpf.org/information-su…

If you’re feeling breathless or anxious, there are breathing techniques to help you feel more in control and comfortable. Find out more on our website: actionpf.org/information-su… #pulmonaryfibrosis #ild #PF #lungdiseaseawareness ‍
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EU-PFF(@EU_IPFF) 's Twitter Profile Photo

📢 The 6th session webinar on 'Pulmonary Fibrosis and Cough – Causes, Treatments, and Quality of Life' is now available as a recording. You can find the full-length webinar along with all previous sessions here ⏯️ eu-pff.org/eu-pff-summit-…

📢 The 6th session webinar on 'Pulmonary Fibrosis and Cough – Causes, Treatments, and Quality of Life' is now available as a recording. You can find the full-length webinar along with all previous sessions here ⏯️ eu-pff.org/eu-pff-summit-…
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Want to help shape the future of research?

Dr Kevin Bin Liu, our newly funded researcher, is looking into the genetic causes of . For his , he needs people affected by PF to join his Research Advisory Group.

Find out more here:
actionpf.org/research-info/…

Want to help shape the future of #PF research? Dr @KevinBinLiu1, our newly funded researcher, is looking into the genetic causes of #IPF. For his #research, he needs people affected by PF to join his Research Advisory Group. Find out more here: actionpf.org/research-info/…
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A PF diagnosis may bring up a lot of feelings. Whatever you're feeling is normal and ok. Symptoms can also raise a mix of emotions. But you are not alone.💜

When life feels overwhelming, make sure you get the help you need:
actionpf.org/information-su…

‍#MentalHealthAwarenessWeek

A PF diagnosis may bring up a lot of feelings. Whatever you're feeling is normal and ok. Symptoms can also raise a mix of emotions. But you are not alone.💜 When life feels overwhelming, make sure you get the help you need: actionpf.org/information-su… ‍#MentalHealthAwarenessWeek
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When you’re living with , going on holiday might need more planning and preparation.

🚌Read our travel guide to find the information you need, from travel insurance, travelling with oxygen, and a checklist of things to take with you:
actionpf.org/information-su…

When you’re living with #PF, going on holiday might need more planning and preparation. 🚌Read our travel guide to find the information you need, from travel insurance, travelling with oxygen, and a checklist of things to take with you: actionpf.org/information-su… #ILD #lungs
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Change urged as study finds inequality in care for chronic lung disease patients.
'This is unacceptable. Change is needed to ensure that everyone has timely access to diagnosis, treatment, and care' Bradley Price, APF Director of Policy & Public Affairs.
independent.co.uk/news/uk/change…

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We want to ensure that everyone with in the UK gets faster diagnosis, better access to treatment, & the support they deserve. We need people affected by PF to join our OneVoiceILD Lived Experience Panel, where you can help shape the future of PF care.

actionpf.org/get-involved/s…

We want to ensure that everyone with #PF in the UK gets faster diagnosis, better access to treatment, & the support they deserve. We need people affected by PF to join our OneVoiceILD Lived Experience Panel, where you can help shape the future of PF care. actionpf.org/get-involved/s…
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EU-PFF(@EU_IPFF) 's Twitter Profile Photo

🚨 Last call! Join us for our webinar 'Pulmonary Fibrosis and Cough - Causes, Treatments, and Quality of Life' TODAY at 7-8pm CET (6-7pm GMT)! Register and secure your spot now: us06web.zoom.us/webinar/regist…
Community

🚨 Last call! Join us for our webinar 'Pulmonary Fibrosis and Cough - Causes, Treatments, and Quality of Life' TODAY at 7-8pm CET (6-7pm GMT)! Register and secure your spot now: us06web.zoom.us/webinar/regist… #PF #webinar #PFCommunity
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George was diagnosed with in May 2020 and retired shortly after. His wife, Angie also retired. One thing they’d always wanted to do was go on city breaks.

✈️George shares his story with us on how he manages short city breaks with :
actionpf.org/personal-stori…

George was diagnosed with #pulmonaryfibrosis in May 2020 and retired shortly after. His wife, Angie also retired. One thing they’d always wanted to do was go on city breaks. ✈️George shares his story with us on how he manages short city breaks with #PF: actionpf.org/personal-stori…
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Evidence suggests different ethnicities have different experiences accessing healthcare. Join us for an informal discussion on 20 June at 3pm & have your say on how we best meet the needs of your community. Contact [email protected] to book a place.
actionpf.org/news/apf-is-he…

Evidence suggests different ethnicities have different experiences accessing healthcare. Join us for an informal discussion on 20 June at 3pm & have your say on how we best meet the needs of your community. Contact involvement@actionpf.org to book a place. actionpf.org/news/apf-is-he…
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'I hope that insights gained during my fellowship will help to identify new treatments.' Dr Liu, APF research fellow

Help us stop lives being lost to PF.

Donate to APF research today: bit.ly/3wuBIaB

'I hope that insights gained during my fellowship will help to identify new treatments.' Dr Liu, APF research fellow Help us stop lives being lost to PF. Donate to APF research today: bit.ly/3wuBIaB
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