That was an intense but incredible week! Happy to have been part of it ❤💜 #rarediseaseday2023 #Crohn #haemophilia #vwd

#RareDiseaseDay2023 Peace. Love. Cure. EURORDIS-Rare Diseases Europe echa rant EHC_Haemophilia

Today we mark #RareDiseaseDay2023! All over the world millions of people raise awareness to ensure access to diagnosis, treatment and care. We advocate for 300M people with rare diseases worldwide and 30M people across Europe. #30millionreasons #RareEU #rarediseaseday

Love is to wake up at 5:30am on Saturday to go with you to Charleroi for a patient information day on #crohnsdisease. Family members are the biggest support to all patients 💜 #IBD

We strive to deliver not only high-quality content but also an enagaging patient experience. Our EHCucate team includes edu experts who ensure that the info is presented in the most optimal way possible, taking into account the needs/ preferences of our end users=community.

Thank you for everything you've taught me. You took a lot but you keep giving in return. #mycrohnslife #worldibdday2023 #ibdawareness echa rant

I'm extremely excited about the possibility of contributing to raising awareness for all VWD patients in Europe! If you are joining the EHC_Haemophilia Leadership Conference, make sure to take a tattoo! #VWDunited #VWDtogethere #beVWDaware

Join our bruises campaign to make a change for all VWD patients in Europe. Drop me a message to know how you can be involved. #vwdunited #vwdtogethere #bevwdaware EHC_Haemophilia

Yesterday I asked someone to put our tattoo on. They approached a group of colleagues. Seeing our bruise tattoo, one of them asked with a worried voice:"What happened?" "How did that happen?" is the name of our campaign, and, as you see, we opted for it for a reason. #vwdunited

EHC Attends #IPPC2023 in Lisbon, Portugal, held on June 20-21. PDMPs play an essential role in the management of rare bleeding disorders, including #VWD and extremely rare conditions. EHC remains committed to advocating for the needs of the whole RBD community.

Daria Camilli Miguel .Crato It's always great to meet our colleagues from @NHF_Hemophilia! We are looking forward to welcoming you to the EHC Annual Conference in Zagreb in October, Nathan!!

Please help me to raise awareness and make a difference for all #vWD patients in Europe. linkedin.com/posts/daria-mi…

We've managed to get together great professionals to work on this project. I can't be thankful enough to the team for keeping delivering top-notch patient education to the EHC_Haemophilia community! Brenda Padilla FionaRobinsonPhD David M. da Silva, PhD matt evans

Forgot to take my medicine this morning. My body was immediately back to the times when I had no proper treatment for my condition. Well, no treatment, I mean. This made me think again about unequal access to #diagnostics and #treatment in different countries. #accessforall

We have a great team working on the content of this course, capitalising on the success of the F2F workshops that EHC_Haemophilia has had for more than a decade. Only registered users will have access to all materials and Q&A sessions. #EHCAcademy #healtheconomics

I can not disclose the details, but if you join this network, you will find immense community support, knowledge sharing, and more. Happy to be part of it as its support manager.

Smth extremely important to remember for those on #Emicizumab! Thanks to the #EHCucate content team for pushing for it in the #EHCucate app. FionaRobinsonPhD Brenda Padilla

I am so proud of what this small group of people has achieved to date. Let us bring more incredible changes into this world! #EHC #VWD

European Patients' Forum, Anca Toma at #HealthSummit by Friends of Europe: "Health is priceless but not valueless."

When IVLP connects your souls immediately, you get married 7 years later. IVLP 2016 "US-European Security Issues" 🤍🖤