Cynthia Adinig (@cynthiaadinig) 's Twitter Profile
Cynthia Adinig

@cynthiaadinig

Patient Advocate & Equity Policy Advisor Co-founder BIPOC Equity Agency #LongCovid #MECFS #MCAS #EDS #POTS

ID: 971237938595090432

linkhttp://www.BipocEquityAgency.com calendar_today07-03-2018 04:15:44

1,1K Tweet

1,1K Followers

708 Following

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

It's absurd that I have to resort to this when I need to focus on treatments for my severe MCS, but I'll be retaining legal counsel to put an end to the bullying & harassment. Including seeking damages for any losses. Keep my name out your mouth and tweets

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

Wasn't going to go to the hearing due to the hostile behavior of some who attended. But I'm glad I did because I met some new faces and connected with old friends. It was a great step forward to a future of bipartisan inclusive advocacy.

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

Just wrote a piece exploring CRISPR gene editing & AI tackling Long COVID and ME/CFS treatments. Including viral persistence & immune dysregulation. This is for the science nerds & researchers. I'm more than a policy powerhouse 🙌🏾bipocequityagency.com/post/gene-edit… #CRISPR #AI #research

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

*This is a great victory for every woman who stands up when she’s been knocked down, and a huge defeat for every bully who has tried to keep a woman down"- E Jean Carroll. Couldn't agree more ✍🏽 nbcnews.com/politics/donal…

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

Parents of longhaulers this comprehensive guide is for you! As we wait for quality care there's things you can do WITHOUT the healthcare system. The path to remission needs quick action! Every pediatrician should read this too. Share! #MedTwitter bipocequityagency.com/post/pediatric…

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

I will not be participating in any activities LC DC as they are working with LCAP, the group of people who continue to harass and bully me. Their behavior has stoked violent sentiments in patients & I fear my physical safety. You don't get to harm people then demand inclusion

Bipoc Equity Agency (@bipoc_equity) 's Twitter Profile Photo

Official Merch is here! Our advocacy and awareness merch does more than just look good. It supports Black women with disabilities. Tees, totes, hoodies & more. Each purchase supports our mission for equity. ✊🏾 bipocequityagency.com/shop #BlackOwned #BlackHistoryMonth

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

There's a type of " palatable" BIPOC woman that rise in advocacy. Especially with dark brown skin. We are not the monolith that was established before the pandemic. My easy going disposition is not to be weaponized against other POC with non Eurocentric communication styles.

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

If what I'm saying about organized attack campaigns isn't true, why all the deleted tweets & blocked accounts of people I've never spoken of or to? Fun fact: Low dose daily Prednisone gives me my photographic memory back😚There's a win for AI & research somewhere in here.

Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

For the past 2 months I housed a friend who was homeless from worsening long Covid. Having severe MCAS I knew that I'd likely react to something she ate or while making her home livable. A week ago anaphylaxis landed me in the ER. But she's now safe in her home. I'd do it again!

For the past 2 months I housed a friend who was homeless from worsening long Covid.  Having severe MCAS I knew that I'd likely react to something she ate or while making her home livable. A week ago anaphylaxis landed me in the ER. But she's now safe in her home. I'd do it again!
Cynthia Adinig (@cynthiaadinig) 's Twitter Profile Photo

I will forever have PTSD from inpatient care at Sibley from July 2020 from how they treated me from my long Covid symptoms. The ER is just the beginning. The repeat trauma people with chronic illness are forced to be exposed to in an effort to get care is horrific.