Applications for the FTD Clinical Research Learning Institute close this Friday, February 7th. Click the link in our bio to complete the application and become an FTD CRLI Research Ambassador!

On #RareDiseaseDay, we remember our founder, Richard Rainwater, whose rare neurodegenerative disease diagnosis inspired the creation of our Medical Research Program. Learn about our work to find cures for tauopathies. rainwatercharitablefoundation.org/our-founder-hi…

We had the absolute pleasure of hosting Linde Jacobs from Cure MAPT FTD for our Friday morning Neuroscience seminar. She gave a beautiful account of her family's fight against #FTD. Incredible patient advocate with such words of wisdom, " Advances in one avenue of FTD has the

Excited to listen in on this episode!

ICYMI: WJCT News First Coast Connect — Brains on Brink! 🧠 Hear @lindejlee’s powerful story, + explore The Ageless Brain w/ Dr. Dale Bredesen @cureMapftd & FTD Registry Heather Schatz Mayo Clinic Neuro Prof. Melissa E. Murray 📸🔬 American Academy of Neurology ASU Health Solutions Mayo Clinic Neuro Listen👇 news.wjct.org/show/whats-hea…

Had an amazing time joining Prof. Melissa E. Murray 📸🔬 for an interview about the science behind genetic form of FTD. Always amazing to learn further about the work being done in the research labs and how hard our futures are being fought for by individuals like Dr Melissa Murray and her team.

Thank you Joseph Sirven, MD for giving the time and space for this incredibly meaningful conversation and for your investment into telling the patient story!

Starting day 1 at #Tau2025 with the Alzheimer's Association, CurePSP and The Rainwater Charitable Foundation. Come see us at poster #37 to learn more about the work we are doing at Cure MAPT FTD!

The AFTD 2025 Education Conference is just days away! If you are attending in person, please be sure to visit our sponsors Prevail Therapeutics, Alector, AviadoBio, Passage Bio, Denali Therapeutics, Takeda, Vigil Neuroscience, as well as exhibitors The Bluefield Project to Cure

Very excited to attend and connect with everyone at the The AFTD Education Conference next week!

Was an absolute honor to share the stages with other warriors impacted by Tau. Our stories are stronger when they are shared together! Thank you Alzheimer's Association, CurePSP and The Rainwater Charitable Foundation for hearing the patients! #endftd #tau2025

This #PSPAwarenessMonth, we remember our founder Richard Rainwater, who was driven by his experience with #PSP to expand his philanthropic efforts to include research into primary tauopathies. Explore his story: bit.ly/42F57w8

We are so lucky to be apart of Richard’s legacy….He lives on in the work he continues to fund and will be instrumental in the cures that are found for Tauopathies. Thank you The Rainwater Charitable Foundation for continuing Richard’s work!

Thank you CurePSP for all that you do to support the families of those devastated by PSP and CBS. Your fight for answers to tauopathies will surely get us to the finish line!

The Tau Global 2025 Lived Experience Panel, featuring Paul, Beth & Linde (living with PSP, CBD & FTD family history), deeply moved 500+ researchers. “It touched my heart,” said Dr. Min, a CurePSP grantee. It was a powerful connection that we’ll keep fostering. ⭐

Many who have heard my story, are profoundly impacted by the letter I received from an inmate being the first to acknowledge my mom’s dementia, before any physician. After 7 years, I was finally able to give the “Angie” in the letter, the proper thanks. m.youtube.com/watch?v=cAExIi…

When a stranger recognized signs of dementia that doctors missed, Linde Jacobs’ family finally got answers. After losing her mom to genetic FTD, Linde turned her grief into advocacy, working to raise awareness, support research, and ensure others don’t face the same

Come visit Cure MAPT FTD at our posters today at #681 and #697 at #AAIC25 #AAIC2025 or at booth 1729 with the Alzheimer's Association

Come visit us today at poster #092 to learn more about Cure MAPT FTD families as well as our booth #1729 at #AAIC2025

What if a genetic mutation shaped your future—and inspired your advocacy? Cure MAPT FTD cofounder Linde Lee Jacobs shared her story on NPR’s What’s Health Got to Do with It? podcast while Dr. Joseph Sirven, MD explored genetics’ role in neurodegenerative disease. news.wjct.org/show/whats-hea…