For this #WarriorWednesday, let’s take a moment to celebrate the special activities that make our warriors smile 💫 From art to adventure, every hobby is a reminder of their strength and joy. Share with us: What’s one thing your warrior loves to do? 💜 #DSF #DravetCommunity

Toss Dravet Away raised $1,429.35! 💜👏 This new fundraiser, organized by Melissa Bowler in honor of her daughter Ryleigh, shows the incredible impact one idea can have. Thank you, Melissa! Have an idea for a community fundraiser? We’d love to hear from you!

If you’re thinking of donating for #GivingTuesday, we hope you think of us! Your generosity is fueling life-changing research and supporting Dravet families. 💜 Every donation you make before 12/31 will be matched up to $30K. Make 2x the impact today: bit.ly/3FMA5pX

On this #WarriorWednesday, we’re reflecting on the incredible strength within the Dravet community. From the warriors who are bravely facing challenges to the families and caregivers standing by their sides, we're in this together. 💜

THANK YOU to all of our Dash for Dravet participants. Together, you raised over $40,000! Our top fundraising team, Taylor’s Trotters, raised $4,472.97 👏 A big congratulations to the other top fundraisers: Team Lydia, Team G Train, Team Aarius and Eden’s Crew 💜

"Unity is strength… when there is teamwork and collaboration, wonderful things can be achieved." – Mattie Stepanek Each Dravet warrior’s journey is unique, and your experiences hold so much wisdom and inspiration for others in our community. 🦋 #DravetCommunity #DSF

Still checking off your holiday gift list? DSF merch is the perfect way to give back while gifting something special. Order by 12/15 to guarantee delivery by Christmas! Don’t wait—shop here bit.ly/40wwplv 💜 #DSF #CureDravet

Neurologists, RNs, genetic counselors, PCPs, ER doctors and other HCPs: Register for FREE Rare Epilepsies Focused ECHO in 2025 led by National Experts. The program offers six 60-minute sessions, launching January 22. Learn more and register at: bit.ly/RareEpilepsyEC…

The Dravet syndrome community shows us what it truly means to be a Warrior—meeting each challenge with courage and hope. This Warrior Wednesday, let’s recognize the strength that drives our shared mission for better outcomes and a brighter tomorrow. #WarriorWednesday

💜 Share the Love This Valentine’s Day! 💜 📸 Add your photo to our “I 💜 someone with Dravet syndrome” design, then share it on Valentine’s Day to inspire hope and spread awareness! Template: bit.ly/4gtyO6U Together, we can fill social media with hearts and hope!

💜 It’s Warrior Wednesday 💜 Whether you’re a parent, grandparent, sibling, or friend, your love and strength are the heart of this community. 🌟 What’s one thing your warrior has taught you about love, strength, or resilience? 💪💜👇 #WarriorWednesday #CureDravet

Happy Valentine’s Day! Show your love by sharing your “I 💜 someone with Dravet syndrome” template! Haven’t customized yours yet? It’s not too late! Click the link below to add your photo and help us fill the feed with love and awareness. Template link: bit.ly/4gtyO6U

Thank you for showing up for the Dravet syndrome community during our Give Up Your Cup fundraiser! Together, we’ve raised an incredible $13,925, and we’re so close to hitting our goal of $15,000. Let’s finish strong! Donate here: giveupyourcup.org 💜 #CureDravet

New DSF-funded study finds impaired cellular energy metabolism in kids with #DravetSyndrome — adding key insights to how we understand this disease. 🧬 Thank you to our donors who make research like this possible! 💜 #EpilepsyResearch #DSFImpact 📖 Read: bit.ly/42h9ZWH

💜 It’s Dravet Syndrome Awareness Day and DSF staff is proud to show up for our community. Share your photo, raise your voice, and help turn awareness into action. #CureDravet

Twelve years strong and still going above and beyond! 💜 A huge thank you to Heather Johnson for hosting A Cake 4 a Cure again this year—and for doubling what she raised last year! Your dedication means the world to the Dravet community.

Landon turned lemons into something powerful! 🍋 On June 22 in Selinsgrove, PA, his lemonade stand raised $3,016 for DSF. Thank you to Landon and everyone who came out to support families affected by Dravet syndrome!

Thank you, Healthcare Karger, for creating this helpful resource and shining a light on our community! 💜 #CureDravet

Thank you, Mia and Hannah!

Over 180 clinicians, researchers & partners joined us for our 16th Annual Research Roundtable. We also announced DSF’s 2025 Grant Awards — 8 projects totaling $1.725M to advance science, strengthen clinical tools & support researchers. Learn more: dravetfoundation.org/announcing-dsf…