🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

National Organization for Rare Disorders, Inc. (NORD) wants to hear from rare disease community members! They're interested in learning about your successes & all the ways you make the world a better place for the rare community. Send your “win” to [email protected].

EXTENDED! 🚨📢 The deadline for affected individuals, caregivers, & families who plan to attend 2025 SciFam & need financial assistance can apply for a scholarship until May 15. Limited number of scholarships remain, awarded first-come-first-serve basis. form.jotform.com/curecmd1/2025-…

Our Recreational Sports Opportunities Webinar recording is live, watch now! 🏅 youtu.be/x-ky9PfSkto?fe…

Community member, Steve Way explains the importance of Medicaid programs for those living with disabilities courtesy of Easterseals. easterseals.com/about-us/commu…

Community member Ashley Burkman pens new children's book 📙 featuring CMD community members! curecmd.org/post/community…

Tune into Muscular Dystrophy Association’s upcoming webinar on May 19th as Featured Presenter & CMD Community Member, Briana Mills discusses the benefits of mental wellness & self-care. Register here: mda.org/care/community…

To all the CMD moms out there, we're wishing you a lovely Mother's Day Weekend! 🧡💙 curecmd.org/post/cmd-moms-…

Are you or your child between 10 & 18 years old? Want to speak up for kids with rare diseases & meet others like you? Registration is open until May 23 for @rareadvocates’ Virtual Youth & Teen Advocacy Day! everylifefoundation.org/rare-advocates…

📌 LAST CHANCE! 📌 If you are experiencing financial hardship & in need of a scholarship to attend our August conference in Philly, apply now till May 15th for a 2025 Scientific & Family Conference scholarship. form.jotform.com/curecmd1/2025-…

Join Courageous Parents Network's latest webinar on Navigating the Stages of Financial Planning on May 15th at 8PM ET. courageousparentsnetwork.org/events/buildin…

We're celebrating Global Accessibility Awareness Day (#GAAD) by watching our Accessible World Webinar, here's to a more accessible future! ♿ 🌎 youtu.be/bmx2VFz6b_c

Medicaid is a lifeline for millions – protect the neuromuscular community! Join the fight to preserve Medicaid! We cannot let Congress make cuts to Medicaid, impose expensive and burdensome work requirements, or limit eligibility in any legislation. votervoice.net/MDA/Campaigns/…

Keeping with recent Global Accessibility Awareness Day (#GAAD) festivities, we’re thrilled to announce that Community Member & Executive Producer, Steve Way’s award-winning film, Good Bad Things, is now streaming on @Hulu! Stream this groundbreaking movie: hulu.com/movie/good-bad…

Have you watched our Recreational Sports Opportunities Webinar recording yet, watch now! 🏅 youtu.be/x-ky9PfSkto?fe…

Have you grabbed your copy of, "Move" 📙!? It's a children's book by community member, Ashley Burkman & features characters living with CMD. a.co/d/18tG1vO

Congrats to community member, Nylan Parthipan who will be voicing Zuma once again in the upcoming PAW Patrol: The Dino Movie! 🐾🚨 variety.com/2025/film/news…

As a result of our community’s advocacy, the 17 states in federal court supporting the Texas v. Kennedy lawsuit have backed off their claim that Section 504 of the Rehabilitation Act statute is unconstitutional. Continue advocating for your state: dredf.org/protect-504/

Our Scientific Director, Gustavo Dziewczapolski shares his Conference Highlights so far for 2025. curecmd.org/post/q1-2025-s…