Shannon (@cure4myjulia) 's Twitter Profile
Shannon

@cure4myjulia

MOMster who will “Give Everything But Up” donated my kidney to a stranger 2021. MOM to twins, 1 had kidney transplant 2019 due to #FGSG @nephcure

ID: 771429176490463237

linkhttps://kidneysolutions.org/ calendar_today01-09-2016 19:27:03

918 Tweet

102 Followers

108 Following

Shannon (@cure4myjulia) 's Twitter Profile Photo

#GivingTuesday2024 PLEASE support NephCure they help us with #RKD like Julia’s #FSGS There is NO known cause or NO CURE yet. Without research we can’t find a cure or better tx options #donate #GivingTuesday

#GivingTuesday2024 PLEASE support <a href="/nephcure/">NephCure</a> they help us with #RKD like Julia’s #FSGS
There is NO known cause or NO CURE yet. Without research we can’t find a cure or better tx options #donate #GivingTuesday
Shannon (@cure4myjulia) 's Twitter Profile Photo

Incredibly grateful for the rFSGS Initiative giving me the opportunity to speak on the panel about recurring #FSGS a club that we never asked to join. Appreciate everyone who came to DC. Lots of hugs, emotions, & tears. This is exactly what I needed. #motivated

Shannon (@cure4myjulia) 's Twitter Profile Photo

Their support for our fight for a cure is everything. Much appreciation for Rep. John Moolenaar Anybody But Haley & Sen. Debbie Stabenow as a family that has been brutally affected by recurring #FSGS Post transplant & currently we really need this. #AllHandsOnDeck #FundTheCure rFSGS Initiative

Shannon (@cure4myjulia) 's Twitter Profile Photo

The BEST GIFT… The Gift of Life #organdonationsaveslives #FSGS #livingdonor #kidneydonor #giftoflife #bestgift #organdonation register to be an organ donor LiveOnNY SAVE LIVES NOW BY BEING A LIVING DONOR KidneySolutions•A Network of Transplant Experience

The BEST GIFT… The Gift of Life
#organdonationsaveslives
#FSGS #livingdonor #kidneydonor #giftoflife #bestgift #organdonation register to be an organ donor <a href="/LiveOnNewYork/">LiveOnNY</a> 
SAVE LIVES NOW BY BEING A LIVING DONOR  <a href="/k_solutions_org/">KidneySolutions•A Network of Transplant Experience</a>
Shannon (@cure4myjulia) 's Twitter Profile Photo

You have a pair so why not share your spare? As a living kidney donor, I can tell you for a fact that organ donation action saves. Comment below or message KidneySolutions•A Network of Transplant Experience to save lives. There are over 90,000 waiting to get their life back #livingdonor #HappyNewYear2025

You have a pair so why not share your spare? As a living kidney donor, I can tell you for a fact  that organ donation action saves. Comment below or message <a href="/k_solutions_org/">KidneySolutions•A Network of Transplant Experience</a> to save lives. There are over 90,000 waiting to get their life back #livingdonor #HappyNewYear2025
Shannon (@cure4myjulia) 's Twitter Profile Photo

Stan is a hero who saved many lives & protected our country. He now needs his own hero to save his life by being a living kidney donor. Please #ShareYourSpare for Stan. Contact us at KidneySolutions•A Network of Transplant Experience #kidneydonorneeded #ShareThisPost

Shannon (@cure4myjulia) 's Twitter Profile Photo

Young Staten Islander desperately needs a kidney donation: Can you ‘spare your spare’? silive.com/news/2025/01/y… YOU HAVE A PAIR, SHARE YOUR SPARE for Rocco. He has the same #RKD as Julia #FSGS #ShareThisPost 🙏 #GiftOfLife #LivingDonorNeeded

NFL (@nfl) 's Twitter Profile Photo

Young Philadelphia Eagles fan Jayden was born with chronic kidney disease. His mother, Tiffany, tested and reported to be a match for a kidney donation. In June, Jayden underwent kidney transplant surgery. Inspired by their story, Commissioner Goodell surprised them pregame with a trip to

KidneySolutions•A Network of Transplant Experience (@k_solutions_org) 's Twitter Profile Photo

My name is Isaiah Gadberry and I was born a premature twin with kidney failure. I’ve been on dialysis for 10 years now. Being on dialysis is not a normal life. I’ve worked hard to become who I am and get my health where it is. A living donor would change my whole life.

My name is Isaiah Gadberry and I was born a premature twin with kidney failure. I’ve been on dialysis for 10 years now.
Being on dialysis is not a normal life.  I’ve worked hard to become who I am and get my
health where it is. A living donor would change my whole life.
Shannon (@cure4myjulia) 's Twitter Profile Photo

Happy Donorversary to my hubby 3 yrs ago today he donated his kidney to a stranger. He doesn’t know who the person is but just knowing he gave someone their life back is incredible. We now have 2 future vouchers for Julia’s next 2 transplants #fsgs #livingdonor #shareyourspare

Happy Donorversary to my hubby 3 yrs ago today he donated his kidney to a stranger. He doesn’t know who the person is but just knowing he gave someone their life back is incredible. We now have 2 future vouchers for Julia’s next 2 transplants #fsgs #livingdonor #shareyourspare
Shannon (@cure4myjulia) 's Twitter Profile Photo

Appreciate Dr.Sampson Matt Sampson for speaking NephCure pt summit. It was an honor to into such a passionate, dedicated, inspirational Nephrologist who works tirelessly for all of us in the Nephrotic Syndrome world. You & your researchers Sampson Lab for Kidney Genomics give us HOPE #FSGS

Appreciate Dr.Sampson <a href="/kidneyomicsamps/">Matt Sampson</a> for speaking <a href="/nephcure/">NephCure</a> pt summit. It was an honor to into such a passionate, dedicated, inspirational Nephrologist who works tirelessly for all of us in the Nephrotic Syndrome world. You &amp; your researchers <a href="/TheSampsonLab/">Sampson Lab for Kidney Genomics</a> give us HOPE #FSGS
Shannon (@cure4myjulia) 's Twitter Profile Photo

EXCITING NEWS!! Book release 4/24 guess who is now a published author 😉lots of late nights & tears. #becauseoforgandonation #organdonationsaveslives #fsgs

EXCITING NEWS!! Book release 4/24 guess who is now a published author 😉lots of late nights &amp; tears. #becauseoforgandonation #organdonationsaveslives #fsgs
Shannon (@cure4myjulia) 's Twitter Profile Photo

My hope is that 1 person will be inspired by reading the book I co authored to be an #organdonor #LivingDonor #OrganDonationSavesLives #FSGS If ordered directly through me, all proceeds to NephCure KidneySolutions•A Network of Transplant Experience comment below & I’ll send my Venmo info (USA ONLY)

My hope is that 1 person will be inspired by reading the book I co authored to be an #organdonor #LivingDonor #OrganDonationSavesLives #FSGS 
If ordered directly through me, all proceeds to <a href="/nephcure/">NephCure</a> <a href="/k_solutions_org/">KidneySolutions•A Network of Transplant Experience</a> comment below &amp; I’ll send my Venmo info (USA ONLY)
Shannon (@cure4myjulia) 's Twitter Profile Photo

Proud to be 1 of the 20 chapter authors in this heartfelt book.If I could inspire others to become organ donors than all the late nights & tears writing were worth it. #ShareYourSpare #FSGS #OrganDonationSavesLives Because of Organ Donation a.co/d/hqqcnFQ #Amazon