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One of the few real-life superpowers: not being afraid to look dumb. When you’ve internalized that others’ opinions aren’t verdicts on your worth (even if meant as such)-just data to potentially improve your model-you’re free.

How many people do we have to lose before we grapple with and accept the fact that ME/CFS kills people every day? All the doublespeak around this helps no one. We need to change how we talk about this illness, to honour all those who’ve suffered and died. RIP, Evette. 💔

It's multifaceted, but the core issue is that people with ME/CFS—especially at higher levels of severity—are unable to advocate for themselves. Most people ultimately look out for their own interests. This, combined with stigma, the immense costs that proper care would entail,

From a game theoretical perspective, (the relative lack of) ME/CFS advocacy resembles the Volunteer's Dilemma: everyone benefits if someone speaks out, but the cost (PEM, worsening) can be too high, so everyone waits for the other to do it. Relatively few will act, and neglect

It takes a team! 💪 Here’s (almost) the full crew behind SPARK ME Workshop 2025 — working behind the scenes to make it all happen. Grateful for everyone who helped bring this event to life, on-site and beyond!

I think the etiology of ME/CFS probably involves a combination of factors—where e.g. prior toxic chemical exposure (actual or due to genetic/epigenetic vulnerability to 'normal or expected' chemical exposures) primes the system for subsequent infectious triggers and so on.

Few things are more frustrating than reading some 1980s biologist or 1990s biotech investor confidently predict that by 2010 we’d have custom-grown organs, gene and stem cell therapy for everything, and a cure for cancer. Bro, we barely have working EHRs. We still run on fax.

I don’t think people understand how much PEOPLE in your life are gonna make it or break it for you. Who you have access to, or don’t, what they are willing or not willing to do for you, is everything.

CTE was first described as “punch-drunk syndrome” in 1928, then largely ignored for over 70 years. It took one courageous pathologist, Bennet Omalu, to change that. Using immunohistochemistry, he saw what others had missed: a brain altered by repeated impact trauma.

I want a treatment plan. I need a carer who knows about very severe me / extremely severe ME. I will not survive the summer. I deserve a life My body cannot do this anymore. Help.

Podcast 2040: diesmal ein faszinierendes Gespräch mit Österreichs bekanntestem Krebsspezialist, Christoph Zielinski - über sein Leben, die faszinierenden Fortschritte der Krebstherapie und seine Einschätzung der Zukunft von Krebs. Auf podcast2040.com & wo es Podcasts gibt

Can’t disagree

If oxygen can’t enter tissue in ME/CFS due to impaired extraction or damaged, sparse capillaries, maybe waste, signals, and biomarkers can’t exit either? Could poor microcirculation 'trap' pathology in tissue, leaving blood tests falsely “normal”?