CSF Leak Association (@csfleakuk) 's Twitter Profile
CSF Leak Association

@csfleakuk

The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.

ID: 720375168405602305

linkhttp://www.csfleak.uk calendar_today13-04-2016 22:16:38

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American Society of Pediatric Neuroradiology (@the_aspnr) 's Twitter Profile Photo

Case of the week: 18-month-old with multiple episodes of otitis media, continuous drainage of clear fluid observed during myringotomy tube placement, concerning for CSF leak Thank you, Mark Halverson, MD, of Children’s Hospital of Philadelphia, for sharing this case!

Case of the week: 18-month-old with multiple episodes of otitis media, continuous drainage of clear fluid observed during myringotomy tube placement, concerning for CSF leak
Thank you, Mark Halverson, MD, of Children’s Hospital of Philadelphia, for sharing this case!
The Neurological Alliance (@neuroalliance) 's Twitter Profile Photo

We're stronger together. 100+ orgs backed by thousands of people working to ensure every person affected by a neurological condition can access the right care at the right time. Thank you for being a strong voice for change. Learn more bit.ly/3oBTlhy #BackThe1in6

We're stronger together. 100+ orgs backed by thousands of people working to ensure every person affected by a neurological condition can access the right care at the right time. Thank you for being a strong voice for change. Learn more bit.ly/3oBTlhy  #BackThe1in6
Keren Leah (@kerenleah) 's Twitter Profile Photo

▶️ VIDEO - Introduction to Digital Subtraction Myelography for CSF-Venous Fistula Detection 🚨 'CVFs are occult on conventional MRI and CT, necessitating the use of myelography for the diagnosis.' ✒️ Ian Mark et al. AJNR #spinalCSFleak #NeuroRad ajnr.org/content/46/1/2…

CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

💜 This #InternationalWomensDay, we celebrate our incredible female leakers, trustees, volunteers and supporters! Your strength, resilience and dedication inspire us daily and drive our mission forward. Thank you! #CSFLeakAssociation #IWD2025 #WomenInHealth

💜 This #InternationalWomensDay, we celebrate our incredible female leakers, trustees, volunteers and supporters! Your strength, resilience and dedication inspire us daily and drive our mission forward. Thank you! #CSFLeakAssociation #IWD2025 #WomenInHealth
CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🚨 We're excited to announce our fifth speaker, Mr Parag Sayal, clinical lead for spinal neurosurgery at NHNN London. Join to learn about surgery options for managing CSF leaks. Register 👉🏻 tinyurl.com/bdhjtatv #CSFLeakAssociation #CSFleak

🚨 We're excited to announce our fifth speaker, Mr Parag Sayal, clinical lead for spinal neurosurgery at NHNN London. Join to learn about surgery options for managing CSF leaks. Register 👉🏻 tinyurl.com/bdhjtatv
#CSFLeakAssociation #CSFleak
CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🚨 ONE WEEK TO GO! Join us on 12th April at 2 PM as Mr Parag Sayal shares expertise on surgical options for managing CSF leaks. Still time to register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFleak

🚨 ONE WEEK TO GO! Join us on 12th April at 2 PM as Mr Parag Sayal shares expertise on surgical options for managing CSF leaks. Still time to register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFleak
Andrew L Callen MD (@andrewcallenmd) 's Twitter Profile Photo

New #CSFLeak paper: "Histopathological Analysis of Five Patients with CSF-Venous Fistulas After Surgical Nerve Root Ligation and Resection" Congrats to CU School of Medicine medical student Andrew Mecum for doing an outstanding job leading this project! ajnr.org/content/early/…

CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🚨 We're excited to announce our sixth speaker, Dr. Katharina Wolf, clinical scientist from Germany. Join to learn about symptom management in SIH and prognosis for patients with CSF leaks. Register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFleak

🚨 We're excited to announce our sixth speaker, Dr. Katharina Wolf, clinical scientist from Germany. Join to learn about symptom management in SIH and prognosis for patients with CSF leaks. Register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFleak
CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🚨 ONE WEEK TO GO! Join us on 10th May at 3 PM as Dr. Katharina Wolf shares expertise on symptom management in SIH and prognosis for CSF leak patients. Still time to register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFleak

🚨 ONE WEEK TO GO! Join us on 10th May at 3 PM as Dr. Katharina Wolf shares expertise on symptom management in SIH and prognosis for CSF leak patients. Still time to register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFleak
CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFleaks

🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFleaks
Mark Mamlouk (@markmamloukmd) 's Twitter Profile Photo

Excited to share our new research paper showing how decub CTM can identify the dural tear in extradural arachnoid cysts to aid in surgical repair. We also highlight several similarities with lateral CSF leaks & hint of a possible spectrum. Niklas Lützen ajnr.org/content/early/…

Excited to share our new research paper showing how decub CTM can identify the dural tear in extradural arachnoid cysts to aid in surgical repair. We also highlight several similarities with lateral CSF leaks &amp; hint of a possible spectrum. <a href="/Niklas_Luetzen/">Niklas Lützen</a> 
ajnr.org/content/early/…
CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🚨 ONE WEEK TO GO! Join us on 7th June at 3 PM as Dr. Ayman Qureshi shares expertise on blood patching techniques for spinal CSF leaks. Still time to register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFLeak #StandUpForCSFLeakers #Webinars #SIH

🚨 ONE WEEK TO GO! Join us on 7th June at 3 PM as Dr. Ayman Qureshi shares expertise on blood patching techniques for spinal CSF leaks. Still time to register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFLeak #StandUpForCSFLeakers #Webinars #SIH
St Eds Cathedral (@stedscath) 's Twitter Profile Photo

From 1 June, the Cathedral tower will be lit blue all week for CSF Leak Association - a charity working to raise awareness of cerebrospinal fluid (CSF) leaks. More here: csfleak.uk #leakweek2025 #leakweek #csfleak #csfleakassociation

From 1 June, the Cathedral tower will be lit blue all week for <a href="/csfleakuk/">CSF Leak Association</a> - a charity working to raise awareness of cerebrospinal fluid (CSF) leaks. More here: csfleak.uk

#leakweek2025 #leakweek #csfleak #csfleakassociation
Brighton Palace Pier (@btnpalacepier) 's Twitter Profile Photo

We are lighting up blue! Clare Sargeant from CSF Leak Association explains the importance of finding out about this little-known condition csfleak.uk ⁦CSF Leak Association

We are lighting up blue! Clare Sargeant from CSF Leak Association explains the importance of finding out about this little-known condition csfleak.uk ⁦<a href="/csfleakuk/">CSF Leak Association</a>⁩
Keren Leah (@kerenleah) 's Twitter Profile Photo

Free 🔓 article - Clinical Features & Diagnosis of Spontaneous Intracranial Hypotension The top article in this list and absolutely worth a read ⬇️ journals.lww.com/continuum/page… 💧#spinalCSFleak #leakweak #CSFleak #SIH #NeuroX #CSFDisorders

National Library of Ireland (@nlireland) 's Twitter Profile Photo

💙 We're lighting the National Library of Ireland in blue to raise awareness for #CSFLeakAwarenessWeek, an annual event held from June 1st-7th, 2025. This week aims to help people understand the condition, recognise symptoms, and access timely diagnosis and treatment. Office of Public Works #LeakWeek2025

💙 We're lighting the <a href="/NLIreland/">National Library of Ireland</a> in blue to raise awareness for #CSFLeakAwarenessWeek, an annual event held from June 1st-7th, 2025. 

This week aims to help people understand the condition, recognise symptoms, and access timely diagnosis and treatment. <a href="/opwireland/">Office of Public Works</a> #LeakWeek2025
CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🩺 Watch Bern, our Trustee, explain why a patient registry is crucial for CSF leak patients. 💝 Donate today: ow.ly/SUNs50W6gsC #CSFLeaks #PatientRegistry #MedicalResearch #RareDisease #CSFLeaksAssociation

CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

🔬 Research scientist Bela shares why patient registries are game-changers for CSF leak research. 💝 Support our research efforts with a donation: ow.ly/AJEF50W6h2h #CSFLeaks #MedicalResearch #PatientRegistry #ResearchMatters #RareDisease #ScienceForGood

CSF Leak Association (@csfleakuk) 's Twitter Profile Photo

📺 AVAILABLE NOW! We're delighted to announce that webinars 5 and 6 in our CSF leak series are now available to watch on demand on our website or YouTube channel. 👉🏻 csfleak.uk/webinars #CSFLeakAssociation #standupforcsfleakers #csfleaks #webinars #SIH

📺 AVAILABLE NOW! We're delighted to announce that webinars 5 and 6 in our CSF leak series are now available to watch on demand on our website or YouTube channel. 👉🏻 csfleak.uk/webinars
 
#CSFLeakAssociation
#standupforcsfleakers
#csfleaks
#webinars
#SIH