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Excited to share our new research paper showing how decub CTM can identify the dural tear in extradural arachnoid cysts to aid in surgical repair. We also highlight several similarities with lateral CSF leaks & hint of a possible spectrum. Niklas Lützen ajnr.org/content/early/…

Symptom Management in #SIH with Dr. #KatharinaWolf (#UniklinikFreiburg) #SpontanesLiquorleck #SpontaneIntrakranielleHypotonie youtu.be/wdU94wPHFWI?si…

Virtual attendance for FREE 3-day Superficial Siderosis Research Alliance (SSRA) Symposium dedicated to patients, caregivers, clinicians, and researchers. Focused on advancing care, treatment, and research for superficial siderosis.

We are lighting up blue! Clare Sargeant from CSF Leak Association explains the importance of finding out about this little-known condition csfleak.uk ⁦CSF Leak Association⁩

Excellent, up-to-date review article: "Clinical Features and Diagnosis of Spontaneous Intracranial Hypotension”.

💙 We're lighting the National Library of Ireland in blue to raise awareness for #CSFLeakAwarenessWeek, an annual event held from June 1st-7th, 2025. This week aims to help people understand the condition, recognise symptoms, and access timely diagnosis and treatment. Office of Public Works #LeakWeek2025

This #leakweek, landmarks in the US are lighting up purple for spinal CSF leak awareness! Most of our landmark light ups are shining purple this evening in honor of patients living with spinal CSF leak, with a few later this week. Full list here: spinalcsfleak.org/leakweek/leakw…

💜 Day 4 of #SpinalCSFLeakAwarenessWeek2025 – Go Purple Day! 💜 Today, June 4, 2025, these 🇨🇦 landmarks will shine purple in support of Spinal CSF Leak Awareness Week. 📍 For the full illumination schedule and how to view the landmarks, please visit: spinalcsfleakcanada.ca/2025-awareness…

It’s Leak Week, an awareness week for spinal CSF leaks. Today I wear purple for all those who suffer from this horrible condition. Spinal CSF Leak Foundation WouterSchievink Andrew L Callen MD

Thank you CN Tower / Tour CN for this recognition | Merci!💜

International CSF leak awareness week. Thank you to Govt of NL recognizes CSF leak and helps raise awareness for this debilitating condition. #purple Spinal CSF Leak Canada Charitable Organization Spinal CSF Leak Foundation NewfoundlandLabrador CBC Newfoundland and Labrador The Telegram

Last night, June 1, 2025, BC Place lit up in purple for #SpinalCSFLeakAwarenessWeek 💜 Thank you BC Place for this recognition!

Do CVF have one way physiology? #SIH #CVF #CSFLeak ajnr.org/content/early/… Mayo Clinic Radiology

YES!! The profound and devastating effect of SIH on quality of life CANNOT be overstated. The attack on our brains is an attack on EVERYTHING that makes us, us.

A heartfelt thank you to the patients who courageously shared their journeys. We are deeply grateful for your honesty, vulnerability, and commitment to this cause.💜 #SpinalCSFLeakAwarness ▶️youtu.be/Uy1Wim4h60I

Key Point 4 from the article Clinical Features and Diagnosis of Spontaneous Intracranial Hypotension by Drs. Jill Rau and Jeremy Cutsforth-Gregory, from the June Disorders of #CSF Dynamics issue, which is available to all at hubs.la/Q03qszZ90. Jeremy Cutsforth-Gregory MD #Neurology

Sadly, this isn’t a myth for many leakers. Despite multiple interventions, some patients remain bed-bound for years, relapse, or fail to regain pre-leak function (est up to 20% depending on type of leak). We need a call for research and reporting of these left-behind leakers.

Many thanks to Spinal CSF Leak Canada Charitable Organization for your advocacy that extends well beyond leak weak. 👏

Thank you to everyone who participated in, attended, and contributed to the success of the 2nd Canadian SIH Conference! This event would not have been possible without the dedication of our incredible speakers, organizing committee, board members, volunteers & our sponsors.

Last day of our fundraising campaign, “Stand Up for Spinal CSF Leak Patients” There’s still time to show your support. Visit the campaign page and click “Donate Now,” or contribute to one of the individual fundraisers or teams. 🔗 spinalcsfleakcanada.ca/stand-up-for-s…