This is my story.

I wish my mom could have held her first grandchild. I can’t put in words how hard ALS is to families and and loved ones❤️

Please help me share this with your elected officials to fight for treatments and a cure. We need it

#endals #fight2endals #MotherDay

Chances are that if you’re reading this, you’ve been there at some point on this journey. Please know that I appreciate your commitment to hold my hand and show up on my hardest days 💜

#endalswithmda #mdapartner #fightalsfilmfest #amyotrophiclateralsclerosis #als #heralsstory

In honor of Mother's Day, please take a few moments to read this awesome piece with our friend Sarah on parenting and pivoting. als.net/news/sara-benn… #HappyMothersDay #EndALS

The best surprise this morning. 🧡💙

'I watched in horror as my mom, my best friend, became trapped in her non-functioning body -- a memory that haunts me, even after she died.'

Join Kristen in the #Fight2EndALS in memory of her mom by sharing her story with your elected officials: iamals.org/action/kristen…

Neil lost his battle with ALS on May 8, 2024. RIP, we love you so much.

Our community is so thankful to Mike Quigley for all that he gives and for all that he does for ALS patients and their families.

To know that we are not in the fight to #EndALS alone means everything,

I AM ALS #ALSAwarenessmonth

She is … Alexandra Cavaliere and though we wish it weren’t so … she is #ALS . Alex was 29 years old when diagnosed. The thought is sobering.

👇

“In August 2019, after coming back from a month-long work trip in Ireland I noticed slurring of my speech and was diagnosed with

AMA day 6 for ALS Awareness month ❤️ ask anything in the comments! #als #ama #lifeupdate #vlog #breakup

We are thrilled to share this news! For Love and Life: No Ordinary Campaign, the inspiring documentary about the founding of I AM ALS, will begin streaming on @primevideo on May 28th!! #ForLoveAndLife Prime Movies @amazonmgmstudios

What does #ALS look like?

It looks like a Bodybuilder.
It looks like a vibrant young woman.
It looks like a Dad.

I never thought #ALS would look like that. Bet you didn’t either.

#ALS AwarenessMonth #MondayMorning ALS TDI #InspireOthers Rainer62ALS 🌻

#ALSAwarenessMonth
Lou's streak ended due to complications with ALS. Battling a slump with his weakened body, Lou played the 2,130th consecutive game of his career on April 30, 1939. It was also his final game in the majors.
#livelikelou #als #als awareness #lougehrig

.@senvancepress As your constituent & someone impacted by #ALS , I urge you to sign on to the FY2025 ALS Appropriations “Dear Colleague” letter to support #ALS Research by contacting U.S. Senator Bill Cassidy, M.D. & Senator Chris Coons: bit.ly/FY2025-ALS-Sen… #FundALSResearch

.@sensherrodbrown As your constituent & someone impacted by #ALS , I urge you to sign on to the FY2025 ALS Appropriations “Dear Colleague” letter to support #ALS Research by contacting U.S. Senator Bill Cassidy, M.D. & Senator Chris Coons: bit.ly/FY2025-ALS-Sen… #FundALSResearch

BIG thank you to the Buffalo Bills for the beautiful note of encouragement, cool gear, including a helmet and jersey signed by two of my favourite players, and an invitation to training camp. My heart is filled with gratitude. #BillsMafia #EndALS

Why is #ALS such a scientific conundrum? Let’s try this preschool explanation.. 👇

Steve can talk but Steve can’t walk.
Jill can talk, but she can’t walk either,
Both Steve and Jill can eat & drink,
But Jill drinks with a big fat straw.

George is a dude who can’t speak or

Explaining to MP’s in Parliament the hope for Interleukin 2.
Full video here ⬇️

youtu.be/OyQYIKg-JBc?si…

#newdrug #interleukin #trial #hope #treatment #mnd #als #motorneuronedisease #lougehrigsdisease

A group of kids came to my door. I am used to this because of my daughter’s friends but this was different.

They were here to give me the money that they had raised with a lemonade stand to fight ALS.

I am amazed by their kindness and inspired by them.

Good night Moon.

As your constituent & someone impacted by #ALS , I urge @repgreglandsman to support #ALS Research. Add your name to the FY2025 ALS Appropriations Dear Colleague letter today: als.org/Dear-Colleague #FundALSResearch

As the controversy continues in the world of #ALS the question that keeps swirling in my head is …

“What if it were my son, my daughter?”

#MommaBearsForever #EndALS #IYKYK #SundayMorning Adam Feuerstein ✡️ #conflictofinterest 🌻