If only the antidote for Angelina (and all other pWALS) could be freshly brewed and served in a big, fat cup.

#ENDALS #thursdaymorning #thursdayvibes #Tbt ☕️

Keep the love coming! The sunflower force (and nurse Kelsey) are with Della!

#endals #wednesdaythought 🌻

Sometimes I need
Only to read
The words of Mary Oliver
To be blessed.

#tuesdayvibe

Let’s gather the #ALS universe together to send Della our healing thoughts and mending prayers.

#AngelsAreWithHer #EndALS #MondayMorning 🌻

My friend Nadia coined a new phrase. #griefsplainin Legal to be used with hashtag. Or without.

#sundayvibes Dr. Nadia Sethi

As we fight the #ALS beast, we sometimes forgot the quieter beast lurking. Parkinson’s. A beast in itself. Cruel and insidious. My beautiful friend fought her battle for years. Don’t believe Parkinson’s is kinder. It is not. At the last moment, my friend was left blind.

As a jaded OG widow there is nothing I appreciate more than having someone who has never lost a partner or spouse ‘splain to me about the grieving process of losing my husband.

Especially relatable was the story of the spectral Grandmother paying a visit shrouded in casket

Can we do a manhunt for a fake #ALS patient who continues to steal sympathy as well as cash? 👇

It’s a book club read that will touch your soul as you realize how much fight Author Mallory Smith brought into her battle with Cystic Fibrosis.

For those that live in the world of ALS, this is a story that will resonate and inspire. For though CF & ALS are different beasts,

Fred was like the rest of you.
He put his pants on. One leg at a time. Except one day, once his pants were on, he was diagnosed with #ALS .

Fred needed more cowbell, a cure for ALS.

ALS TDI has a fever to help PWALS live longer, so they ride every year to help #EndALS .

She was featured on KY3 News, driving her wheelchair through the rocky streets of Springfield, Missouri. For those just diagnosed with ALS, a word of caution. If a woman named Audrey Webb tries to contact you asking for money, gifts, vans, gift cards or equipment, please know that

And now, and yet again, #ALS patients go back to their bench where they wait for Godot.

#EndALS #LossUponLoss 🧢

“Not sure? Maybe you have some flash cards? They may help.”

#ButSeriouslyFolks #EndALS Her ALS Story #KilledThemInTheCatskills 🌻

And from a dark disease comes a moment of light. Congratulations Team Gleason - because of you there will be “No White Flags.”

It’s a long story. Too long for X. So the short version is, after Fred was diagnosed with ALS, a colleague from his AP Days sent him this story before it went to broadcast. I found the email this morning. Then I googled it.

Maybe some of you knew Chris Rosati. I wish I

Crying is so fair. How could anyone not mourn loss of self when living Jackson.

Sending hugs Jackson. We feel your sorrow.

Is the ALS cure in this bottle?

Maybe so?

Probably not.

To the scientists that keep searching, all that can be said is “THANK YOU.”

#ENDALS #HOPE_ON_THE_STREET #SaturdayVibes #EasterWeekend 💜

“Life is about finding happiness in the simplest of things.”

Lou Gehrig

Fred would have found so much happiness in grabbing a beer, sitting on the back porch and reading this book about Lou Gehrig. He was Fred’s hero. For more than one day.

#JoinUs #GoodFriday2024 🍻

For this #GoodFriday may we all take a moment of quiet reflection and just for that moment - be the light.

#EndALS #easter2024 🪻