June #SclerodermaAwarenessMonth may be over but #SclerodermaAwareness still goes on until a cure is found 🙏 Is anticoagulative therapy in systemic sclerosis to be reconsidered?👇 journals.sagepub.com/doi/full/10.11… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #SystemicSclerosis

#ThankYouDay Eternally grateful to Prof Denton 😇 Royal Free London 2024, 27 years over half my life hijacked😭 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

Happy 76 birthday NHS #nhs76 Thank You for keeping me alive Eternally grateful to Prof Denton and team 😇 Royal Free London #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #Disability

Delighted to have received a Thank You card from Royal Free Charity in today's post 💖 #nhs76 #Scleroderma stops me from participating in most fundraising activities such as marathons, baking etc, so #sclerodermaawareness is my substitute. #SclerodermaFreeWorld #Research #Raynauds

Going to my first meeting EU Medicines Agency Churchill Place, Canary Wharf. Since Brexit and pre pandemic, the offices have now moved to Amsterdam. cosmicfairy444.blogspot.com/2015/01/my-eur… #SclerodermaFreeWorld #Research #RareDisease #Autoimmune #Lifechanging #NoCure #SystemicSclerosis #PatientVoice

Delighted to have been quoted here 😊 med-technews.com/news/uk-a #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability #Flashback

#flashback The Magic of Summer: blog.raynaudsscleroderma.co.uk/2017/04/the-ma… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability

#Flashback Scleroderma and Raynaud's The Fun Snatcher: blog.raynaudsscleroderma.co.uk/2018/04/the-fu… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability

#Flashback The Scleroderma Olympian: blog.raynaudsscleroderma.co.uk/2017/04/the-ra… Good luck to Team GB and all participants ⭐ #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

August #gastroparesis Awareness Month sclerodermarf.blogspot.com/2019/08/gastro… Gastrointestinal Infographic #unmetclinicalneed blog.raynaudsscleroderma.co.uk/2018/05/gastro… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause

#Flashback Mail+ Royal Free Charity blog.raynaudsscleroderma.co.uk/2017/04/the-ra… 'I'm the real-life Tin Man': Woman, 40, must bathe in oil and moisturise for three HOURS every day to prevent her body seizing up dailymail.co.uk/health/article… #SclerodermaFreeWorld #Research #Scleroderma #systemicsclerosis

#Flashback @bbcstoke 2013: youtu.be/74-paj58uQw?si… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability

sclerodermarf.blogspot.com/2019/08/gastro… #Gastroparesis Awareness Month #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability

#gastroparesis Awareness Month Changing my diet 2012 #gamechanger blog.raynaudsscleroderma.co.uk/2017/04/diet-a… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher

sclerodermarf.blogspot.com/2019/08/gastro… #gastroparesis Awareness Month #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability

'You have scleroderma. There is no cure. Probably 15 months max to live. Give up your idea of being a barrister ' - said to me 27 years ago, by my diagnosing doctor. 1998, I changed doctors to the world experts SclerodermaRF Royal Free London #SclerodermaFreeWorld #Research #blessed

'The woman who is allergic to winter'- my local paper, the Southport Champion, 2013. 2024, I will have spent over half of my life, 27 years, living with a scleroderma (systemic sclerosis) and Raynaud's diagnosis, and all that entails. 🤢 #SclerodermaFreeWorld #RaynaudsFreeWorld

HUGE thanks to everyone who kindly took part in my patient profiles campaign for #sclerodermaawareness 2017-2018. Index: blog.raynaudsscleroderma.co.uk/2018/07/global… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure

FATIGUE still remains an unmet clinical need challenge 😱blog.raynaudsscleroderma.co.uk/2017/05/fatigu… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue #DreamSnatcher #Disability

Digital Ulcers and Calcinosis are a constant challenge in my life 😱 #UnmerClinicalNeed #Pain blog.raynaudsscleroderma.co.uk/2018/05/calcin… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging