
ChronicallyJess
@chronicallyjess
Patient advocate living with #Crohns. Collaboration with patients is the future of medicine. #IBDparenthoodproject @trellushealth @dartmouthMHCDS ‘20
ID: 779349935846227969
http://www.chronically-jess.com 23-09-2016 16:01:19
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As an #IBD patient, really exciting to see positioning of newer therapies being discussed. Personalization is coming, fellow patient community! 🙌🏽 Thank you to Anita Afzali MD, MPH, MHCM, FACG, AGAF Millie Long Corey Siegel for explaining strategies to use newer tx VEDO, UST & RISA. #AIBD2022


Diet as therapy for IBD. Patient perspective ChronicallyJess: Pts can internalize blame related to diet- important to reassure patients IT IS NOT THEIR FAULT. #aibd2022 @IBDConference


Oriana M. Damas, MD MSCTI Kelly Issokson MS RD LDN (she/her) ChronicallyJess #JimLewisMD #IkuoHiranoMD. Promising data on Diet as therapy: Low fat diet, SCD. Mediterranean diet - common denominator may be HIGH FIBER. ? Effects on symptoms vs inflammation @IBDConference #aibd2022


IBD Summit:Highly educational meeting for fellows interested in #IBD! Basic &🔥 topics by leaders who revolutionized management & treatment!Thx to Corey Siegel David T. Rubin, MD Stephen B. Hanauer, MD Vindico Medical Education Edward Loftus Maria T. Abreu Millie Long ChronicallyJess Miguel Regueiro #MarlaDubinsky



Congrats to Uma Mahadevan on her #shermanprize, as her work is particularly impactful for women with #ibd who are pregnant or wanting to become pregnant. She has helped bring the data to #ibdmoms who want to make safe, informed decisions on how to become moms. 💜🤰🏻💜


Thank you to ChronicallyJess and Tina Aswani-Omprakash, MPH for sharing your courage, candor and wisdom. We are better with you on the podium! #AIBD2022

Amazing discussion with Uma Mahadevan & patient advocate ChronicallyJess on #pregnancy & #IBD! 💎 Have conversations early & discuss safety of therapies 💎 Share data with patient & loved ones + discuss openly as the emotional process is enormous #AIBD2022 @IBDConference


“We getting pulled up tonight” 🎶 When GI docs pull up at #AIBD2022 with patients…@IBDConference Miguel Regueiro Millie Long Stephen B. Hanauer, MD @SCKimCHP Jeremy Adler, MD, MSc

Incredible meeting ChronicallyJess & Uma Mahadevan IRL! And @SCKimCHP Anita Afzali MD, MPH, MHCM, FACG, AGAF seeing you again! The work you all do for women & children w/ #IBD is groundbreaking. I am humbled to know you 💜🙏🏽 #AIBD2022 Miguel Regueiro @IBDConference


📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. Corey Siegel and ChronicallyJess give the details on Ep 128! Listen or read here: bit.ly/AIBD128





#IBD patients: hang on to this slide! #EmilyBlock sharing resources for how to get access to medications 💊💉 #AIBD2023 @IBDConference


One of the most important things I learned @IBDConference was on panel w/ChronicallyJess “when pt comes in w/certain beliefs/therapies, they’re coming from a place of hope, hope that therapy “x” cures them & they don’t need y&z” . Understanding that changes the whole interaction




#AIBD2023 Pregnancy in #IBD ChronicallyJess 💎B clear: healthy🤰🏼on Rx = healthy 👶🏻 🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation & “advice” from “internet & well-meaning in-laws” 💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science
