Check out the #Roundup of our #RareDiseaseDay campaign here: medipace.com/2023/02/22/rar… Topics include: - #FamilyPerspectives & #PatientStories - #PatientEngagement - #OvercomingChallenges Special thanks to Inês Alves & Nick Sireau for sharing your thoughts!

MediPaCe supports International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have. internationalwomensday.com #internationalwomensday #PatientEngagement #Equalhealthcare #IWD2023

Equality and Equity are not the same. People start from different places so true inclusion and belonging require equitable action. Head over to the International women’s day website to read more. internationalwomensday.com #PatientEngagement #EmbraceEquity #Equalhealthcare #IWD2023

MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here. medipace.com/2023/03/07/int… #internationalwomensday #PatientEngagement #EmbraceEquity #Equalhealthcare #IWD2023

Hey network, is anyone going to DIA Europe next week? Ping me or come say hi!

#Day1 of #DIAEurope2023! 🙌 Just arrived and excited to meet people and get inspired! Attending #EMA townhall now. First takeaway: #PatientVoice guides every step of the way in CT - at the strategic and individual levels #PatientEngagement #MediPaCe

Peter Arlett from EU Medicines Agency, #DarwinEU sounds exciting! Looking forward to seeing also studies that integrate patients' voice and perspective. #RWE or #RWD can't be a catch-all phrase for data mining exercise, but a cooperation that improves healthcare. #DIAEurope2023

#DAY2 @ #DIAEurope2023 #PatientPreferenceStudies can inform at all phases of R&D decision points, therefore, #PatientEngagement should also be integrated into R&D processes. Thanks for the great presentation Rosanne Janssens! PREFER: patient preferences

Trying to minimise migraine impact is a 24/7 job. Even if successful, the anticipation and fear of having a migraine lives with you every day. Some of our team describe what it’s like living with that knowledge: youtu.be/Y9Zrer0zuuc #MHAM #migraine #patientexperience

Looking after your daily health is a wise choice, but it’s even more important when the realities of getting it wrong are as swift and impactful as migraine. Here are our reflections: youtu.be/lCcfhB4r-iw #mham2023 #migraine #migraineawareness #patientexperience

Effect of Migraine on the workplace: We all have each other’s backs in our working family. Listen here to a clip comparing experience of migraine in the workplace from those who get migraine and those who don't: youtu.be/Ztn2mEHNgDc #mham2023 #patientexperience

#DIA2023 started with a bang this morning! First thoughts: grandiose, lots of enthusiasm in the air and heard #PatientEngagement promises repeated, so really looking forward to hear about advancements. Not seeing many patients community representatives yet. Drug Information Association (DIA)

Start of #DIA2023 day 2 and we're watching a video created by generative #AI with Evelyn, the AI generated avatar presenting her AI generated content. She's presenting the pros and cons of using AI. #Cool, isn't it? Drug Information Association (DIA) MediPaCe

My reflections from Day1 #DIA2023: 1. “It’s better to be disruptive than disrupted.” Get engaged with AI/LLM. 2. Diversity does not happen by accident. 3. A shout-out: Build-A-Hand-project and Odyssey Teams! Read the full post: linkedin.com/feed/update/ur… Drug Information Association (DIA) MediPaCe

Session303 Returning indiv. participant data: Why is it so hard to give ppl their data back so they can use it in their own healthcare?! Trials don’t happen in a vacuum and separate from ppl’s lives. Drug Information Association (DIA) #DIA2023

Session303: In addition to #ReturningData to participants, are there solutions for integrating it to personal health records? Giving a pdf #datadump to a doctor and asking them to digitize it without background or validation is probably a no-go 😒 #DIA2023

Session413-Experiences from the other side of the table: “If we could have our legal ppl participate in #clinicalstudies, we wouldn’t have the #informedconsentforms we have today” …maybe… but I like the idea. Why not expand to the whole staff? #PatientEngagement #DIA2023

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MediPaCe is proud to support #worldheartday to raise awareness of preventable #cardiovasculardisease #CVD. Small tweaks like adding a healthy element to your diet or walking more today than yesterday could make a huge difference. How do you keep your heart healthy?World Heart Federation

💗 Yourself this #worldheartday and walk, run, bike or travel any distance in a heart shape and share on your preferred social media channel with #WorldHeartDay to challenge others! world-heart-federation.org/world-heart-da…