Carys Edwards
@cherrybebop
Mammy ,Parent of a CF warrior princess 💛 & son with superpowers 🧩 Reader, Crafter, Huge music fan & just a little bit crazy. She/Her
ID: 85914595
28-10-2009 21:14:08
1,1K Tweet
231 Followers
1,1K Following
100,000 people around the world agree that people with #cysticfibrosis have the #RightToBreathe If you also agree then please sign and share the petition for global access to Vertex Pharmaceuticals's CF modulator therapies at a fair price PETITION: actionnetwork.org/forms/cf-drugs… #kaftrio
Share on Twitter express.co.uk/life-style/hea… There is understandable uncertainty for families at the moment. Let us hope NICE NHS England Vertex Pharmaceuticals can complete their processes and provide permanent positive clarity for families with #cysticfibrosis Cystic Fibrosis Trust Daily Express
Reg my previous tweet of course there is a group of children who are only eligible for #Kaftrio and so aren’t on the pipeline yet. They are eagerly awaiting for license to be approved for 2-5 yr olds by MHRA Meds Safety
Please MHRA Meds Safety MHRAgovuk, parents with children eligible for #Kaftrio but not Orkambi are desperate to see the age for eligibility to Kaftrio reduced to 2yrs to enable them to join the pipeline of amazing Vertex Pharmaceuticals meds to ensure their ongoing access.
Finally watching The Great Pottery Throw Down not sure what gives me more anxiety; waiting to see the pottery after firing or watching the potters have to walk down all those stairs with their makes. I know for a fact I’d fall up them let alone down 😂😂
Aww honestly Joe Tracini is a bloody treasure ❤️
Doctor who!! Bloody fabulous both episodes! Actors are all amazing but damn Jinkx Monsoon was unbelievable 💙💙Doctor Who #DoctorWho
The Olympic gymnastics has been great and all but can we get it with a commentary from Joe Tracini please???