💐 Happy Easter! ✝️ Wishing a joyful day of blessings and love to all who celebrate! 🐣🐰 💜 the team at Chelsea’s Hope Lafora Children Research Fund #Easter2024 #HappyEaster #Spring

🥹 ION283 Safety Study Fundraising Update!⁠ ONE MILLION + RAISED 🎉 We are SO CLOSE to funding the seventh patient in the safety study! And your contributions are changing lives! Help us support 4 more patients: givebutter.com/LaforaSafetySt…

📢 2025 #LaforaDisease Science Symposium registration is open! 🔗 Register by September 1: givebutter.com/2025LaforaSymp…

📰 Huge thank you to #TheGoodNewsMovement for sharing about the ION283 Safety Study for #LaforaDisease! We do have so much hope that this will be a life-saving treatment. Read here: thegoodnewsmovement.com/groundbreaking… #RareDisease #GoodNews

🎥 NEW VIDEO: youtu.be/oOYBLBd5LUU?fe… The ION283 Safety Study is a life-changing opportunity for 10 #LaforaDisease patients, and it gives the worldwide community hope that we can reach treatments for all our kids. #RareDisease

📰 New post: Announcing a Town Hall: Fully Funding the Safety Study chelseashope.org/?p=9991 #FightLafora #LaforaDisease

📰 NEW POST: Chelsea’s Hope Advisory Board Meets to Discuss Research Goals chelseashope.org/?p=10029 #LaforaDisease

Now #Hiring for summer internships! Apply by May 31st to be considered for the following opportunities: 📄 Science Communications 🔬 Research Support 💸 Fundraising Support ➡️ Find position descriptions and apply here: docs.google.com/forms/d/e/1FAI…

GIVE US 10 - For the final 10 days of May, we're sharing TEN reasons to donate to the ION283 Safety Study. There are currently SIX out of ten children enrolled in the life-saving study. Help us reach the final four by making a donation today: givebutter.com/LaforaSafetySt…

#GiveUs10 - Save 10 children fighting #LaforaDisease! The mother of Patient 5 has been reaching out to businesses and news outlets begging, “Please do something for our kids, they may be small in numbers but they are the future.” 🔗 Donate: givebutter.com/LaforaSafetySt… #FightLafora

#GiveUs10 - Stop the progression of #LaforaDisease! ION283 stopped the progression of #Lafora in pre-clinical studies, so we feel incredibly hopeful! You can't press pause on Lafora, but you can press donate to fund the safety study: givebutter.com/LaforaSafetySt… 🔗 #FightLafora

#GiveUs10 because it's an URGENT need. Early intervention is critical with #LaforaDisease. Families know best that time is never on our side, so the faster we can move to get treatments for our children, the better. Every day matters. Every gift matters: givebutter.com/LaforaSafetySt…

#GiveUs10: Make history - as this is the first FDA-approved study for Lafora, you're not just donating. You’re making history: givebutter.com/LaforaSafetySt… 🔗 ⬆️ Share this prompt on your social media and invite your followers to be part of the movement to cure #LaforaDisease!

Angelina, one of the #Laforadisease patients who shared her story in our documentary Fighting the Rare, has passed away. Her story will stay with us. Her fight will continue to inspire our work. Rest in peace, Angelina #Lafora #RareDisease Chelsea's Hope Lafora Children Research Fund

💬 Day seven prompt: There are no treatments for Lafora disease. And we need a cure. As Dr. Minassian shared at the 2024 Symposium, "There's no faster way to treat patients right this moment than this study." Give here to support the safety study: givebutter.com/LaforaSafetySt… 🔗

An excellent panel! Chelsea's Hope is grateful to attend the Science in Society 2025 meeting.

#GiveUs10 - day eight prompt: Identify #biomarkers for clinical trials and general data. You know how important biomarkers are for successful trials, as well as improving our ability to track disease progression. Donate here: givebutter.com/LaforaSafetySt…

#GiveUs10 - the ninth reason to donate to the safety study is because you love someone with a #RareDisease. Not just if you love someone with Lafora! Please donate $10 to help us save 10 children: givebutter.com/LaforaSafetySt… 🔗

#GiveUs10 - the 10th reason to donate to the safety study is to keep hope alive: givebutter.com/LaforaSafetySt… Hope is powerful — and contagious. We have faced too many obstacles and heartbreak as a community to NOT fully fund the safety study and enroll all 10 eligible patients.

📰 NEW POST: Announcing June 18th ION283 Q&A: What’s Next? chelseashope.org/?p=10048 #LaforaDisease #ChelseasHope