📅 Mark your calendars! Join us on October 31st from 12-1 PM MST for the CRDN Townhall, where we'll dive into the latest updates on our strategic plan co-development. Don't miss out—register today: canadianrdn.ca/join-the-crdn-…

#OpenAcademy2025, launching under ERDERA, is now accepting applications! Developed with expert trainers, the programme is specifically designed to give you the skills and knowledge necessary to achieve concrete, real-world results. 💪 Learn more➡️ go.eurordis.org/vRJTTI

🧡 Today is National Day for Truth and Reconciliation 🧡 On September 30, we pause to honor the children lost to the residential school system, the survivors, their families, and communities. Join us in taking action by visiting: canada.ca/en/canadian-he… #EveryChildMatters

CIHR-IG will support up to four rare-disease patients from Canada to attend the in-person EURORDIS Summer Schools in June 2025 in Barcelona, Spain! tinyurl.com/5e4mppt3

L’Institut de génétique (IG) des IRSC appuiera la participation d’au plus quatre Canadiens ou Canadiennes atteints d’une maladie rare à l’Université d’été d’EURORDIS en juin 2025, à Barcelone, en Espagne. tinyurl.com/5e4mppt3

Exciting News!💥 Become a patient researcher through U Calgary's virtual Patient & Community Engagement Research (PaCER) certificate program!  Learn more at bit.ly/PaCERprogram Interested in applying? Email [email protected] by November 15, 2024.

Devenez un patient chercheur grâce au programme de certificat virtuel Patient & Community Engagement Research (PaCER) de l'U Calgary. Pour en savoir plus, consultez le site bit.ly/PaCERprogram.V… souhaitez poser votre candidature? Envoyez un courriel à [email protected].

Congratulations to these amazing physician-researchers who are leading the way in Canada & have secured funding from CDA-AMC for a CAN-SAID registry! Such wonderful news!!! Kelly Brown drloritucker @QdQwerty cda-amc.ca/drugs-rare-dis…

🎥 Missed our recent townhall? No worries – the recording is now live: youtube.com/watch?v=ffUB1z… We also want to hear from YOU! 🫵 Take a moment to review CRDN's proposed strategic plan and share your thoughts with us. 🔗survey.ucalgary.ca/jfe/form/SV_4Y…

Excited for what November has to offer? 🌟 Discover a variety of events happening both in Canada and globally with the CRDN Events Calendar! 📅 Check out the CRDN Events Calendar: canadianrdn.ca/events/ 💡 Submit your details here: canadianrdn.ca/events-contact…

He diagnosed his rare disease using Google. Now he hopes artificial intelligence can do the same for others. CHEO Ottawa using #AI to help diagnose #RareDisorders, by Philip Drost cbc.ca/radio/whitecoa… via White Coat Black Art Dr. Brian Goldman

White Coat Black Art avec le Dr Brian Goldman Ian Stedman, membre du conseil consultatif de l’IG des IRSC et du réseau canadien des maladies rares (RCMR) : Il a diagnostiqué sa maladie rare grâce à Google. Il espère maintenant que l'IA pourra faire la même chose pour d'autres

White Coat Black Art with Dr. Brian Goldman Ian Stedman, member of #CIHR-IG Institute Advisory Board and Canadian Rare Disease Network (CRDN): He diagnosed his rare disease using Google. Now he hopes AI can do the same for others tinyurl.com/5hd6uxfe

CORD CORD calls on federal parties to commit to a national strategy for rare diseases. Federal strategy is overdue.

🌍 Exciting news! The RDI-Lancet Commission on Rare Diseases has officially launched! Co-chaired by CRDN's own Dr. Kym Boycott (Canada) & Dr. Roberto Giugliani (Brazil), it brings 27 experts from 6 continents to improve healthcare for PLWRD. Learn more: rarediseasescommission.org

February 28 is #RareDiseaseDay, but every day we #CareForRare. Help us raise awareness about how rare rheumatic diseases affect children, teens, and young adults across Canada. Together, we can make a difference. Learn more at cassieandfriends.ca/careforrare

Thank you #MCHRD2025 organizers for allowing me to share this work! Cassie + Friends Society TransitionDoctor Karen Beattie McMaster University Department of Pediatrics

So proud of these trainees presenting their work at #MCHRD2025 today. Their dedication to child health research is inspirational. McMaster University Department of Pediatrics McMaster Health Sciences MacPeds Dr Anne Klassen Karen Beattie Cassie + Friends Society McMaster Children's Hospital McMaster Child Health Research Hamilton Health Sciences Foundation

Discussing the Transition from Pediatric to Adult Rheumatology Care with Dr Yan Yeung, ORA Vice-President and President-elect Take a Pain Check Foundation at the Unity Through Rheumatic Diseases 2025!