CCHS Network (@cchsnetwork) 's Twitter Profile
CCHS Network

@cchsnetwork

A 501(c)3 organization dedicated to raising awareness, funds, and family support for congenital central hypoventilation syndrome (CCHS), a rare orphan disease.

ID: 373515726

linkhttps://linktr.ee/cchsnetwork calendar_today14-09-2011 18:27:25

2,2K Tweet

435 Takipçi

79 Takip Edilen

Gate.io (@gate_io) 's Twitter Profile Photo
Gate.io
@gate_io

5 hours ago

🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358
CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

4 years ago

Just posted a photo instagram.com/p/CMuzv7ppkMk/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

4 years ago

Just posted a photo instagram.com/p/CM2pSgQJn-Q/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

4 years ago

Just posted a photo instagram.com/p/CNAqnNJJo9S/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

4 years ago

Just posted a photo instagram.com/p/CNIO6hDJj71/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

4 years ago

TWITTER Happy CCHS Day! Watch our call to action video below, and post your own wave videos, or tag a friend for the #jointhewaveforcchs challenge. Go to cchsnetwork.org to donate and learn more about this heartbreaking disease

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Just posted a photo instagram.com/p/CjT3pyEp1ee/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

The CCHS Network is excited to launch our new logo and brand. Go to cchsnetwork.org for more information and to learn about CCHS Day 2022 happening on November 12th (including the sale of shirts and pins). #cchsnetwork #castalightoncchs #cchsday2022

The CCHS Network is excited to launch our new logo and brand. Go to cchsnetwork.org for more information and to learn about CCHS Day 2022 happening on November 12th (including the sale of shirts and pins). #cchsnetwork #castalightoncchs #cchsday2022
CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

We are casting a light on our little love bug, Lexi! #cchsnetwork #castalightoncchs #cchsday2022

We are casting a light on our little love bug, Lexi! #cchsnetwork #castalightoncchs #cchsday2022
CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

We’re casting a light on our happy little camper, Abby! #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/Cj0H1jLO9_7/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Bonfire Glow-In-The-Dark Shirts, Sweatshirts and Onesies: bonfire.com/store/cchs/ CCHS Firefly Pin: cchsnetwork.org/buy-your-firef… #cchsnetwork #cchsday2022 #castalightoncchs

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Three weeks from today...CCHS Day...November 12th!!! #cchsnetwork #castalightoncchs #cchsday2022

Three weeks from today...CCHS Day...November 12th!!! #cchsnetwork #castalightoncchs #cchsday2022
CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Two weeks from today…CCHS Day 2022!!! #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/CkTa-W7OIX_/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Just posted a photo instagram.com/p/CkWHccrpUrP/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs instagram.com/p/CkZvkqIOyAM/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs instagram.com/p/CkZyVfsuQbX/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Just posted a photo instagram.com/p/CkwjzKFJsU1/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Just in time for CCHS Day 2022, our redesigned website is now LIVE! #cchsnetwork #castalightoncchs #cchsday2022

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Tomorrow is CCHS Day! Please help us deliver a unified message of advocacy by posting the following image on your social media accounts. #cchsnetwork #castalightoncchs #cchsday2022 instagram.com/p/Ck1siiRJdJ9/…

CCHS Network (@cchsnetwork) 's Twitter Profile Photo
CCHS Network
@cchsnetwork

3 years ago

Just posted a photo instagram.com/p/ClWcMZNJzuh/…