🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

📢 Hot off the press! The latest issue of the CanPKU+ newsletter is here! 📰 Stay informed, empowered, and connected – because your rare matters! 💙 👉 Read now: issuu.com/canpku/docs/wi… OR view the PDF at canpku.org/Past-Newslette…

Be sure to register for the next cafe. A full list is available on our home page canpku.org Nous recherchons un barista francophone pour animer des événements. Postulez à [email protected]. #maladiesrare #phénylcétonurie #passirare #CombatPourLesRares #RareAuCanada

🌱 Every Step Counts: Data shows that those with untreated #homocystinurias may experience growth, developmental, and regression difficulties. Head to ➡️ homocystinuria.rare-x.org. & take the Growth, Development, and Regression surveys! RARE-X

🎙️New HC&U: A Homocystinuria Podcast episode OUT NOW!! Laurie & Ben will chat about the impacts that Joe's delayed diagnosis had on his growth & development. Listen on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to loom.ly/Yu0NyQs RARE-X

Save the date for 'TruePKU: Understanding the Lived Experience with Phenylketonuria,' May 8, 2025. Pink background with a sign-up prompt for updates. How can you get info and participate? npkua.org/truepku. #truePKU, #PFDD, #patientfocused, #PKU, #phenylketonuria

Genetic Carriers of PKU-Possible Health and Metabolic Implications? Dr.Justine Keathley, PhD, RD explore the potential health and metabolic implications experienced by genetic carriers of PKU. Date: Wednesday,January 15th Time:12:00pm - 12:30 pm EST Where: loom.ly/BS8u75c

May 8, 2025 -TruePKU is an “externally-led patient-focused drug development meeting,” collaboration between CanPKU+ and the NPKUA, organizations world-wide. Learn more about TruePKU stay informed @ npkua.org/truepku. #truePKU, #PFDD, #patientfocused, #PKU, #phenylketonuria

Are you a parent or guardian of someone 12-17 with PKU? Live in the USA or Canada? Use protein supplements/medical foods and/or pharmaceuticals to manage PKU? Join this research project! Scan the QR for more information.

Do you have PKU? Live in the United States or Canada Are 18 years of age or older and diagnosed with PKU? Use protein supplements/medical foods and/or pharmaceuticals to manage PKU? Join this research project! Scan the QR for more information.

Be sure to register for the next cafe. A full list is available on our home page canpku.org Nous recherchons un barista francophone pour animer des événements. Postulez à [email protected]. #maladiesrare #phénylcétonurie #passirare #CombatPourLesRares #RareAuCanada

Your Brain Tells a Story Like our #HCUHero Trace, many individuals with any of the #homocystinurias can experience neurological and nervous system symptoms. If you or a loved one has experienced these head to ➡️ homocystinuria.rare-x.org to take the Brain and Nervous System Survey

🎙️New HC&U: A Homocystinuria Podcast episode dropping 03/27! Ben welcomes Trace and Jessie, mother of our March #HCUhero, to the table! ➡️Catch the HC&U Podcast on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to hcunetworkamerica.org/hcu-podcast/ RARE-X

🧠 Your Brain Tells a Story—And Now, We Have More Pieces of the Puzzle. 📖 We’re gaining a deeper understanding of how #homocystinuria affects the brain and nervous system. Join us in expanding this critical research ➡️ homocystinuria.rare-x.org RARE - X

🎙️New HC&U: A Homocystinuria Podcast episode OUT NOW! Ben welcomes Trace and Jessie, mother of our March #HCUhero, to the table! ➡️Catch the HC&U Podcast on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to hcunetworkamerica.org/hcu-podcast/ RARE-X

🌱🧠Help us Grow and Develop Our Knowledge! 🌱🧠 Your participation can make a difference in shaping future research and treatments for the #Homocystinurias. Join us in expanding this critical research ➡️ loom.ly/R_sEbwg RARE-X #RareDisease #DataForChange

🧡April is Urea Cycle Disorder Awareness Month🧡 Join us as we spread awareness and share important information with families all month! Stay tuned for more to come. Would you like to help? share the image below to help us raise awareness about urea cycle disorders.

🎙️ HC&U: A Homocystinuria Podcast episode dropping 04/24! Ben welcomes our #AprilHCUHero Andreana to the table! ➡️Catch the HC&U Podcast on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to loom.ly/Yu0NyQs RARE - X #podcast #homocystinuria #CobalaminG

🌱🧠 Grow the knowledge- Develop the future🧠 🌱 Data has shown that almost half of the #homocystinurias community experiences developmental symptoms, much like our #April #HCUHero Andreana 🧠🩵 Join us in expanding this critical #research ➡️ loom.ly/R_sEbwg RARE-X

#BuildingBridges2025 - Calgary Aug 21-24 Early Bird ends June 1st! Join us for connection, learning, and community—experts, families, and advocates from across the rare metabolic disorder world. Register now and save: canpku.org/buildingbridge… #RareDisease #PKU #MSUD #HCU #UCD

#BuildingBridges2025 - Calgary Aug 21-24 Buy before early bird closes Join us for connection learning, and community—experts, families, and advocates from across the rare metabolic disorder world. Register now and save: canpku.org/buildingbridge… #RareDisease #PKU #MSUD #HCU #UCD