Another way to use the experience of parents to improve neonatal care Better Use of Data to improve parent Satisfaction (BUDS): protocol for a prospective before-and-after pilot study employing mixed methods to improve parent experience of neonatal care bmjpaedsopen.bmj.com/content/3/1/e0…

Thank you Chris for presenting results from Susanna Sakonidou process mapping at jENS Congress: joint European Neonatal Societies: neonatal parents want information to be more consistent and jargon free; there is a lack of regular information in written/electronic form in neonatal care @CLAHRC_NWL Bliss Baby Charity

Parent codesign in neonatal care is exactly the way forward @CLAHRC_NWL

Our work looking at outcomes of extremely preterm babies in relation to place of birth and early postnatal transfer is out today in The BMJ - Kjell Helenius, Neena Modi, using data held in the NNRD-UK bmj.com/content/367/bm… 1/10

With input from over 400 former patients, parents, nurses or allied therapists, doctors and researchers we have identified 12 critical outcomes that should be reported in all neonatal research fn.bmj.com/content/early/…

Very proud of all NHS workers and our local GP practice staff- go JOR!

Categorising issues as “women’s” & “men’s” isn’t necessarily helpful; mostly these are societal issues which we should try & resolve together Prof Neena Modi ⁦Neena Modi⁩ Medical Women's Federation president speaking to ⁦Womanthology⁩ womanthology.co.uk/women-dont-bec…

1/ Which intervention should your NICU adopt to improve parent satisfaction? How will you measure this? What’s the best study design to trial parent-centred interventions in NICU? Our systematic review reveals huge variation in practice bmjpaedsopen.bmj.com/content/4/1/e0…

2/In 32 trials satisfaction was measured by 334 Qs in 29 surveys (only 6/29 fully validated). Only 5/32 studies reported involving parents in intervention design. Increased satisfaction was mostly reported after ‘parent involvement’ interventions. High risk of bias in all studies

3/How to choose an intervention for your NICU? Standardised, validated parent satisfaction measures are needed, as well as higher quality trials of parent experience, involving parents in intervention design National Institute for Health and Care Research Chris Gale James Webbe NNRD-UK Bliss Baby Charity NIHR ARC Northwest London

What effect does NICU care have on preterm babies in the longterm? Calling parents of preterm babies to help with the #Neowonder study 💪🏻👶

With NPEU-Oxford Marian Knight MBE @DrDonSharkey Helen Mactier Shamez Ladhani we publish prospective national data on characteristics and outcomes of neonatal SARS-CoV-2 infection in the United Kingdom, 1 March - 30 April 2020 thelancet.com/journals/lanch…

fn.bmj.com/content/early/… In 30-33 weekers early parenteral nutrition is associated with a significant decrease in mortality, but much higher rates of important neonatal morbidities (NEC, BPD and sepsis)

Congratulations James James Webbe The Neonatal Society Young Investigator award 2022: Outcomes that matter. Looking forward to welcoming you back to Imperial School of Public Health Chelsea and Westminster Hospital Neonatal Research team as a Clinical Lecturer soon!

Another Neonatal Nurses Simulation training day with a great set of participants from across London. Thank you to the faculty for making the day a success. #alwayslearning London Neonatal ODN @londonneonatalodn.bsky.social

Very pleased to share our new PEC survey for parents; the first in the UK for real-time feedback in neonatal care, for use in research/QI projects. Available for licensing via Picker @pickereurope Amy Tucker (Tallett) Chris Gale Neena Modi fn.bmj.com/content/early/…

Congratulations James Webbe Dr James Webbe who has been awarded the prize for best presentation by a trainee at the The Neonatal Society Spring Meeting for ‘Primary outcomes in neonatal trials: heterogeneity, gaps and how to strengthen reporting’

Very pleased to see this finally out! A framework for neonatal lung ultrasound in the UK. Excellent collaboration with great colleagues Virginie Meau-Petit & Anna Milan! #NeonatalPOCUS #POCUS #NICU doi.org/10.1016/j.gped…

Delighted to have presented our BUDS work today at BAPM 2024. The BUDS neonatal parent app to share daily routinely-recorded data with parents is currently in production Chelsea and Westminster Hospital Chris Gale Neena Modi NIHR ARC Northwest London Imperial Medicine Amy Tucker (Tallett) Cambridge Digital Health Bliss Baby Charity

Fantastic 2 days at #FiCare2024 Delighted to have discussed parent satisfaction and connect with many inspiring people! If interested in the PEC parent survey for your unit please get in touch fn.bmj.com/content/108/4/… @pickereurope Amy Tucker (Tallett) Chris Gale Imperial Medicine Neena Modi