#CANLI Aslıgül Atasagun İle Dün Bugün Yarın x.com/i/broadcasts/1…

Als için bulunan ilaç tedavisi tüm kas hastalıkları içinde kullanılacakmı yani mitokondriyal miyopati kullanılacakmı

Hande Ozdinler Siz orda ağlarken bizde burda ağladık mitokondriyal miyopati hastalığı als hastalığınamı giriyor rica ediyorum bizi aydınlatın bekliyorum

EVERY DAY I think, "Why do I choose to keep living with such EXTREME & constant suffering?" The system moves so slowly for ALS. It's hard to feel hope some days. Today is one of those days. If anyone else feels this way, you're not alone.

The #LilyFoundation UK Mito Patient Registry is a powerful online tool that lets people with a diagnosis of #mitochondrialdisease log details about their condition & how it affects their daily life. Find out more: ow.ly/oocP50LNHMQ

A very good news for ALS patients in Turkey!! The ALS drug that cures ALS patients with SOD1 mutation has been approved by the European authorities. So, the drug should come to 🇹🇷!! A great news indeed. Ding ding ding..