I appreciate how they designed this conference (no fees, all virtual, shorter segments, afternoon half day sessions, will be recorded etc.) It’s really done with #MECFS patients in mind. Additionally, they’ll have simultaneous translation in French.

Zedzies Yes, by some docs, but a formal clinical trial is exciting for 2 reasons: 1. Use of gold-standard lab tests to show that chronic babesiosis is a legitimate Dx (currently only acute babesiosis is diagnosable) 2) If the trial goes well we will have a labeled Rx for chronic Babesia!

thanks Tom!!

ICYMI, Simmaron's Rapamycin Pilot Trial published in J. Translational Medicine: rdcu.be/eL5aN 🧬 This first-of-its-kind study used a fully decentralized clinical design — enabling national participation without the need for site visits.

Whoo-hoo!! Score for Renegade Research!! 🥳

Watched this segment of 60 Minutes last night. I kept thinking about all of us with #MECFS. Everything Attita suggests making the QoL in our last decade of life (whenever that is) would make us worse/kill us. It's a 6-figure program...who can afford it? facebook.com/share/v/17ZgNo…

A while ago, I started a weekly podcast about viruses and vaccines in German. It’s short 15 to 20 min episodes with basic information for the public about relevant viruses. I am considering starting this in English too. I am wondering if people would be interested?

Oh, my...what say you?? Isabel Burnett | Renegade Research Tess Falor, Ph.D. | Renegade Research Neurologist Mom Open Medicine Foundation Bateman Horne Center Jack | amatica health Todd Davenport PolyBio WE&ME Foundation Naomi Harvey PhD #WearAMask zedsrigil thetranscendedman Prof. Akiko Iwasaki Melissa Mazur

Julie Sullivan Some folks who don't read this account may think this is divisive. The only story is that people are still getting sick, still becoming disabled, and research funding has all but dried up from government and private sources. Follows a bleak history of neglect in similar diseases.

2nd International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID 📍 Porto, Portugal or online OMF speakers will include: Linda Tannenbaum, OMF Founder & CEO, David Systrom, MD, Johanna Squires. 👉 Explore the program: aliancamillionsmissing.org/2-conferencia/….

Dr. Jarred Younger's Update 076 - How brain inflammation causes anxiety (9:58) Will be getting back on schedule and making important announcement(s) soon! Anxiety/depression from inflammation is from this open-access paper: sciencedirect.com/science... youtu.be/Sg5qoSET_Jk?si…

A pilot version of a Medical Education Hub developed by World ME Alliance. worldmealliance.org/medical-educat… Screenshot from latest Science for ME weekly update #MEcfs #CFS

#MECFS benötigt einen diagnostischen Biomarker, um eine zugelassene Behandlung zu erhalten. Bitte finanzieren oder spenden Sie an BioQuest. cfidsresearch.com/me-cfs-new-bio…

This 'hub' is off to a good start. Plenty of useful resources included. Check out the list and see if there's anything you can suggest.

(Australia) Great to see that this placebo-controlled #LDN #LongCovid trial is nearly finished. Will be very interesting to see the results From National Centre for Neuroimmunology and Emerging Diseases (NCNED) NCNED October 2025 newsletter

If you are an #MECFS or #LongCOVID patient and have been experiencing tinnitus. Is it :

PrecisionLife’s Bold Attempt to Break the Code on and Beat ME/CFS and Long COVID #MECFS #longCOVID healthrising.org/blog/2025/10/2…

This is so true. And largely an impossible task for a child. We try our best to keep our son optimistic so he survives into an age range where he can learn the skills Whitney describes.

Statistik & Karten: ME/CFS, Long Covid, Post Vac - 650.000 Erkrankte brauchen mind. 1 Milliarde Forschungsgelder! - Online-Petition openpetition.de/petition/stati…

If you're like me...and are looking for information about #MECFS to put in your hospital 'go-bag'....just in case you might need it...this is a great piece to include! ***now if only hospital staff will read it and heed the directions***