
Natacha Bolaños
@bolanosnat
Lymphoma Coalition | Head of Membership & Alliiances.
Patient Advocate interested in R&D, Capacity Building, Patient's rights, Policy. Cooperation is my motto.
ID: 797437611493249024
12-11-2016 13:55:17
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Graft-versus-host disease (GVHD) is a common, and sometimes serious side effect of an allogeneic transplant (from a donor), but it is still not fully understood. cGvHD-EUROGRAFT and Lymphoma Coalition join efforts to get insights on patients’ burden and unmet needs over a CAB.

You can be part of the discussion! We want to hear your experience as #Patient or #Caregiver living with GVHD. Please join us! Register here: bit.ly/3XROGaA #lymphoma BMT CTN EBMT Patient Advocacy Committee @EHAPatient Inspire2Live @BeTheMatch Antony Nolan Trust Acute Leukemia Advocates Network (ALAN)

On February 17, 2023, transplant recipients and their loved ones band together to raise awareness about graft versus host disease #GVHD, a difficult complication that affects roughly half of #patients who undergo a transplant using stem cells from a donor Lymphoma Coalition

And this should be answered in RW by registries. But sadly, there is no proper collection of data at the time of leukapheresis but only from CAR-T cell infusion time. EBMT_Cellular_Therapy The EBMT EBMT Patient Advocacy Committee Lymphoma Coalition TERAV EU Medicines Agency

The United Nations adopted March 8 as #InternationalWomensDay but, World Bank estimates that billions of women still lack the same legal rights + equal economic opportunities as men, and inequalities continue along a range of social, political, development, and economic indicators.



Precision / personalised medicine needs to be connected with PROcision medicine, targeting #patient reported outcomes. #EBMT23 Patient Advocacy Sessions. EBMT Patient Advocacy Committee


📅 Today marks the 20th #WorldLymphomaAwarenessDay. 📣 Lymphoma Coalition's -24 campaign highlights the emotional impact of living with #lymphoma and the need for #HonestTalk. 🗨️ Discover more in the article by Kathryn Perry ⬇️ ebmt.org/ebmt/news/worl… #WLAD2024 Lymphoma Coalition



Today is World Lymphoma Awareness Day #WLAD2024 Grateful to all healthcare professionals encouraging patients with #lymphoma to have Honest Talks, express their feelings, and report symptoms impacting their experience. Raul Cordoba, MD, PhD ELI FIL_ETS Lymphoma Experience HNHCP


"Thank you to the European Hematology Association for your invaluable partnership with #patientadvocacy groups and your commitment to improving clinical practice standards in #lymphoma. Together, we’re making strides towards better care and outcomes. #WLAD2024 @EHAPatient

It was a true pleasure catching up with Dr.Martin-Moreno during the #ESMO2024 dinner. His passion for public health and dedication to improving #CancerCare are always inspiring. Conversations with him are not only insightful but also a reminder of the heart behind the work we do.



Prof Andres Ferreri, Ospedale San Raffaele FIL_ETS discussing the difficulties and solutions for Primary central nervous system #lymphoma (PCNSL) at #ESMO2024 Lymphoma Coalition #lymsm

