Bohring-Opitz (@bohring_opitz) 's Twitter Profile
Bohring-Opitz

@bohring_opitz

Bohring-Opitz Syndrome Foundation, Inc.-a 501c3 non-profit organization-is dedicated to improving the lives of people affected by BOS. #BohringOpitz #BOSAware

ID: 3434112531

linkhttp://www.bos-foundation.org calendar_today21-08-2015 13:04:10

427 Tweet

346 Followers

659 Following

Custom Ink (@customink) 's Twitter Profile Photo

We’re supporting Bohring-Opitz this #FundraisingFriday! Bohring-Opitz Syndrome is a rare genetic syndrome, and the Foundation works to improve the lives of those affected by it. Order yours to receive your gear in time for BOS Awareness Day on April 6! bit.ly/2UYJbqg

We’re supporting <a href="/bohring_opitz/">Bohring-Opitz</a> this #FundraisingFriday! Bohring-Opitz Syndrome is a rare genetic syndrome, and the Foundation works to improve the lives of those affected by it. Order yours to receive your gear in time for BOS Awareness Day on April 6! bit.ly/2UYJbqg
Dra. Roser Urreizti (@roser_uf) 's Twitter Profile Photo

We just published our opinion and revision on Opitz C Syndrome clinical delineation, genetics conformation and therapeutic strategies at #EOOD (by Taylor&Francis News) #RareDiseases @CIBERER Síndrome Opitz C Bohring-Opitz GeneticsUB EURORDIS-Rare Diseases Europe BLACKSWAN FOUNDATION tandfonline.com/doi/full/10.10…

Bohring-Opitz (@bohring_opitz) 's Twitter Profile Photo

Today is #BOSAwarenessDay! Show your support, share your photos, and raise awareness! #BOSAware #BOSStrongerTogether #FewerThan200Worldwide #CareAboutRare #SpecialNeeds #BohringOpitz

Today is #BOSAwarenessDay! Show your support, share your photos, and raise awareness! #BOSAware #BOSStrongerTogether #FewerThan200Worldwide #CareAboutRare #SpecialNeeds #BohringOpitz
Bohring-Opitz (@bohring_opitz) 's Twitter Profile Photo

THANK YOU TO ALL OF OUR WONDERFUL SUPPORTERS!!! We beat our record of last year and sold 431 shirts and raised $4,060!! For every T-shirt purchased, the BOS Foundation gets a percentage. All funds… instagram.com/p/B9WWSZeBuFG/…