
Bo Bigelow
@bobigelow
Working to cure our daughter Tess's rare disease, Hao-Fountain syndrome.
ID: 49155912
20-06-2009 23:21:46
4,4K Tweet
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Hey Joe, Avis thinks my wife rented a car in Illinois last January. She didn't. You guys have charged us over $2,300. I've called. I've written four letters. Always saying the same thing: YOU HAVE THE WRONG PERSON. What do I have to do to make this stop? Joe Ferraro




Looking for great podcasts about rare disease? Look no further than these friends of mine. Subscribe and start listening. Please RT! Effie Parks @BloodStreamInfo Sanath Ramesh Mike Graglia 🌻 Dena DNA DNA Podcast (Old Account) Kyle Bryant Sean Baumstark 21st Century Dads Foundation @K_SalemOaks







My marathon teammates have arrived in Houston! It’s on! Hao-Fountain Syndrome #runhou #HaoFountainSyndrome



Honored to run with these men today in Houston. We were—and are—unstoppable. #runhou #runhouston #USP7 #HaoFountain Hao-Fountain Syndrome RunForUSP7


New insight on Hao-Fountain syndrome: clinical severity score, genotype-phenotype correlations and expansion of phenotypic spectrum. Hao-Fountain Syndrome BCM Department of Molecular and Human Genetics BCMHouston Uni Heidelberg Universitätsklinikum Heidelberg onlinelibrary.wiley.com/doi/full/10.11…


Seven men. On foot over 183 miles total. Nearly 300 kilometers. Deep in the heart of Texas. Click to listen to my latest podcast episode. #runhou #runhouston #USP7 #HaoFountainSyndrome RunForUSP7 Hao-Fountain Syndrome portlandrootsmedia.com/strongerpodcas…