Bo Bigelow (@bobigelow) 's Twitter Profile
Bo Bigelow

@bobigelow

Working to cure our daughter Tess's rare disease, Hao-Fountain syndrome.

ID: 49155912

calendar_today20-06-2009 23:21:46

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Hey Joe, Avis thinks my wife rented a car in Illinois last January. She didn't. You guys have charged us over $2,300. I've called. I've written four letters. Always saying the same thing: YOU HAVE THE WRONG PERSON. What do I have to do to make this stop? Joe Ferraro

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Foundations often start small, with a few parents around a kitchen table. But they grow. And ours is growing now, thanks to a special tool. Do you want to know what the Matrix is? portlandrootsmedia.com/strongerpodcas…

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We've come a long way together, Tess Army. portlandrootsmedia.com/strongerpodcas… Stay tuned through the end of this ep for an incredible surprise from my main man Daniel DeFabio.

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Apple picking. It's not just for people who need to get out of the house with their toddlers. Click to listen to my latest podcast episode. portlandrootsmedia.com/strongerpodcas…

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Tess is such a talker. Not with words exactly, but a complex system of sounds and gestures. And one thing that can sometimes cause us a bit of concern is this: when she clams up entirely. #nonverbal portlandrootsmedia.com/strongerpodcas…

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Evals. Not our favorite, but they’re part of our lives. Click to listen to the latest ep of the pod. portlandrootsmedia.com/strongerpodcas…

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I'm running the Houston Marathon on 1/14 with Olivier Emmenecker, whose daughter Zoe is Tess's USP7 sister over in France. Please donate today. Thank you! usp7.org/donate #USP7 #HaoFountainSyndrome #runhou #runhouston

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Stuck here in Houston after the marathon, and I don’t even mind. I’m a fan of H-Town. The people here have been so lovely. #WorthIt #runhou #runhouston

Stuck here in Houston after the marathon, and I don’t even mind. I’m a fan of H-Town. The people here have been so lovely. #WorthIt #runhou #runhouston
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Seven men. On foot over 183 miles total. Nearly 300 kilometers. Deep in the heart of Texas. Click to listen to my latest podcast episode. #runhou #runhouston #USP7 #HaoFountainSyndrome RunForUSP7 Hao-Fountain Syndrome portlandrootsmedia.com/strongerpodcas…