๐ŸŒปUkraine๐ŸŒป (@beautiful_royal) 's Twitter Profile
๐ŸŒปUkraine๐ŸŒป

@beautiful_royal

Mission help #VaryushaMayer with genetic rare disease #SLC6A1. Advocating for #Childrenofwar from #Ukraine

ID: 459690154

linkhttp://birdsforsofia.org/help-varvara calendar_today09-01-2012 23:19:58

64 Tweet

1,1K Followers

319 Following

๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

1. About dreams. For four years we have been dreaming about the recovery of the child. When we learned about Varyusha's rare genetic disease, there was no cure in the world. The doctors advised us to accept the child as he is and to put up with it.โฉ paypal.com/donate/?campaiโ€ฆ

1. About dreams. For four years we have been dreaming about the recovery of the child. When we learned about Varyusha's rare genetic disease, there was no cure in the world. The doctors advised us to accept the child as he is and to put up with it.โฉ paypal.com/donate/?campaiโ€ฆ
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

2. A year later, American scientists found a drug (Ravikti) that can help make my daughter an ordinary child. She will be able to talk, play with children and much more that ordinary children can do. But these options are still closed to us.โฉpaypal.com/donate/?campaiโ€ฆ

2. A year later, American scientists found a drug (Ravikti) that can help make my daughter an ordinary child. She will be able to talk, play with children and much more that ordinary children can do. But these options are still closed to us.โฉpaypal.com/donate/?campaiโ€ฆ
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

1. Every day I fight for my daughter, I fight with her against her illness. Sometimes I get very tired and I don't have enough strength. Every minute I think about how to raise money to buy her medicines. โฉ paypal.com/donate/?campaiโ€ฆ #VarัƒushaMayer #SLC6A1 #EpilepticEncephalopathy

1. Every day I fight for my daughter, I fight with her against her illness. Sometimes I get very tired and I don't have enough strength. Every minute I think about how to raise money to buy her medicines. โฉ paypal.com/donate/?campaiโ€ฆ #VarัƒushaMayer #SLC6A1 #EpilepticEncephalopathy
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

2. Our family could always earn money for her treatment, but the war took this opportunity away from us. Please retweet this message so that more people can see it and help Varyusha. โฉ varyushamayer.taplink.ws #VarัƒushaMayer #SLC6A1 #EpilepticEncephalopathy

2. Our family could always earn money for her treatment, but the war took this opportunity away from us. Please retweet this message so that more people can see it and help Varyusha. โฉ varyushamayer.taplink.ws #VarัƒushaMayer #SLC6A1 #EpilepticEncephalopathy
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Now Varya has no training (they stayed in Ukraine), but we walk 2.5 km every day - this helps her to be strong and enduring. This is important for her health, because she always had weak muscles. You can learn more about Varya's disease and help her here:birdsforsofia.org/help-varvara

Now Varya has no training (they stayed in Ukraine), but we walk 2.5 km every day - this helps her to be strong and enduring.  This is important for her health, because she always had weak muscles.  You can learn more about Varya's disease and help her here:birdsforsofia.org/help-varvara
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Varya does not speak and cannot read (illness takes away many opportunities from her), but she loves books. Her favorite books look really bad (she kisses them and crumples the pages). With your help, we can cure Varya: paypal.com/donate?campaigโ€ฆ

๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Today is World Daughter Day!!! I congratulate all parents and wish health and happiness to your daughters. I love my girls endlessly. paypal.com/donate?campaigโ€ฆ

Today is World Daughter Day!!!  I congratulate all parents and wish health and happiness to your daughters.  I love my girls endlessly.         paypal.com/donate?campaigโ€ฆ
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Today is the day we've been waiting for. Varyusha started treatment today. Friends support us with prayers and may good luck come with us. You can help us put together the entire course of treatment here (share this information): varyushamayer.taplink.ws

Today is the day we've been waiting for.  Varyusha started treatment today.  Friends support us with prayers and may good luck come with us.  You can help us put together the entire course of treatment here (share this information): varyushamayer.taplink.ws
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

I love my daughter's smile. Every day, our family does everything possible so that there are more smiles than tears, and the disease will someday become just a memory. Your help is very important to us: PayPal: [email protected]

๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Varya began to play with toys. Before, she looked at them and did not know what to do with them. This is a new stage in development. I hope Ravikti will create the miracle we have been waiting for.

๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Congratulations on the Independence Day of Ukraine. I believe that everything will be fine, that our people will win this cruel war, that our children will have a childhood again. varyushamayer.taplink.ws

Congratulations on the Independence Day of Ukraine.  I believe that everything will be fine, that our people will win this cruel war, that our children will have a childhood again. varyushamayer.taplink.ws
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Friends, your help is important for Varyusha and I want you to see the result of Ravikti's rehabilitation and treatment. These videos were recorded before the treatment (three months ago).

๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

This video was recorded after the rehabilitation and treatment of Ravikti. The result is impressive. My heart is full of hope. We continue to raise funds for treatment and rehabilitation. You can help Varyusha: varyushamayer.taplink.ws

๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

September 1 Varyusha goes to school in Belgium, she will be there without me every day for 2 hours. I never left her alone, I hope everything goes well. In the meantime, we continue the treatment of Ravikti and enjoy the last summer days

September 1 Varyusha goes to school in Belgium, she will be there without me every day for 2 hours.  I never left her alone, I hope everything goes well.  In the meantime, we continue the treatment of Ravikti and enjoy the last summer days
๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Thanks to Ravikta's treatment, our little daughter started looking into my eyes. It is such a happiness to look into her blue eyes, to feel her spiritual presence. Thanks to everyone who helps our family and makes it possible to treat Varyusha. varyushamayer.taplink.ws

๐Ÿ‡บ๐Ÿ‡ฆ MAIIER OLEKSANDRA ๐Ÿ‡บ๐Ÿ‡ฆ (@varyushamaiier2) 's Twitter Profile Photo

Varyushinskaya specialized school for children with special needs. Her first day of meeting teachers and children. She still doesn't know much. I hope her treatment helps her learn

Varyushinskaya specialized school for children with special needs.  Her first day of meeting teachers and children.  She still doesn't know much.  I hope her treatment helps her learn