🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Loving the dog garden project Monty Don this is a favourite picture of me and my brother Mark who had Huntington’s in the garden with our beautiful border Sybil . The inspiration for #sybilontour which raises awareness of #huntingonsdisease x both much loved & missed x

Free event 💻 How do we improve joined-up care for individuals and families living with long term neurological conditions? Link to find out more and register 👇 mssociety.org.uk/supporting-som… #integratedcare #neurodegenerativediseases Long Term Conditions Research Group UoS University of Southampton The Doctoral College

We will be online at 7pm to discuss #integratedcare for people living with long term #neurologicalconditions with the MS Society UK To register visit the link 👇 #joinedupcare #personcenteredcare

Great overview of #Strasbourg2024 conference and very useful table on current trials and countries recruiting #research Thank you for including #integrateHD showcasing the needs of #huntingtonsdisease families in England. Read all about it here: ehdn.org/newsletter-arc…

Health is not a medical issue, it’s a social & political issue. If we want 2 enhance health & wellbeing we need 2 relocate authority from the institutional world of programmes & services to living communities where interdependence is found.

Join us! Are you passionate about the brain, and want to know how neuronal circuits influence behavior? Do you want to pursue a PhD testing the potential of modulating serotonin circuits to revert emotional/ cognitive dysfunction in neuropsychiatric disorders? Then let’s talk! pic.x.com/dEKL9qSM74

This is truly amazing news! Not so much about the trial but what it means broadly speaking for Huntington's disease trials delivery and evaluation 🙏 happy days! #huntingtonsdisease

Want to know more about our Black Futures PhD scholarship, which offers full funding for UK Black researchers to do a PhD at Southampton? Join our webinar to find out about the eligibility criteria & application process Taking place on Mon 13 Jan, 2-3pm: bit.ly/3DJaS1U

For health professionals with a patient facing role working in the UK #ratialbias #survey #research #NHS Can you help with Vittoria Sorice 'reseach survey?👇🙏

I recently got to sit down with Thom Hart of the Critical Path Institute to discuss mental health, advocacy and self-care. You can read the post Thom did here: c-path.org/living-with-hu… #huntingtonsdisease #raredisease #hdwarrior #patientadvocate #mentalhealth #advocacy #selfcare

It shouldn't be up to relatives to teach professionals about their disease Astri Arnesen 👏 Specially when families are not empowered to speak for the needs of their loved one, and their own needs. See @ERN_RND 🧠 #patientjourney and learn about #huntingtonsdisease

How many days are you "completely free of headache or feel "crystal clear" ? #migraine #Neurology

Goodness me, Huntington's Disease Association, no pressure 😅 I am very excited to be sharing my findings on the Integrate-HD project with the #huntingtonsdisease community on the 10th April. Grab a 🥪 and join us online for a dynamic discussion. Come to agree and disagree! 😉 #integratedcare

Are you a #palliativecarenurse working in the UK, caring for adult patients in the community? This research needs you! #PalliativeCare #nurses More info👇 forms.office.com/pages/response…

Tomorrow I will be with Huntington's Disease Association and the #huntingtonsdisease community discussing the findings from the Integrate-HD #research project and ways to improve HD care! I am sure both people living with or working with HD, will have many thoughts to share! Register 👇and join us!