Joanne Lee from Newcastle University talked at an ERICA webinar about ACT concept (Advisory Committees for Therapeutics). gotostage.com/channel/a6b8a9…

Quince Therapeutics Announces First Patient Dosed in Phase 3 Clinical Trial of EryDex for the Treatment of Ataxia-Telangiectasia sfbn.org/san-francisco-… #biotech #news

Major media attention for Ataxia today! Bill Nye appears on CNN & opens up about how Ataxia impacts his family. Skip to 4:33 to see them talk about International Ataxia Awareness Day! Thank you for your awareness efforts Bill Nye! Check it out here: koamnewsnow.com/news/national-…

🔔Today is the International Ataxia Awareness Day. 📌Find the Ataxia Global Initiative (AGI) stand at the ICAR 2024 on 12-15 November in London and speak with us about improvement of trial readiness for ataxias. ataxia-global-initiative.net ataxiacongress.org

Somatic repeat expansion field is getting more interesting!! David Pellerin⁩ ⁦National Ataxia Foundation⁩ ⁦Ataxia Global Initiative⁩ ⁦FA Research Alliance⁩ #Sca27b ⁦Bill Nye⁩ “Somatic instability of the FGF14-SCA27B GAA•TTC repeat with expansion in cerebellum” academic.oup.com/brain/advance-…

Check out the video where Bill Nye provides an explanation of ataxias. The AGI deeply appreciates you sharing that valuable resource—thanks so much for contributing! Bill Nye National Ataxia Foundation youtube.com/watch?v=0QsrCL…

Please see the offer of American Society for  Experimental Neurotherapeutics ASENT.org: 2025 Clinical Trials Course 10-11 March 2025, Bethesda MD 💡Apply now asent.org/event-5841239

In a press release this week, Lexeo Therapeutics reported that they have completed enrollment of LX2006 SUNRISE-FA Phase 1/2 trial and reached alignment with FDA on an accelerated approval pathway. Click here to read the full press release: buff.ly/4fr91fX

Last week, Holm Graessner shared insights at ICAR about AGI's activities advancing trial readiness for ataxia therapies. Discover how the Ataxia Advisory Committee for Therapeutics (Ataxia ACT) can support your drug development program: ataxia-global-initiative.net/ataxia-act/ #ClinicalTrials

🎉 We’re delighted to share that the first Ataxia ACT meeting took place in London ahead of ICAR! 🚀 Excited to work with this multidisciplinary expert committee to advance drug development programs for ataxias. Learn more about our work: ataxia-global-initiative.net/ataxia-act/ #RareDisease

Register for the webinar Neurological Disorders - Harmonisation of Imaging in Clinical Trials organized by Ixico:

Register for the upcoming AT Clinical Research Conference! June 25-27, Loughborough, UK Early bird registration till ***February 28***

Holm Graessner, Head of AGI Office, talked today at the MEP meeting “Policy Responses to Rare Neurological Challenges” at the EU Parliament. organized by European Federation of Neurological Associations (EFNA)

📢Attend our upcoming webinar by Roberto Rodriguez-Labrada (Holguin, Cuba) This webinar is part of the AGI's webinar series on preventive trials in SCAs. Register here: eveeno.com/314431741