AMARAPE (@assocamarape) 's Twitter Profile
AMARAPE

@assocamarape

Association loi 1901 qui vient en aide aux personnes atteintes des maladies rares du péritoine, membre de #AllianceMaladiesrares et #RéseauRenape #RareDiseases

ID: 993231077719330817

linkhttp://www.amarape.com calendar_today06-05-2018 20:48:37

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Fondation Maladies Rares (@fdmaladiesrares) 's Twitter Profile Photo

Lancement de l'Appel à projets « Identifier des molécules thérapeutiques pour les maladies rares » 2025 Date limite de soumission : 4 septembre 2025, 17h00 (heure de Paris). Pour plus de détails 🔗 fondation-maladiesrares.org/le-financement…

Lancement de l'Appel à projets « Identifier des molécules thérapeutiques pour les maladies rares » 2025

Date limite de soumission : 4 septembre 2025, 17h00 (heure de Paris).

Pour plus de détails 🔗 fondation-maladiesrares.org/le-financement…
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

In recognition of Small Charities Week 2025, we share with you a brief overview of Our Impact, best summed on the last page by our users. #smallcharitiesweek2025 #pseudomyxomasurvivorcharity #pseudomyxomaperitoneiawareness #appendixcancerawareness

Peritoneal Surface Oncology Group International (@psogi_ec) 's Twitter Profile Photo

#PSOGI2025 #PSOGIBarcelona 🏃‍♂️ early bird registrations till 🗓️ 31st July A 🔟 - point guide to the congress ⭐ 1️⃣ 🌟 For beginners in PSM, young surgeons 🧒 , young radiologists 🩻 , young pathologists 🔬 🟡 The congress is preceded by a video 📽️ workshop by Paul H Sugarbaker &

#PSOGI2025  #PSOGIBarcelona 🏃‍♂️ early bird registrations till 🗓️ 31st July
A 🔟 - point guide to the congress 

⭐ 1️⃣ 🌟 For beginners in PSM, young surgeons 🧒 , young radiologists 🩻 , young pathologists 🔬 

🟡 The congress is preceded by a  video 📽️ workshop by <a href="/PSugarbaker/">Paul H Sugarbaker</a> &amp;
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

At PSOGI Congress 2025 we are introducing a Patient Charter. Driven by Santiago Gonzalez Moreno, MD, Madrid, & Sandra Lara de Liz, #Asociacionperitoneum, in collab with #ACPMP, #Amarape, #MesotheliomaUK, #PALS, #PMPContactGroup & #pseudomyxomasurvivor. #psogi #rarecancer

At PSOGI Congress 2025 we are introducing a Patient Charter. Driven by Santiago Gonzalez Moreno, MD, Madrid, &amp; Sandra Lara de Liz, #Asociacionperitoneum, in collab with #ACPMP, #Amarape, #MesotheliomaUK, #PALS, #PMPContactGroup &amp;
#pseudomyxomasurvivor.
#psogi #rarecancer
Mesothelioma UK (@mesouk) 's Twitter Profile Photo

Ready for the ultimate adventure? 🌍🐪 Join the seven-day #SaharaTrek with Discover Adventure for Mesothelioma UK 💙 Trek dunes, discover fossils, and raise life-changing funds. To find out more: ow.ly/ojQ050Wp8K4 #DiscoverAdventure #FundraisingForGood

Ready for the ultimate adventure? 🌍🐪

Join the seven-day #SaharaTrek with Discover Adventure for Mesothelioma UK 💙

Trek dunes, discover fossils, and raise life-changing funds.

To find out more: ow.ly/ojQ050Wp8K4

#DiscoverAdventure #FundraisingForGood
Appendix Cancer PMP Research Foundation (@acpmpresearch) 's Twitter Profile Photo

Facing appendix cancer brings tough decisions & emotions for patients & caregivers. Join us for a convo with Drs. Greenbaum & Kopecky on what to expect before surgery & the important role caregivers play. This free webinar includes a live Q&A - Register: events.zoom.us/ev/AkYvSm_lqBi…

Facing appendix cancer brings tough decisions &amp; emotions for patients &amp; caregivers. Join us for a convo with Drs. Greenbaum &amp; Kopecky on what to expect before surgery &amp; the important role caregivers play.

This free webinar includes a live Q&amp;A - Register: events.zoom.us/ev/AkYvSm_lqBi…
Fondation Maladies Rares (@fdmaladiesrares) 's Twitter Profile Photo

RENCONTRES DES MALADIES RARES 2025 🌞 Profitez de l'été pour vous inscrire : rareparis.com/inscription/ 🎯 Découvrez les sessions sur le thème "Génétique : Évolution et révolution" : rareparis.com/programme/ #maladiesrares

RENCONTRES DES MALADIES RARES 2025

🌞 Profitez de l'été pour vous inscrire : rareparis.com/inscription/

🎯 Découvrez les sessions sur le thème "Génétique : Évolution et révolution" : rareparis.com/programme/

#maladiesrares
Appendix Cancer PMP Research Foundation (@acpmpresearch) 's Twitter Profile Photo

🌟 Coming Soon 🌟 This August, join the Amber Circle: our monthly giving community fueling year-round awareness, research and support for appendix cancer patients and families.

🌟 Coming Soon 🌟 

This August, join the Amber Circle: our monthly giving community fueling year-round awareness, research and support for appendix cancer patients and families.
Appendix Cancer PMP Research Foundation (@acpmpresearch) 's Twitter Profile Photo

🎗️ Appendix Cancer Awareness Month starts in just 3 days! This August, join us to raise awareness, share knowledge and drive progress for this rare and serious disease. See what’s happening and how you can get involved: acpmp.org/august/appendi…

🎗️ Appendix Cancer Awareness Month starts in just 3 days!

This August, join us to raise awareness, share knowledge and drive progress for this rare and serious disease.

See what’s happening and how you can get involved: acpmp.org/august/appendi…
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

📷📷 Something rare is hiding inside… August is Appendix Cancer Awareness Month. Stay tuned to unwrap the facts, share the stories, and help us raise awareness of this often-overlooked cancer. #AppendixCancerAwareness #PseudomyxomaPeritonei #ZebrasNotHorses #RareButReal

📷📷 Something rare is hiding inside…
August is Appendix Cancer Awareness Month.
Stay tuned to unwrap the facts, share the stories, and help us raise awareness of this often-overlooked cancer.
#AppendixCancerAwareness #PseudomyxomaPeritonei #ZebrasNotHorses #RareButReal
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

We have places but you need to be quick! The Royal Parks Half 2025, is on the 12th Oct. Would you like to run & fundraise for us? The route through London's parks has a fantastic atmosphere. Royal Parks Half @pmpsurvivor Apply here - pseudomyxomasurvivor.org/.../royal-park…...

Appendix Cancer PMP Research Foundation (@acpmpresearch) 's Twitter Profile Photo

✨We're Lighting Up Amber for Appendix Cancer Awareness!✨ This August, landmarks across 4 countries will light up to honor those affected by this rare disease. See the growing list and learn how to get involved: acpmp.org/lightup #AmberForAppendixCancer #TurnAugustAmber

✨We're Lighting Up Amber for Appendix Cancer Awareness!✨

This August, landmarks across 4 countries will light up to honor those affected by this rare disease.

See the growing list and learn how to get involved: acpmp.org/lightup

#AmberForAppendixCancer #TurnAugustAmber
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

In 2013, we established Aug as PMP Awareness Month. It has evolved into Appendix Cancer Awareness Month, garnering recognition from orgs & indivs around the globe, we couldn't be more delighted. #pseudomyxomasurvivorcharity #pmpawarenessmonth #appendixcancerawareness #rarebutreal

In 2013, we established Aug as PMP Awareness Month. It has evolved into Appendix Cancer Awareness Month, garnering recognition from orgs &amp; indivs around the globe, we couldn't be more delighted. #pseudomyxomasurvivorcharity #pmpawarenessmonth #appendixcancerawareness #rarebutreal
Appendix Cancer PMP Research Foundation (@acpmpresearch) 's Twitter Profile Photo

💛 This August, join the Amber Circle, our monthly giving community dedicated to sustaining awareness, funding research, education and supporting patients and families all year long. 🔗 secure.acpmp.org/campaign/67288…

💛 This August, join the Amber Circle, our monthly giving community dedicated to sustaining awareness, funding research, education and supporting patients and families all year long.

🔗 secure.acpmp.org/campaign/67288…
Abdominal Cancers Alliance (@abd_cancers) 's Twitter Profile Photo

August 2025 is Appendix Cancer Awareness Month! ❓Did you know❓ Appendix cancer is rare and often misdiagnosed, making it important that specialized peritoneal surface malignancy surgeons and pathologists carefully review your case. abdominalcancers.org

August  2025 is Appendix Cancer Awareness Month! 

❓Did you know❓
Appendix cancer is rare and often misdiagnosed, making it important that specialized peritoneal surface malignancy surgeons and pathologists carefully review your case.

abdominalcancers.org
Pseudomyxoma Survivor (@pmpsurvivor) 's Twitter Profile Photo

This August, Pseudomyxoma Survivor Appendix Cancer PMP Research Foundation @alliance82039 PMP Pals Network AMARAPE Asociación Peritoneum stand together to increase understanding & support for people affected by appendix cancer & the related condition pseudomyxoma peritonei (PMP). #appendixcancerawarenessmonth

This August, <a href="/PMPSurvivor/">Pseudomyxoma Survivor</a> <a href="/acpmpresearch/">Appendix Cancer PMP Research Foundation</a> @alliance82039 <a href="/pmppalsnetwork/">PMP Pals Network</a> <a href="/AssocAmarape/">AMARAPE</a> <a href="/APeritoneum/">Asociación Peritoneum</a> stand together to increase understanding &amp; support for people affected by appendix cancer &amp; the related condition pseudomyxoma peritonei (PMP).
#appendixcancerawarenessmonth