Wenn schon NICE nicht den Mut hat, den fehlgeleiteten BPS-Weg bei #MECFS zu beenden, dann sollten zumindest diejenigen, die den Betroffenen wirklich helfen wollen, klar sagen: #MECFS ist keine psychische Erkrankung. #GET und #CBT fügen Schaden zu.

So disappointed that NICE decided to pause publishing their revised guidelines for #MECFS. They've reviewed the evidence: Graded exercise doesn't work & CBT is not an adequate "treatment"!

Pls RT: Developed #MEcfs after Long Covid? Sign up for the world's largest genetic study into ME/CFS. We're now also including up to 5k people who developed the illness after #LongCovid. Register your interest and you'll be first to know when we launch: decodeme.org.uk

As a reminder, we are looking for postdocs to join the ME/CFS team. Join our R01 funded project with Ron Davis & Mark Davis on Determining Immunological Basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome web.stanford.edu/group/steinmet…

Applications now open for Wellcome Hosts, Pathogens and Global Health 4-year PhD programme The University of Edinburgh WT-HPGH Fully-funded and open to all students from the UK and overseas. Apply by 11 January 2022 for entry in October 2022. All details ow.ly/Dxjw50Gqwa9

We’re pleased to introduce AIRRSHIP, a tool for simulating human B cell receptor repertoire sequences biorxiv.org/content/10.110…. AIRRSHIP is Python-based (run at command line or import as module), no dependencies, very easy to install. Docs @ airrship.readthedocs.io

I'm honored and delighted to be the first Clare Francis Research Fellow funded by Action for ME! We'll do everything we can to make this project a success and contribute to better understanding the biology of ME/CFS.

A huge congratulations to Audrey Ryback who has been offered the very first Clare Francis Research Fellowship funded by Action for ME supervised by @CGATist 👏#MECFS

We believe we now have enough healthy participants and are stopping new invitations. Thank you so much to everyone who spread the word and who took the time to sign up! Our small team is working through all of the sign ups so far. We are really grateful for all your support!

With your help, #DecodeME has built the world’s largest data set on ME/CFS. We are now welcoming data access applications from researchers who wish to use this in studies into ME/CFS and other diseases. Find out more ➡️ shorturl.at/wDEKQ

Thank you so much @sjmnotes for writing about our project in your excellent blog. We really enjoyed discussing this work with you and will do everything we can to make it a success!

@PSPForMECFS has just launched a researcher toolkit for #MECFS. ➡️ shorturl.at/5qxYT Here researchers can find funding opportunities, guides to embedding PPI, researcher application support & more.

Excited to be presenting on how we are tackling the question: "Do ME blood factors change the behaviour of cells?"