fda.gov/patients/learn…. It's official! Thanks FDA Patient Info

I never thought I'd see the day that the NFL becomes a leader in basic human decency. The adoption of this rule goes beyond what many, if not most, other employers across all industries have adopted.

Jean C9orf72 I AM ALS Daniel Barvin Mindy Uhrlaub Tucker Olson Michael Cosgray amy leigh Susan Baker Greg Bauer So proud to be on this team ❤️❤️❤️❤️

I’m grateful to have Jean C9orf72 fighting in our corner, tirelessly, ensuring our voices are heard. She is our Ali.

Desire for presymptomatic treatment survey results ! Top line: We want it, and we are willing to hazard risks to get it! Congrats to my co-authors ⁦Paul Wicks⁩ ⁦Tucker Olson⁩ and Amy who I can’t tag ! Gratitude to l the whole familial team and the respondents!

endpts.com/fda-advisors-u…

Almost 4 years into a 6-12 month life expectancy, Chris Snow is still skating in parents vs kids hockey games because #TofersenWorks. U.S. FDA, #ApproveTofersen.

Almost 4 years into a 6-12 month life expectancy, this front yard soccer game is an Easter miracle made possible because #TofersenWorks. Sound up to hear our 11-year-old at the end say it all: “Dad’s just got too strong legs.” ❤️ U.S. FDA, #ApproveTofersen.

Traveling with #ALS can be challenging. But when #tofersen can extend your life, you make it happen U.S. FDA CDER Director Dr. Robert M. Califf #EndTheLegacyApproveTofersen

As a Ball State alumni and Fort Wayne native, it is awesome to see current BSU students fundraising for ALS. wane.com/top-stories/bi…

ALS in its most advanced stages changes not only your perspective on life but the core essence of who you are. When I lost my ability to walk during my first year of symptoms, I was still concerned of my new image as a disabled person and how I was seen by society. I bought a

Kissed by puppy Rose(y)

First jalapeno pepper batch from my home garden this season. Of course, I had to immediately turn them into jalapeno poppers.

Home garden banana pepper poppers stuffed with buffalo chicken fixings. 🔥🔥

Weird flex, but this is the most successful houseplant that I've grown. I'm proud of it and have to share. I bought it from Wally World in the Spring of 2021, when it was around a foot tall. The smart soil moisture sensor is a recent addition but has been extremely helpful!

Tried to trick Rosie but she is too smart for that. I sure miss my (partially blind) ol' Lady. R.I.P.

In honor of Veterans Day, I'm sharing a video interview of my paternal grandfather, Richard B. Olson. My grandfather fought for our country during WWII, in the Battle of the Bulge. This was recorded when I was in middle school. youtu.be/yU75lmWO9dI

My bunica's (grandma) return to our family's Romanian roots, Ernea, Sibiu, Romania, just prior to her (familial) ALS diagnosis. Our family is affected by 'the Balkan' SOD1 variant, L144F/L145F. youtu.be/QSV9gAj90AA?si…

This morning ICE & FBI Denver were attempting to arrest Jose Reyes Leon-Deras, a criminal alien from El Salvador who is convicted of and wanted for child rape in Italy. During our surveillance of Leon, members of Colorado Rapid Response arrived on scene and alerted him...

to law enforcements presence which allowed him to escape arrest. Groups like this interfere with ICE’s ability to keep communities safe. If you know his whereabouts, do not approach, if seen, instead report all info to ICE at 1-866-347-2423