“There’s a choice we all have, but few will apply it. It is a luxury to pursue what makes us happy, but it is our moral obligation to pursue what is meaningful. Jordan Peterson *|mailchi.mp/joshuafrase/pu… #MyotubularMyopathy #MTM #CNM

Wishing you and your loved ones a holiday full of miracles! *mailchi.mp/joshuafrase/ho… #MyotubularMyopathy #Hope #ChangeStartsWithOne #RareDiseases

There is so much good that comes into our lives by helping others and the #Global #communities we serve. #CharitableGiving #YearEndGiving #charity pleasedonate.org

Happy Birthday Son, I Hope We're Making you Proud! In honor of our son, join us in celebrating and remembering Joshua on his 25th birthday. |mailchi.mp/joshuafrase.or…|** #MyotubularMyopathy #ChangeStartsWithOne #Genetherapy

Advancements being made for our CNM/ MTM community. Well done! #myotubularmyopathy #incidence #prevalence

The Essence of Life youtu.be/-uJdoFIBXTE via YouTube #GlobalRareDiseaseDay2020 Today we honor this community ~ Know we see you, we hear you, we serve you, because we are you! #MyotubularMyopathy #CNM #MTM #ChangeStartsWithOne #Community

We live in exciting times! Congratulations Team Dynacure #myotubularmyopathy #CNM #MTM

Amid COVID 19 Crisis, Joshua Frase Foundation Leads Search Spanning Two Continents to Deliver Ventilator to Ailing Child in Ecuador - mailchi.mp/joshuafrase/am…

Please consider this meaningful initiative for Wilson! This child is worth the fight

Thank you Lisa Nickerson for your years of love and support! #myotubularmyopathy #Raredisease

Alison Frase: Mother on a Mission ~ Live with Lisa youtu.be/OJj_pV4boLo via YouTube. A brief overview on how JFF’s efforts brought an ultra rare disorder to #ClinicalTrials #GeneTherapy #Audentes #PatientAdvocacy #MiracleDog

A Tale of Two Clinical Trials: Gene Therapy for a Rare Disease and a Vaccine for COVID-19 - DNA Science dnascience.plos.org/2020/07/16/a-t… #Genetherapy #Myotubularmyopathy #Audentes #Clinicaltrial #COVID19

A story of perseverance and teamwork ! It was an honor and a privilege to work with the Tanner Pharma Group and ZNM-Zusammen Stark, to allow this family in Equator the ability to bring Wilson home and spare him the life in an institution. mailchi.mp/joshuafrase/se… |*

JFF's 2020 Mission ~ The Fight is Not Over! Now we are at a crossroad, a point of inflection for the future of gene therapy, for MTM and countless other indications. We need your support! #GeneTherapy #clinicaltrials #Children youtu.be/QK7m55N_eXk via YouTube

The Fruit of Generosity! As we approach the most philanthropic day of the year, Giving Tuesday, December 1st, we wanted to share a few of our accomplishments we achieved in 2020, against all odds *|mailchi.mp/joshuafrase/th… #GivingTuesday

Season of Blessings - mailchi.mp/joshuafrase/se…

Tamar Rubinstein Yaffa Rubinstein Peter Robinson Melissa Haendel HPO Monarch Initiative National Library of Medicine NCATS Rare Disease Day CRMO SJIA Foundation CRMO Foundation Julie McMurry, MPH We salute our rare disease patients and their families who courageously advocate for change through Open Science. Honored to collaborate on this paper. #RareDiseaseDay2021

An important interview with two influential Grandfathers in the @genetherapy space for Alex O'Meara AT132 for XLMTM Astellas Gene Therapies .. My takeaway - we cannot be silos of data when precious lives are at stake!! Asklepios BioPharmaceutical, Inc. (AskBio) Passage Bio Human Gene Therapy NIH

Our Goal; Lasting Change -The journey has been long, and the fight is not over! You have trusted us before: we need your investment in our vision, fortitude and resolve now more then ever. Always for the children. mailchi.mp/joshuafrase.or…

Happy Birthday Son - Life is a Gift! - Joshua's life was a door to great expectations and a vehicle of hope. Until we see you again son. Much Love mailchi.mp/2fe1dbd29599/h…