Hi 🌎 I’m now back in my room. Whilst under general anaesthetic did hip/back x-rays, teeth x-ray, teeth cleaned, 1 x filling added, eyes checked, bloods taken & an ECG. ❤️ to all at SBH for all your help organising 💪 as simple things are always harder 4 me #ForwardAlwaysForward

When it’s this hot 🇬🇮☀️🥵 the best thing 4 me 2 do is stay in the shade, admiring the bald1’s endeavours in ‘my’ garden, with a cold 🥤, relaxing with my feet up, 🤔 about what’s important in life, my family & ofc having a cheeky🍦 Hope u all have a ❤️ w/end #ForwardAlwaysForward

Hi 🌎 time to relax again here in 🇬🇮 🥵, but have had to keep an eye on the bald1, making sure he cuts ‘my’ grass how I like it. Had to tell him he’d missed a few bits, but have to admit that he’s improving, be it slowly 😂😜 #TeamSean #ForwardAlwaysForward

Happy 20th birthday to my little sister @katietunbridge Growing up, I’ve seen u blossom into a beautiful, caring, strong (sometimes mad 😜) woman. You’ve always got my back ❤️ & I’m so proud that my #AS has pushed u towards your Uni 📚 & career aspirations ❤️#ForwardAlwaysForward

Getting into this Olympics #AS though I wish I could run like that 🤬

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I have discovered the cure for jet lag ✈️, it’s called #AngelmanSyndrome. After years of disrupted sleep, complete sleepless nights & tiredness on a biblical scale, travelling to 🇦🇺 just seems like Groundhog Day for an #AS parent 💪😂 #Wibble

🐔🎄🎪Christmas Carnival & Farm Fun🎪🎄🐔 Come and join us to kick off Christmas at our Christmas Carnival & Fun on the Farm event! On Sunday 1st December, from 10am - 4pm, PossAbilities outdoor spaces will be open to the public to come down and enjoy a day of fun, games, farm

Today isn’t just Christmas Eve, it’s also my birthday 🎂. Today I’m 26, I know I look younger 😜😂 Like I will, I hope everyone has a lovely Christmas with family & friends ❤️ & you eat loads 🍗🍖🍤 cause I certainly will 😜 #ForwardAlwaysForward #TeamSean #MerryChristmas

Hi 🌎 it been a while. I hope everyone has had a lovely day ❤️ #ForwardAlwaysForward

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So proud of my little sister @katietunbridge passing her degree with a 1st & graduating yesterday from Liverpool Hope University in Education & Special Education Needs LiverpoolHopeEducation 💪💪 I think I might have helped with her motivation 😜❤️ #AngelmanSyndrome #ForwardAlwaysForward

A 🔥 one in 🇬🇮 today, so getting some lengths in with the bald one 💪❤️ #TeamSean #ForwardAlwaysForward #FamilyTime #AngelmanSyndrome

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3 day warning! I might go to the Europa Pool or 1 of our many beaches or the GASA pool or might just be leaving home, if that’s ok 🤪 & I’m taking my “normal” dad & told him to not 💩 or 🤮 in the water, cause u know these old, bearded, bald yanito viejos can’t control their 💩

Made by little sis/AI, with 👶🏻 & adult me 25yrs later. My #AngelmanSyndrome journey has been an eventful 1 🤪 if I could I’d tell my 👶🏻 self that 😴 improves, you’ll ❤️ Mcd’s, LFC will win the ⚽️🏆 again & that our parents & siblings are trying their best ❤️ #ForwardAlwaysForward