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Little surprise for you! My cover of Frozen will be out everywhere on Friday 🩵

While Vertex Pharmaceuticals promotes itself at conferences, thousands of CF families are still being denied access to lifesaving meds. We will be here to challenge them at every cystic fibrosis conference, until every patient, everywhere gets access ⬇️. #ECFS Vertex Save Us

I urge the Government to back my Planning & Infrastructure Bill amendments. We were promised a win-win for nature and growth - we got a developer’s charter that will destroy nature. Let’s change course and deliver for workers and wildlife. theguardian.com/politics/2025/…

Exercise is ever more important as people with CF are getting older. Not only to address cardio-metabolic consequences of aging but to also address mental health- Dr Donald Urquhart #ECFS2025 #thefutureofCF

Very interesting focus on maintaining #CF health in pregnancy and parenthood from Clinical Specialist Physiotherapist, Claire Reilly. St Vincent's University Hospital (SVUH) #ECFS2025 #TheFutureofCF #CysticFibrosis #CFIreland

A menopause focused mindset is needed in care of women with CF as they become older, as many symptoms of menopause overlap with symptoms of #CF... Dr Jennifer Taylor-Cousar on Day 1 of #ECFS2025

Gayle Pledger Vertex Pharmaceuticals Vertex Save Us Just Treatment 💊 So shameful. Bryon why won’t you meet with parents? This happened at @nacfc too

I presented my petition to Parliament urging changes to the Planning and Infrastructure Bill. We are custodians of our natural environment, it is our national heritage. It’s not too late for the Government to accept my proposals. We must not let developers destroy nature.

Thank you Vertex Save Us for your tenacity, your courage, and your righteous indignation. Until everyone who needs CF drugs has access to those drugs, the story of cystic fibrosis remains one of sorrow.

Crazy Clips Klara, with Down syndrome and alopecia, has a smile that's absolutely precious! ❤️

#ecfs2025

🚨 BREAKING: today #cysticfibrosis mums stage a powerful intervention at Vertex Pharmaceuticals’s stand. Gayle 🇬🇧, Urtė 🇱🇹 & Ajsela 🇦🇱 laid a wreath for children who died waiting for #Trikafta. Backed by clinicians, we demand Vertex Pharmaceuticals act now, access for all! #ECFC2025

We came here to ask Vertex why families are still being denied access to a drug that costs over $300,000 per patient per year but can be made profitably at less than $6,000 a year. Instead, we were shut out. They chose who could speak. #ecfs2025 instagram.com/p/DKhAnpCTJsE/

About 1:00pm I’ll be appearing on Jeremy Vine | Here, on Tiktok, Insta & Facebook show BBC Radio 2 taking about the water industry. 10 of the water company fat cat CEOs were asked to come and debate it with me. They all refused. Transparency, accountability? There is none. All we are left with is a failed

The swift brick amendment will be voted on next week. Please use your voice. Email [email protected] just saying PLEASE MANDATE SWIFT BRICKS!

This is good news.👇 Please write to your MP too if you can. The more people sending in concerns together makes a louder voice 📣