Rhiann Johns (@serenebutterfly) 's Twitter Profile
Rhiann Johns

@serenebutterfly

Documenting life with #FND or #FunctionalNeurologicalDisorder. Articulating what it is to love with a #chronicillness and #chronicpain. TV fanatic!
#spoonie

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linkhttp://brainlesionandme.com calendar_today11-04-2009 13:24:39

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Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"It reopens the wound that living with a #chronicillness has created like a scab breaking open again and again. And the longer the worsening of symptoms lasts, the more it bleeds." brainlesionandme.com/deterioration-… via Rhiann Johns #ChronicallyIll #InvisibleIllness #Disability

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"My body is my home. It’s my only home. And I don’t feel safe in here." themighty.com/topic/chronic-… via The Mighty #ChronicIllness #ChronicPain #ChronicFatigue #ChronicallyIll #InvisibleIllness #ChronicLife

Han 🖤 (@spoonfulofhan) 's Twitter Profile Photo

“Be grateful that it isn’t worse” Disabled people are allowed to be angry. I don’t have to be thankful for what I was given. I don’t owe you inspiration or a constant uplifting smile on my face.

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"It is important to me to read every day with chronic illness so that it gives me a break from screens, but it also gives me a break from my thoughts." bloomingmindfulness.co.uk/reading-every-… via 🦋BeverleyButterfly🦋 #ChronicIllness #ChronicallyIll #Reading #MentalHealth #ChronicLife

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"Like your phone or laptop, your battery can drain faster than your patience at a waiting room, recharge slower than a sloth on a Sunday, and fluctuate wildly based on life’s demands." edsshare.com/post/battery-l… #Spoonie #ChronicIllness #ChronicallyIll #ChronicPain #ChronicLife

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"By building these skills, you can regain a sense of control and reduce the day-to-day impact of your illness." an-ideal-life.com/self-managemen… via Juliette @ An Ideal Life ✨ #ChronicIllness #SelfManagement #ChronicallyIll #ChronicLife

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I haven’t read Matthew Arlidge before, but I thoroughly enjoyed #EyeForAnEye. The book throughout was compelling and thought-provoking raising such important questions about the criminal justice system and the rehabilitation of serious offenders. A book that really makes you think! 📚

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"But hear me now: just because one part of the story is painful, doesn’t mean we pretend it's not there – and it doesn’t mean #joy can’t live there, too." rebekahtaussig.substack.com/p/dear-son-of-… #Disability #Disabled #DisabledWoman #DisabledLife

"But hear me now: just because one part of the story is painful, doesn’t mean we pretend it's not there – and it doesn’t mean #joy can’t live there, too." rebekahtaussig.substack.com/p/dear-son-of-…

#Disability #Disabled #DisabledWoman #DisabledLife
Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"Since becoming #chronicallyill, books have become even more crucial. #Books have become a magical portal allowing me to #escape the severe, debilitating #symptoms that are now my constant reality." brainlesionandme.com/representation… via Rhiann Johns #ChronicIllness #ChronicLife

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"Everyone keeps telling me to #relax, but yet I don’t remember what that feels like." themighty.com/topic/chronic-… via The Mighty #ChronicIllness #ChronicPain #ChronicallyIll #InvisibleIlness #ChronicLife

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"Learning how to fall has been one of my most important skills. It has taught me the right way to fall, and when you know the dos and don’ts of falling, you don’t get serious injuries as often." myrockindisabledlife.org/2024/09/08/how… via Sarah #Disability #DisabledLife #FallPrevention

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"But the boredom you feel when you’re sick at home by yourself, dealing with physical symptoms and difficult emotions every day, that can be mind-numbing and even soul-crushing." thehealthsessions.com/cozy-fall-acti… via The Health Sessions #ChronicIllness #ChronicallyIll #SelfCare #ChronicLife

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"I don’t get better at coping with it, either. In fact, I sometimes feel like I get more frustrated and jaded." savedbygraceblog.com/what-its-like-… via Christine Tolhurst #ChronicIllness #ChronicPain #ChronicallyIll #InvisibleIllness #ChronicLife

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

“Having a disability has its challenges, but it’s not bad, and it’s certainly not sad.” medium.com/skin-stories/a… #Disability #DisabledWoman #DisabledLife

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"Talking about my #illness and #disability reminds me of all the hurdles I still face, which is scary and overwhelming. At least by talking about something else, I can forget they even exist for a little while." brainlesionandme.com/sometimes-i-do… via Rhiann Johns #ChronicallyIll

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"Sometimes I feel more able to cope, and then I have times like I’m going through at the moment where I’m not feeling so resilient, and my physical health really affects my #mentalhealth." themighty.com/topic/function… via The Mighty #ChronicIllness #FND #FNDAware #Voices4FND

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Congrats VITO COPPOLA for becoming #CelebrityMasterChef Champion! As a lover of everything Italian cuisine, every dish he made looked absolutely delicious!

Rhiann Johns (@serenebutterfly) 's Twitter Profile Photo

"I hoped that death would come for me, to free me from the #pain and anguish that #illness so often creates. But as I awakened each morning, I felt an overwhelming disappointment that I was still alive." brainlesionandme.com/depression-the… via Rhiann Johns #SuicidePreventionMonth