SclerodermaRF (@sclerodermarf) 's Twitter Profile
SclerodermaRF

@sclerodermarf

Scleroderma Unit @royalfreenhs
Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer royalfreecharity.org/news/fundraisi…

ID: 915533769783771137

linkhttps://sclerodermarf.blogspot.com/ calendar_today04-10-2017 11:07:15

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Vasculitis - In memory of John Mills MBE 💙💚 (@vascuk) 's Twitter Profile Photo

Today is #VasculitisAwarenessDay #Vasculitis has the potential to affect any part of the body where there is a blood supply - especially the #ears #eyes #nose #throat #lungs #kidneys also the #heart & #CentralNervousSystem can cause severe #neuropathy #joint #muscle pain.

Today is  #VasculitisAwarenessDay #Vasculitis has the potential to affect any part of the body where there is a blood supply - especially the #ears #eyes #nose #throat #lungs #kidneys also the #heart & #CentralNervousSystem can cause severe #neuropathy #joint #muscle pain.
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

Fantastic day at the annual SclerodermaRF Royal Free London family day, 30 year anniversary yesterday 🥳 eternally grateful to Dr Howell and Dr Ramnani for their dedication to improving the Raynaud's experience and hopefully one day, #SclerodermaFreeWorld #RaynaudsFreeWorld 🙏

Fantastic day at the annual <a href="/SclerodermaRF/">SclerodermaRF</a> <a href="/RoyalFreeNHS/">Royal Free London</a> family day, 30 year anniversary yesterday 🥳 eternally grateful to Dr Howell and Dr Ramnani for their dedication to improving the Raynaud's experience and hopefully one day, #SclerodermaFreeWorld #RaynaudsFreeWorld 🙏
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

Wowee 9 years ago, my local paper The Southport Visiter! southportvisiter.co.uk/news/southport… June #SclerodermaAwarenessMonth 2025, 30 years SclerodermaRF Royal Free London youtu.be/guWYZ9E1G5A?si… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds

nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth 🌻 This infographic shows some facts about #scleroderma #Ssc blog.raynaudsscleroderma.co.uk #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

June #SclerodermaAwarenessMonth 🌻 This infographic shows some facts about #scleroderma #Ssc
blog.raynaudsscleroderma.co.uk
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
SclerodermaRF (@sclerodermarf) 's Twitter Profile Photo

June is #SclerodermaAwarenessMonth treatment options used, such as chemotherapy. We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW 🙏 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds Royal Free London

June is #SclerodermaAwarenessMonth treatment options used, such as chemotherapy. We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW 🙏 
 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds <a href="/RoyalFreeNHS/">Royal Free London</a>
SclerodermaRF (@sclerodermarf) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth This infographic shows the different types and their similar symptoms. #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

June #SclerodermaAwarenessMonth This infographic shows the different types and their similar symptoms.
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth Symptoms Infographic. Puffy fingers, shiny tight itchy skin, fatigue, difficulty swallowing, making a fist, msk pain blog.raynaudsscleroderma.co.uk/2017/04/sclero… #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure

June #SclerodermaAwarenessMonth Symptoms Infographic. Puffy fingers, shiny tight itchy skin, fatigue, difficulty swallowing, making a fist, msk pain
blog.raynaudsscleroderma.co.uk/2017/04/sclero… #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth Symptoms Infographic including puffy fingers, shiny tight itchy skin, fatigue, difficulty with swallowing, making a fist, msk pain blog.raynaudsscleroderma.co.uk/2017/04/sclero… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #NoCure

June #SclerodermaAwarenessMonth
Symptoms Infographic including puffy fingers, shiny tight itchy skin, fatigue, difficulty with swallowing, making a fist, msk pain blog.raynaudsscleroderma.co.uk/2017/04/sclero…
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #NoCure
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth This Infographic highlights skin involvement blog.raynaudsscleroderma.co.uk/2017/04/skin-i… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

June #SclerodermaAwarenessMonth This Infographic highlights skin involvement
blog.raynaudsscleroderma.co.uk/2017/04/skin-i…  
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

A year ago today, I was delighted to be filmed for GSK ry.com/work/gsk/helpi… #SclerodermaFreeWorld #SystemicSclerosis #Scleroderma #Research #SclerodermaAwarenessMonth #NoCure #RareDisease #LifeChanging #Raynauds #Autoimmune

nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth This infographic highlights Raynaud's phenomenon blog.raynaudsscleroderma.co.uk/2018/10/raynau…  #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

June #SclerodermaAwarenessMonth This infographic highlights Raynaud's phenomenon blog.raynaudsscleroderma.co.uk/2018/10/raynau… 
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth This infographic highlights sclerodactyly hands and the subsequent #disability. blog.raynaudsscleroderma.co.uk/2018/05/sclero… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause

June #SclerodermaAwarenessMonth This infographic highlights sclerodactyly hands and the subsequent #disability. 
blog.raynaudsscleroderma.co.uk/2018/05/sclero…
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

Delighted to be included here British Association of Dermatologists skinhealthinfo.org.uk/getting-treate… #SclerodermaAwarenessMonth We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW 🙏 #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Raynauds #NoCure

Delighted to be included here British Association of Dermatologists 
skinhealthinfo.org.uk/getting-treate…
#SclerodermaAwarenessMonth
We NEED a cure and understanding of the cause to systemic sclerosis (scleroderma), NOW 🙏 
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Raynauds #NoCure
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

#SclerodermaAwarenessMonth infographic shows some of the diagnostic tests. These include ECHO cardiogram, ECG, Lung Function Tests and Capillaroscopy #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure

#SclerodermaAwarenessMonth  infographic shows some of the diagnostic tests. These include ECHO cardiogram, ECG, Lung Function Tests and Capillaroscopy #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth This infographic highlights the management of Raynaud's phenomenon. Prevention is better than cure. There is no cure 🥶 blog.raynaudsscleroderma.co.uk/2018/10/raynau… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #NoCure

June #SclerodermaAwarenessMonth This infographic highlights the management of Raynaud's phenomenon. Prevention is better than cure. There is no cure 🥶 
blog.raynaudsscleroderma.co.uk/2018/10/raynau… 
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #NoCure
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth This infographic highlights the painful and debilitating unmet clinical need, Digital Ulcers blog.raynaudsscleroderma.co.uk/2018/04/raynau… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure

June #SclerodermaAwarenessMonth This infographic highlights the painful and debilitating unmet clinical need, Digital Ulcers
blog.raynaudsscleroderma.co.uk/2018/04/raynau…
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

Today I have made it to 52 years having been told I had 15 months to live by my diagnosing doctor in 1997, when I was 24. Eternally grateful to Dame Prof Carol Black, Prof Chris Denton, Dr Kevin Howell and team Royal Free Royal Free London #SclerodermaFreeWorld #Research #Scleroderma

Today I have made it to 52 years having been told I had 15 months to live by my diagnosing doctor in 1997, when I was 24. Eternally grateful to Dame Prof Carol Black, Prof Chris Denton, Dr Kevin Howell and team Royal Free <a href="/RoyalFreeNHS/">Royal Free London</a>
#SclerodermaFreeWorld #Research #Scleroderma
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth the painful and debilitating unmet clinical need, Calcinosis 😱 blog.raynaudsscleroderma.co.uk/2018/05/calcin… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging

June #SclerodermaAwarenessMonth the painful and debilitating unmet clinical need, Calcinosis 😱
blog.raynaudsscleroderma.co.uk/2018/05/calcin…
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

June #SclerodermaAwarenessMonth PAIN infographic, including management tips. blog.raynaudsscleroderma.co.uk/2017/04/my-job… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

June #SclerodermaAwarenessMonth PAIN infographic, including management tips.
blog.raynaudsscleroderma.co.uk/2017/04/my-job… 
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue
nicola whitehill (@cosmicfairy444) 's Twitter Profile Photo

GASTROINTESTINAL infographic, including symptoms and treatment / management tips #SclerodermaAwarenessMonth #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue

GASTROINTESTINAL infographic, including symptoms and treatment / management tips #SclerodermaAwarenessMonth #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #ConnectiveTissue