We are pleased to announce we have 3 spectacular advocates joining our board; Marie Follayttar as Secretary & Director of Development, Rebecca Jacobs, LMSW as Director of Community Support & Michael J. Clark as our Treasurer & Director of Finance. Meet our team here longhauler-advocacy.org/our-team 1/

No one is coming to save us. We must band together and force change. We will shortly be putting out a call for more volunteers! Please get involved with your #longcovid groups calls to action. We need you!

The U.S. Department of Labor is asking YOU the important questions! Please Vote For Us & Our Recommendations! longhauler-advocacy.org/c-19lap-recomm… Recommendations put forward for the #LongCOVID community came from your participation over the last 2.5 years! Please help elevate those needs!

For 2+ years we have been hard at work for the #LongCOVID community & beyond! Our work can be viewed at longhauler-advocacy.org/our-work If our work reflects your needs & experiences as someone w/ a chronic illness, please show us some support as shown ⬇️. TY! bit.ly/C19LAPDOL1

TOMORROW IS THE LAST DAY for YOU to help shape the very policy that can provide better outcomes for you or your loved ones with #Longcovid & associated conditions #LCAC. Pls go to bit.ly/C19LAPDOL1 to recommend us, & bit.ly/C19LAPDOL to view all C19LAP rec’s 1/2

For the public to make calculated decisions surrounding #COVID19 they need a foundation on #LongCOVID. 1- #LongCOVID & associated conditions can last years to a lifetime. 2- We need more experts in ^ fields. 3- Resources & help is unobtainable for most. #WhatsYourPlan if 1 in 5?

We are happy to announce that we have received a $10,000 grant from Dysautonomia International to support our #dysautonomia research, education, and advocacy efforts within the #LongCOVID community. TY Dysautonomia Intl. for your cont’d support & guidance. #DysautonomiaAwarenessMonth

A range of COVID-19 symptoms still linger in one in five U.S. adults, according to the CDC. @LipofTV speaks to two women who say the symptoms of long COVID are debilitating, painful and life-altering. (1/2)

Thank you so much for chatting with me, Michelle Z Chen!

Checking through the omnibus this morning, it appears that Congress did not include *any* funding for Long COVID research. Just a few weeks ago, @SenKaineTeam / Tim Kaine expressed optimism this would be included in the budget. What..[refrains from strong language] happened?

As co-drafters of the #TREATLongCovidAct, we are proud to endorse its reintroduction today led by Congresswoman Ayanna Pressley, Rep. Don Beyer & @RepLBR! This bill is aimed at expanding access to #LongCOVIDtreatment, investing in #LongCOVIDClinics and #HealthProviders. pressley.house.gov/2023/05/11/as-… 1/

The Mexican Wave Watch Party is about to commence. Ready? #MyLadyJane #MyLadyJaneWatchParty #SaveMyLadyJane

Margaret has spoken! Episodes 3&4 watch party happening now Stream #MyLadyJane on Prime Video right now. Help us #SaveMyLadyJane

OFFICAL Amazon Prime to Renew My Lady Jane for a Second Season - Sign the Petition! chng.it/Zrj5cmCbhN via Change.org Help us #SaveMyLadyJane and go to SaveMyLadyJane for more action steps!!